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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    You're welcome.
  2. squirmingitch
    katelyann, it doesn't matter if your hives are dh. You have celiac disease, no need to be dx'd with dh. You just have to be super careful not to get cross contaminated. Since your gluten exposure was assumedly only once last week then your biopsies will turn up negative for dh IF the derm took them correctly. You would have had to be eating gluten for a while...
  3. squirmingitch
    Yes, you have to be eating gluten for the skin biopsy the same as you do for the blood panel. Open Original Shared Link Read this: Open Original Shared Link "Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease. However, they almost always have the same, gluten...
  4. squirmingitch
    Oh honey, I'm soooo very sorry all this has happened to you. The doctor is an ass, plain & simple. You don't get villi damage from non celiac gluten sensitivity -- you can get all the other symptoms but NCGS does not damage the villi. I would bet everything I own that you are celiac. You've just gotten a doc who doesn't know what the hell he's talking...
  5. squirmingitch
    So when do they measure you for your halo?
  6. squirmingitch
    nacoconut, Apparently there are many options for the endoscopy procedure & you can do it without general anesthesia. Many people have gone through it with just a throat numbing spray. I found a few links I thought you might like to read: Open Original Shared Link Open Original Shared Link Open Original Shared Link
  7. squirmingitch
    You MUST be eating gluten for blood testing. I don't care what your doc says. If you don't keep eating gluten until the blood is drawn then you can get a false negative. It's happened countless times!!!!! An allergy specialist will do you no good in dx'ing celiac disease. Better to go to the GI. It may be possible to do the endoscopy under heavy sedation...
  8. squirmingitch
    Make sure to continue eating gluten until the endoscopy is done. Push very hard for 6 biopsies!
  9. squirmingitch
    How long now have you been gluten-free? How long have you been experiencing withdrawal? One positive thing you can do is explain to your hubby about gluten withdrawal and how it is affecting you & causing this abnormal "bad mood". Your hubby will be able to understand this, unfortunately your puppy doesn't know why you've suddenly developed a hair...
  10. squirmingitch
    Gluten withdrawal strikes again. Snappy, rude, snippy & just plain mean can also be a sign of glutening down the road after you've been gluten-free a while & get cc'd. Just so you know.
  11. squirmingitch
    In order to test you for celiac disease you would have to do what's called a gluten challenge which requires eating gluten. See: Open Original Shared Link So bottom line ~~~ you can either do the challenge & get tested or you can go very strict gluten free. From what you wrote I would bet you are a celiac and that would mean you need to be very...
  12. squirmingitch
    It's possible. However, it's also possible it's a temporary "feel good". The first 6 months - even a year - can be rather roller coaster like. Some days/weeks great & then boom, the bottom seems to drop out. Just try to go with the flow, keep your diet clean, drink lots of water & try to keep the stress level down. Let's hope you are one of the lucky...
  13. squirmingitch
    It sounds like things are looking up for you. Happy dance, happy dance! Happy Valentines Day!
  14. squirmingitch
    You're welcome! BTW, This place is great for corn meal, grits, hush puppy mix, cornbread mix, etc.... they also have some rices. Certified gluten-free! They grow it, harvest it, truck it, mill it, & bag it in bags they sew & print themselves. No chance of cross contamination anywhere! Open Original Shared Link
  15. squirmingitch
    Oh, & I forgot corn -- grits, fresh or frozen corn, cornbread, hush puppies...... Buckwheat is versitile -- if you put cream & sugar on it, it's much like cream of wheat but if you put salt & butter on it, it tastes more like grits. Quinoa is good with some honey on it or you can make sort of a quinoa pilaf: Open Original Shared Link ...
  16. squirmingitch
    There's buckwheat, amaranth, quinoa and rice.
  17. squirmingitch
    I didn't gain an ounce & I really needed to. I am 5'2" & was down to 92 lbs.
  18. squirmingitch
    Gluten withdrawal. I literally vacuumed with one hand while eating an apple with the other. Could not stay away from food for 2 minutes. Don't worry about it hon, it will run it's course & go away. Just go with the flow right now & eat your fool head off. Hang in there.
  19. squirmingitch
    Awwwwwwwwwwww. I know that feeling and happily it isn't happening anymore. Yep, ferritin is a real tell tale sign. Have you had your thyroid tested? That's another super common one although mine was fine but my hubs was not. He was hypothyroid. Vitamin D is often low. Mine was. The needles or tingling in hands &/or feet is real commonly...
  20. squirmingitch
    Oh you're so welcome! I'm glad you're eating gluten as so many go off it "to see how they feel" & that's usually a very bad thing because they have to go back on it to be tested & usually get even sicker than before they went off it. When you get the tests back, if you can't make heads or tails of them then post them here along with their reference...
  21. squirmingitch
    You have enough symptoms of celiac disease to be tested for it. I had nausea, joint pain, bloating, migraines, depression, mood changes, feeling "not all there" and feeling so tired I could sleep all day! I just don't want to get out of bed let alone the house as well as many, many more. When you get your blood test results back let's make sure they...
  22. squirmingitch
    If your friend is going to be tested then he MUST BE EATING A GLUTEN DIET or the tests will be skewed. See: Open Original Shared Link
  23. squirmingitch
    This is a link that will explain sreun panels for infants under 2 years of age. Open Original Shared Link The author of that is a doctor, has celiac herself, and is a member of celiac.com. Here is a link that tells you about her: Open Original Shared Link This link will also give you information: Open Original Shared Link ...
  24. squirmingitch
    That was not a full celiac blood panel that was done. Plus, as I understand it, at that age the DGP is more likely to be high rather than the others. Here is the full celiac blood panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total...
  25. squirmingitch
    Robb you have responded to a post that is from 2008. I haven't seen yolo posting in years. I doubt you wil receive a reply.
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