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e&j0304

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Everything posted by e&j0304

  1. e&j0304
    Actually, there is a woman who posts on this board who has a double copy of DQ-1 which Dr. Fine says is a gluten senstivity gene and she is blood and biopsy proven celiac. So....who knows?
  2. e&j0304
    Tamara, I'm so sorry to hear that Emmie is feeing so badly. I don't really have any words of wisdom, but just wanted to say that I hope she feels better soon. It's so awful to watch your child be sick. Update us soon! Shannon
  3. e&j0304
    Thanks for your kind words. I am actually thrilled with her recent growth and of course thrilled that she seems to healthy and happy these days. It was a long time coming, but well worth all we went through. Thanks again!
  4. e&j0304
    I just stumbled upon this and I see that it's a really old thread, but I just wanted to add a little of our story for you. My then 2-year-old dd was ALWAYS hungry. Hungry to the point of eating 2 sandwiches, a bowl of grapes, apples, bananas, bowls of cereal, 3 glasses of milk, animal crackers, etc. IN ONE SITTING. She was so ravenous that we took her...
  5. e&j0304
    Thanks Rachel!! You were such a great source of support for me when we were first going through this with Ella and I will always be thankful for that. I hope that you are doing well also! Shannon
  6. e&j0304
    I just wanted to share that I took my kids to the dr. today because my little one had his 2-year well baby check and my daughter is sick with the flu. Although it is sad that my daughter has the flu, I was SO excited to learn that she is now 34lbs. and almost 38 inches tall!!! This is HUGE for her. The last time she was measured, 10 months ago, she was...
  7. e&j0304
    I'm no expert on this, but I do know that just because you have the genes doesn't mean that you are gluten intolerant. You may become gluten intolerant in the future if you aren't already, but you may not. Without seeing if your stool sample picked up a gluten sensitivity it's hard to tell. I'm assuming you didn't have that part of the test run? I am...
  8. e&j0304
    Thanks for your opinion. Basically we just don't know if my son is intolerant unless we continually subject him to getting sick and wait for him to "adjust" if he's going to... How long would you say it would take to become able to tolerate a food again. For example, your friend with the steak. How long did it take before her body could tolerate...
  9. e&j0304
  10. e&j0304
    That is exactly what happened with my dd. That is actually what we did take her to the dr for. She was only 2 years old and was eating CONSTANTLY. She would not play with friends, particiapte in little classes or really do much of anything because she was sad/anxious about when she could eat next. It was a nightmare and before she was diagnosed (by us...
  11. e&j0304
    This is all so interesting. Thank you all so much for your imput. I went to a Celiac Support Group meeting last night and asked this question there. Although there were no doctors, just people with celiac like all of you, they thought that you CANNOT cause a person to develop a sensitivity to gluten just by keeping them off of the diet. I am going...
  12. e&j0304
    So basically this could go both ways?? Either I am making him more sensitive by keeping him off of it, or I could be causing unknown damage by having him on it. Am I right? I am a little confused. Basically what this boils down to for me is that I want my son to have the least complicated preschool experience that I can give him. I know how difficult...
  13. e&j0304
    This is interesting to me. I have not asked my dr what she thinks but I will at my son's 2-year check up next week. I do not want to be making him sensitive to something, but also wonder if that's really possible. Ursula, you made a good point when you stated that we would then be sensitive to anything new we try. Sometimes it's really hard trying...
  14. e&j0304
    This came up on another thread and I'm interested. I have a son who was never diagnosed. He had negative blood tests, biopsy and was even negative through Enterolab. He was diagnosed with "toddler diarrhea" and since my dd was already on the gluten-free diet, we put him on it as well. His diarrhea cleared up. Last Tuesday he got into some regular pretzels...
  15. e&j0304
    Aren't mouth sores a symptom of celiac? I have read that numerous times. I am sorry you're stuggling so much. I wish there was a magic wand someone could wave to make you feel like you're doing the right thing 100% of the time. I know how you feel and it is hard and frustrating. If Thomas is feeling better off gluten I think you have your answer. If...
  16. e&j0304
    I would love to know how all of can distinguish a gluten reaction from the flu or a cold. My son got into regular pretzels yesterday. He has been fine all day long- playing and happy. About 3 hours after eating the pretzels he suddenly came down with a high fever (104.4) and was vomitting and having tons of gas and loose stools. Now, was it the pretzels...
  17. e&j0304
    Thank you all so much for all the suggestions. I will definitely let you know what I try and how it turns out! Thanks again, Shannon
  18. e&j0304
    Hello there!! I will definitely be giving you a call. I would love to hear your recipes! Take care and have a wonderful weekend! Shannon
  19. e&j0304
    Anyone?
  20. e&j0304
    Nicole, Thats a good idea and sounds yummy! Thanks! Lorka, I am not anti-Splenda. Is it terrible for kids? I typically don't use it, but am not opposed to it on occasion. I don't think that having it a few times a year will kill anyone. Thanks again, Shannon
  21. e&j0304
    Just wondering if these soups are ok or not. The labels look fine to me and they only say "May contain Soy" but when I called the 800 number I couldn't get a "live person" to answer a question. Has anyone ever tried these? I'm looking for some canned soup with meat in it for my kiddos. Thanks in advance! Shannon
  22. e&j0304
    Actually anything would be ok! I wasn't going to be picky because I wasn't sure how easy it would be to cook gluten-free/SF. Cookies or a pie or something would be nice for Thanksgiving. I'll take anything! :-) Thanks so much for your help! Shannon
  23. e&j0304
    Hello everyone! I am searching for a good gluten-free/Sugar Free dessert recipe and was hoping maybe one of you would have one. My mom was just diagnosed with Diabetes a few days ago and I would love to make a dessert for Thanksgiving that both she and my kids can eat. So, if you have some suggestions, please post them here! Thank you, Shannon
  24. e&j0304
    No, sorry I guess I worded that wrong. My child does have double DQ1, but is NOT biopsy proven. There are however several people on here who ARE biopsy proven and DQ1. There is a definite possibility that you could have celiac although of course it doesn't make much difference what you have because the solution to the problem is the same for celiac or...
  25. e&j0304
    I'm sure that you're feeling VERY overwhelmed and that is so normal. I of course support you 100% and am always a phone call away if you ever need anything, including just someone to vent to who really understands!! I feel for you with the caesin. We aren't dealing with that but I know plenty of people on here are and hopefully they will be a good support...
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