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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    That is so sweet & thoughtful of you to post this for us! Thank you! One day I hope I will be able to make it but at present the house we are renting does not lend itself to anything more than the basics. I scream every time I go in the kitchen. It's like someone designed the worst functioning kitchen they could think of. But now I know what ingredients...
  2. squirmingitch
    Hon you DO have celiac disease. I know you're fighting it right now like all get out but you will come to terms with it. And cheating once in a while is NOT okay. Not even if you don't have any symptoms. But I'm betting you will find that you will have symptoms the first time you cheat. And I pray for your sake that those symptoms do not manifest themselves...
  3. squirmingitch
    Welcome to the board! Here's some info. to get you started after your endoscopy is finished. https://www.celiac.com/forums/topic/91878-newbie-info-101/ Ask any questions, anytime!
  4. squirmingitch
    I was limited on time before when I replied. I still am limited but here you go. This is as official as they come. Print it out & take it to your GP OR your derm. The derm should have given you a dx of celiac right then & there rather than pawning you back to your GP. Since DH is the cutaneous counterpart of celiac disease ('skin celiac disease...
  5. squirmingitch
    Your doctor is not up to date. A dx of dh IS a dx of celiac disease. You do not need an endoscopy to confirm celiac disease. Further, the intestinal damage in dh celiacs is patchier & harder to find than with celiacs with GI issues & no dh. The pathology of the gluten-sensitive enteropathy (GSE) associated with DH and that in ordinary GSE (celiac...
  6. squirmingitch
    To all who read this thread:You know what I love about Razzle? No matter how bad off this girl gets, no matter how many foods she has to eliminate, no matter how big her tongue swells or how bad it burns; THIS girl can still crack jokes & she always makes me laugh. You just gotta love someone like that. Special.
  7. squirmingitch
    Remember too that you would have to pay for the CPA to do the paperwork & filing for you to deduct this from your taxes. Just saying these things in case you have 2nd thoughts about it. PLUS, according to IrishHeart who knows someone who works for the IRS --- says you can BET you will be audited. She & her hubs had saved receipts & were going...
  8. squirmingitch
    I found this incredibly interesting. Thought you might too. Open Original Shared Link
  9. squirmingitch
    YAY! That's a nice success story. Good for your mom!
  10. squirmingitch
    Penny, search here & post here for a doc in your area. https://www.celiac.com/forums/forum/6-celiac-disease-doctors/
  11. squirmingitch
    Hate to tell you this but EVEN for the skin biopsy for dh you MUST be eating gluten!!!!! And many doctors don't know this nor that for the blood or endoscopy you HAVE to be eating gluten. Gluten to the tune of 2 or 3 months the equivalent of 3-4 slices of bread per day. NOW, I will also say that many ppl who have gone either gluten light OR gluten free have...
  12. squirmingitch
    kswan, I don't want to scare you but the rashes & sores you are getting could possibly be dermatitis herpetiformis (dh) aka the celiac rash. The eggs may not be the problem b/c you are sensitive to eggs but rather b/c of the iodine content in the egg yolk combined with the iodine content of the tuna. Iodine is known to make dh flare & there are plenty...
  13. squirmingitch
    Oh Simona thank you! That looks marvelous. I will have to wait though as the vinegar, & margarine are out for me with being low sals.
  14. squirmingitch
    Well Penny, I absolutely concur with what eatmeat & rosetapper said! I think IMO you have dh & that means you have celiac disease. And OH! You poor, poor thing! I can see all the scars from previous, repeated outbreaks! All 3 of us have been there. At this point, since you are displaying what I believe to be dyed in the wool dh; then the blood...
  15. squirmingitch
    Ha-Ha! I wondered about that. I looked & then looked again. Then I sort of figured it out as I belong to a gardening site where the girl had the same thing going on recently so it came to my mind you might be both names.
  16. squirmingitch
    I agree!
  17. squirmingitch
    Thanks eatmeat! So, Alwayssomething, that link eatmeat will do it! You know, that dh takes many, many forms? Go to the sticky at the top of this forum & you can read where all these forms were noted way back when. AND this same info. is being used today. I have seen it quoted word for word in several med. texts about dh although it is not noted often...
  18. squirmingitch
    Also eeyorelver, You are right that a biopsy of dh for dh will not do anything but give a negative result when you have been gluten-free for a year. If it were me I would not allow him to do a biopsy for dh & here's why: When it turns up negative then he will (in his mind) confirm that you do not have dh. You see? And you can refuse to let him do it...
  19. squirmingitch
    Okay. The derm is obviously off on some things then. As far as Synthroid goes (my hubs takes Levothyroxine) --- if we want to get really technical --- iodine is not added to the medication but rather that the hormone itself contains iodine. So, in short YES, there is iodine in there. I called a pharmacist to ask if there was iodine in it -- actually I...
  20. squirmingitch
    I couldn't have said it better myself! What they all said!
  21. squirmingitch
    Adalaide! My experimenting is over for a bit. screwed up my right shoulder/arm & kept pushing on through to do the pies & blew it out completely. Have to wait till I heal to try anything else. Gawd, it was hell trying to roll that dough with this shoulder. Then mop the floor??????!!!!! I'm all done in.
  22. squirmingitch
    And I will be happy to comply WHEN I get well. Yesterday my shoulder/arm went whacky &it's so painful!!!!!!!!!!!!!!!!!! Had to sllep with ice pack on. Can't move arm or I scream. I have hundreds of bookmarks on dh & hundreds on celiac & the info. is bookmarked but I didn't organize them --- my bad. It will take a lot of searching & I'm not...
  23. squirmingitch
    Can you say hockey puck? Fried apple hockey pucks anyone? The dough wouldn't hold together w/o cracking or fissures. It simply wasn't pliable. I couldn't get it down to 1/8" thickness. But despite all that I fried them anyway. And they actually didn't taste bad. They were just HARD. And the kitchen was a mess, I was a mess, the floor was a mess.
  24. squirmingitch
    I'd say you have your final answer.
  25. squirmingitch
    Mine isn't in remission, healed, cleared YET. But I see what you're asking. And while other things may make you flare up like iodine & salicylates; those things aren't going to "start your clock back at day 1". Gluten is the enemy & I believe a glutening will set you back. Will it set you back to day 1? I don't think so --- not unless you got heavily...
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