dani nero

It is normal to rebel and want what is forbidden. Don't worry you'll get used to how things have changed and find you rhythm again in time. Before eating just sit for one minute and tell yourself that you are eating this because you chose to, and if you don't feel that you did choose to eat that food then don't it is also normal to feel more hungry than usual in the beginning because your body is starting to heal and wants all the nutrition it can get.

As for feeling depressed, can be due to gluten withdrawal. Give it a few months. It took me 4 months to get over withdrawal symptoms.

friend: "tell me how the diet you're doing works, I also need to lose weight"

me: XD

another friend sent me some speech by some .. priest or shek about repelling devils which cause unexplained illnesses from the body.

I just mean I have enough hobbies/habits/addictions that suck the time out of my day, last thing I need is another fun thing! Ha!

I hear ya :-)

Oh... I don't have a phone that has 'apps'.... Yay! One more timesucking activity I won't allow myself to get addicted to! :ph34r:

You can call photography a time sucking addiction if that's how you feel about it.. I thought it was a hobby.. or maybe it used to be :-(

Loved your pics!!! cute pic of you...and your bunny bun bun!

I like the turttle too at the park! very artistic...interesting contrast of color the rust in the middle gives to the overall blues and greens...intresting feel! almost looks cross like in a meloncoly way...used...loved...cast aside! intresting...so many ways to look at it...very rustic! LIKE

Cougie I'm glad you like them.. I love blues, greens, and bluegreens haha! Now come and make an instagram account too! Start taking photos with it so I can put you on my follow list and comment on them! :-D

I've never been on that website. I'll make sure not to!

It's not a website, it's a phone app which takes photos then gives you the option to publish them on your own gallery. You can also look at other people's photos.. and there are people who are just so amazing.. So many colors, so many different compositions, so much pretty stuff.. it's just.. I'm so obsessed with it :-O

Then you can make a page that shows all the pictures you've taken! Here are mine :-)

Open Original Shared Link

It's awesome. @Bottomoftheatlantic

I think so too :-O My composition skills have advanced incredibly since I started!

The rash actually looks just like the pictures that "Aeriel" posted in response to your pictures, Dani.

With the same symptoms? I've been told by several board members that based on research, having DH is an indication of having celiac disease.

I'm hoping someone out there can help me answer a few questions.

I have been gluten free just over 4 months.

I started this on the advise of my doctor.

I was having my "yearly" checkup, but actually it was my almost weekly apt for a 2 yr migraine/sinus infection, combined with horrible joint & muscle ache. I was lethargic and had mouth sores. I had itching and a constant rash. (There's more, but I'll stop there!)

Now that I have been gluten free for 4 months, is there no way to be tested for Celiac Disease?

Do I say that I have Celiac Disease, or do I say I'm gluten intolerant?

I have many many allergies, hypothyroid, sleep issues, anxiety, and stomach issues.

Just need to know what to tell other people.

Gluten-intolerance means you get symptoms if you eat gluten but don't get damage in the small intestines as celiacs do. What does your rash look like though?

You are gluten intolerant. Welcome to Club Well- Fed !

If you break out in another rash, you can get the skin next to it biopsied for DH. You can also get a genetics test, but that won't tell much other than you have a probability of developing the disease.

Otherwise, you'd have to re- gluten a large amount for a long time, and there is still no guarantee you'd get a positive blood test.

I've been told that even if the rash surfaces while the patient is gluten-free the biopsy will test negative. So the only way to know for sure is a gluten-challenge.

I spend most of my free time browsing photos on it and taking photos of my own :-O I'm planning a bicycle trip tomorrow to inspect a gluten-free bakery I heard about, but the truth is.. I'm just going to take interesting photos for instagram on the way!

Hey Aerial,

My rash looks almost exactly like yours. There is no question in my mind that we have the same rash.

I can also identify with the EXTREMELY itchy thing that wakes you up. And the volcano eruption description. Hot water really gets me, and hot steam (like with cooking) the hot water too but not as much. Sweating definitely makes it more pronounced (which I do a lot of in the summer).

I haven't been diagnosed as gluten intolerant or DH or anything. The rash has responded well to oral steroids and sometimes antihistamines.

I've never had any gluten symptoms before this. Definitely no GI problems at all. I've been mostly gluten free for about 10 days, and the rash has not gotten better. However, there have been fewer "eruptions". Besides that though, I don't feel any better... like sometimes people say they feel great when the stop eating gluten. Hasn't done a thing for me.

Interested to talk to you more

A lot of people with DH are also really sensitive to iodine and and salicylates, which can continue to cause DH flares even when you're gluten-free. Try going low iodine (meaning no iodized salt or salt-water fish), and limit foods as well as beauty products containing high amounts of Open Original Shared Link

Hi Dani, I am formally diagnosed since 2005. My eczema (left eyelid, right ear) began several years before. Going gluten-free helped for a while, and when I went legume free it cleared up for quite a while only to reappear a couple years later.

It is hard to say what triggers the itch--it waxes and wanes but the key I've found is keeping the area moisturized. When it's very itchy and red like your pic, that's when I use the hydro cortisone cream. There is also a prescription steroid cream that is effective but personally the over the counter cream works just as well.

