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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Well thank goodness the gluten eating is over for him now & he can begin the journey back to good health! Poor fella. He was so sick! Just a heads up --- he isn't going to feel better instantly but at least he's a kid & they heal faster as a general rule. Bone broth!!!! Yaaaaaaaaaaaaaaaayyyyyyyyyyyyyyyyy mom! That's really going to help him! ...
  2. squirmingitch
    If he is celiac, & I'm sure he will be, he will have to avoid gluten at all costs!!!! There is no allowance for "a little bit" or any cross contamination. Anytime he gets gluten, even a small amount, it will damage his villi & kick off the immune response. I think the same holds true for NCGS as well. There is not a ton of research on that yet so...
  3. squirmingitch
    All I can do right now is cry. Cry for the pain your son is going through and cry for the pain you, as his mom, are going through. What a travesty!!!! I can't imagine how you kept yourself from tearing the place apart with your bare hands in anger & frustration. Monumental hugs to you & your son both. {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{HUGS...
  4. squirmingitch
    It sounds like he's quite immature. Well, we already knew that didn't we?
  5. squirmingitch
    Good one Karen!
  6. squirmingitch
    Me too.
  7. squirmingitch
    No, no, no, no, no! Do NOT go gluten free!!!!!!! You have to get back on the gluten ASAP!!!! And you're going to need to STAY on it until all testing is done. That includes a dh biopsy or an endoscopy or the celiac blood tests. NO steroids!!!!!!! They can screw up the dh biopsy and the blood work & maybe the endoscopy. DH does not immediately go...
  8. squirmingitch
    He's really a loser isn't he? I wonder if he will ever realize what a jerk he truly is. Go Lacey!
  9. squirmingitch
    I didn't have pain in my eye. I did have floaters which I made no connection to celiac but I seldom have any floaters these days. However, my right lower eyelid kept having spasms that nearly drove me up a wall! All I can say is that's gone now. You can't go by the length of time it takes others symptoms to resolve. We are all individuals. I think a...
  10. squirmingitch
    I experienced 5 of the 6. My headaches were full blown migraines which thankfully did not occur every day but were occurring on an increasing basis. My "D" was not all the time but I have the celiac rash & we often have milder, less frequent episodes of "D". Everything resolved for me after going gluten free BUT it didn't happen immediately -- it...
  11. squirmingitch
    Have you been diagnosed with celiac disease? Your statement, "I had been feeling a bit exhausted and wasnt completley gluten free" implies that you were supposed to be gluten free????? If you have not been dx'd with celiac, then I fail to understand why you're suddenly thinking you have the dh rash. Ditto what Karen said.
  12. squirmingitch
    Get them into raw veggies as soon as their guts have healed enough to handle raw veggies. Snow peas, carrots, celery, heck I love raw green peppers. Cauliflower, broccoli, zucchini, yellow squash. Some Ranch dressing for dipping. YUM! and don't even get me started on fresh fruits! Or dried fruits. Or nuts.
  13. squirmingitch
    Everyone who is not celiac gets tested every 2 years UNLESS symptoms present sooner & then you test right away. Remember, they will need to be eating gluten for testing. Wow, it sounds like you have your hands full & then some! However, you have the answer for the 12 & 17 yr. olds. YAY!!! Hang in there mom! {{{{{{HUGS}}}}}
  14. squirmingitch
    You are a member, never doubt that! It doesn't matter if people have an official dx or not. So many people have gone through stories like yours and stories of years upon years upon years of seeking a dx only to be thwarted by incompetent doctors. There comes a time when they just have to say they will not kill themselves any longer pursuing an official dx...
  15. squirmingitch
    You're welcome! Yes, the oil could very well get you if it's not pure. Plus any cutting boards that are used there.
  16. squirmingitch
    If you're gluten free then a biopsy of the rash will not come back positive unless you're getting some serious cross contamination. Take it from me & a few hundred others who have posted here that steroids are not the way to go. Oh they work as long as you're on them but the minute you quit, POW! you get a rash backlash that you do not even want to experience...
  17. squirmingitch
    You're welcome. Just hang in there.
  18. squirmingitch
    Maybe yes, maybe no. I'm going to say yes. When? I can't say. You just have to give it time. You didn't get sick overnight, you won't heal overnight.
  19. squirmingitch
    Sounds like gluten withdrawal is rearing it's head already Jess. Eat. Eat, eat, eat, eat. I couldn't go 10 minutes without eating. I swear I was starving 24 hours a day. Everyone is different so a time frame can't be told. I was about 2 months. I've heard people get over it in a few days or a couple weeks or a month & up to about 2 months. Rest...
  20. squirmingitch
    Once Again makes organic, gluten-free, peanut butter. Ingredients are peanuts & salt. Open Original Shared Link You can buy it here: Open Original Shared Link
  21. squirmingitch
    The same applies. In the US and Canada it has to say wheat if it is from a wheat source.
  22. squirmingitch
    I agree wholeheartedly with everything cyclinglady has said! BTW, this is the full, current celiac serum panel & you only got 1 test. Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also...
  23. squirmingitch
    How about trying bone broth? It's very gentle on your gut. Open Original Shared Link Some people find it easier to have their gluten crackers just before bed. That way they can sleep through the worst effects of it. You sure have a lot on your plate right now. You need some hugs. {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{Misscshell24}}}}}}}}}}}}...
  24. squirmingitch
    HAPPY BIRTHDAY LISA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! What a lovely bracelet. I am so happy to hear they were asking about celiac and talking about testing. One step at a time! It's a start.
  25. squirmingitch
    Ditto again what Karen & Peter said.
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