Thanks for your input Patti, was very helpful :-)

I totally understand your frustration and how it must feel ;-( Feels like world war is striking in my home if anything contains gluten makes it through the door. Don't stress.. it already happened and there's nothing you can do to change that. Perhaps next time it would be a good idea to check what type of food is involved before someone in the family is involved and gets it all over them.

Are your floors wood or carpeted?

This all means that you're a good mother though, and your daughter will be find because she has an extra careful mom like you :-)

Thanks Ravenwoodglass. What the HECK was I thinking?????? Yes, of course --- unless she's gluten-free then going li will do no good. I think there must still be some traces of gluten rattling around in my brain.

It looks like eczema to me--I have it and mine looks like that when it's itchy.

I use cortisone cream--at my doctor's suggestion. Unfortunately none of my diet changes have permanently gotten rid of the eczema.

Thanks Patti! Can you tell me more about your rash? Does it get worse when you're angry or stressed, when does it itch, and did going gluten-free make a big or small difference? Also are you self or formally diagnosed?

I would like to add that I did not do an in depth study of eczema so the symmetrical part is not an absolute given as to it does or it doesn't --- I just didn't see anything saying it does.

Now, here's a thought...... I have never heard or read that any skin condition responds to withdrawal of iodine EXCEPT dh. And there have been some on here with dh who find their dh does not respond to iodine withdrawal. Having said all that more report relief & healing with low iodine than those who don't. Soooooo, (yeah, I know --- good luck with THAT! ;-) IF you could get your mom to go low iodine for a week even & see how it reacts. You follow my train of thought? We know from our experiences that dh responds quickly to low iodine.

Thanks for brainstorming with me :-) I never read anything about eczema being symmetrical either but just wanted to check.

Sadly, there's no way on earth she'll go low iodine. My parents are in complete and utter denial to no end with body issues being linked to food ;-(

Guess I'll never know.

I'll ask her about the itch when my dad isn't listening. Don't want him butting in :-P

I managed to make my mom let me take photos of her knee.. She has one on each knee and they itch her like madness. I didn't see any signs of blisters.. so don't know if it can be DH, but I saw pics of eczema and they look a little more like this one. Can eczema also be symmetrical like DH? Can this be a sign of gluten intolerance?

http://rainytown.se/images/external/20120621_130325.webp

We still don't have the Star Trek tricorder available. May never for that matter.

:lol:

Even my doctor thought whether I go gluten-free or not was up to me. Doctors are not always right and not always wrong when it comes to celiac disease. Being gluten-free will not harm you in any way even if you're not intolerant, but if you happen to have celiac and don't feel any symptoms the damage will still be done.

Well..blood and.endo are.negative. Aside from some serious ulcers, she said she saw nothing wrong in there. She said there is zero.evidence to support celiac disease or intolerance, even though all my symptoms point to it. She is redoing bloodwork today and in 3 mos, but otherwise, thats it. Im pretty aggravated.with my body right.now. I just dont know what to do.

Well.. you can always go on being undiagnosed. I'm undiagnosed but I'm pretty sure I have celiac. No one can stop you from living gluten-free if it's the only way you're feeling better.

I myself decided to stop going after an official diagnoses once I found out my thyroid "might" have started being effected. I don't want risk any permanent damage to it and a gluten challenge for a 30% accurate testing system is not worth it to me. I don't feel a need to prove it to others any more because all my symptoms are starting to go away.

Don't worry, no matter what it's not the end of the world :-)

You can also ask for your test results and show them to the members here. THey're pretty good at reading them.

Did the doc check for vitamin levels in your blood?

Welcome herestohealing and congratulation on figuring out what was slowing you down :-) As the others said you'll be slow for a while longer but you'll find that in a few months you'll start feeling like a new person. Hang in there!

1. No, you can't kill gluten by cooking it.

2. You can eat rice if you have celiac.

3. You don't have IBS, you have celiac, but you seem to also lack the ability to accept that.

4. Please don't feel sorry for me because I don't eat gluten, feel sorry for yourself because you can't imagine your life without it.

5. I'm tired because I haven't been fed for 20 years, so don't talk to me about will-power. I have more of that than 10 of you (deadbreadheads) put together.

6. I wish there was a machine that would allow others to feel what I'm feeling. Then I wouldn't have to explain my symptoms to walls every day.

Well Dani, if that's what yours looks like then there isn't any doubt in my mind about it. Not that there was anyway with all the other info. I know about you.

I actually have not seen one that looks exactly like mine yet.. which is why I can still get the occasional doubts about it really being DH. I'm a little less doubtful now that we found out my thyroid might be acting out.

I should start a thread where all members can add pics of their rashes for anyone looking for reference actually. I think mine would be looking like the mildest case.

Thanks for responding, Dani - I need to be told (and whacked over the head) over and over that I am not dreaming up this rash! Is yours starting to get better?

Mine has been A LOT better since we banned regular bread (and bread products/crumbly things) from the house & the low-iodine. Doesn't make the padre happy though.. at all.

The only difference between my rash and yours is that mine gets a little more dry and the popped blisters don't get yellow. They used to get bloody when I used to itch them but they don't itch so much anymore.

I'm also sensitive to sals so mine can surface even without the gluten, but to answer your question I would say it is better now because I know how to get rid of it ;-) As I behave and don't get greedy with foods high on sals it goes away.