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Latest Celiac Disease News & Research:
Everything posted by mouse
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Thank you Mariann for the Blog information. I need all the help I can get in that department. You said "once you set up your blog" and you must have been referring to all those little squares or questions or whatever they are. I had no idea what they meant and left them alone. I finally figured out how to publish, but that was after I had already done...
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What is a Trackback in Blogs? I am having enough problem trying to figure out how to post the Blogs. I wish there was a step by step list for the computer illiterate. Thanks, Armetta
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Well, I just had a nice long nap and I will try and finish this. When I went to the doctor's and stated how I was losing weight, they ran the typical blood tests that came back negative. Thereafter I would go in with more of a weight loss and be greeted with the same statement from the nurse - EVERY TIME. "I don't know why you are here - You Look Great...
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THIS WAS REALLY WRITTEN ON SATURDAY, BUT I DID NOT FIGURE OUT HOW TO ENTER IT UNTIL TODAY. THIS IS BLOG NUMBER ONE. I absolutely have NO idea what I am doing. I am totally computer illiterate. I sold on eBay for several years and figured out the basics, but this is Greek to me. What I hope to do is write down the LOOOOONG path to my diagnosis. After...
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I was born with both lungs collapsed and had pneumonia several times in childhood, then advanced to a lifetime of bouts of bronchitis. Because I was a skinny child, my parents decided that pure cream would put weight on me, little knowing that fat cells are formed in the first two years of life. Boy, do I have the fat cells LOL. The blister rash on my...
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ARCHIVED Top Three Worst Gf Products
mouse replied to anerissara's topic in Gluten-Free Foods, Products, Shopping & Medications
Chebe bread?? I love it as small rolls. Fresh out of the oven with lots of butter. Of course I am not suppose to eat the butter or the cheese I put in them. But, at times I must indulge. Everyone I have given them to, loves them and asks for more. I use sharp cheddar cheese. OOPs, my 17 year old granddaughter does not like them. Never tried it... -
Well celiac3270 - am I doing the right thing by staying away from Iodized salt - no matter what the CSA book says? I also have a hypo-thyroid and take synthroid. Armetta
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I belong to a prescription plan that likes to use generics. I was taking Synthroid and still do. After talking to my insurance plan they put in my records - no substitutions as it was just too iffy. They had just come out with a generic synthroid and THEY could not find out if there was gluten in it. That was last winter. Maybe by now someone knows....
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For MANY years I would get Bronchitis so severly that I would end up as a patient in the hospital or intensive care. I had an 18 hour window to get on antibiotics before I ended up in the hospital. And of course this would always happen on a weekend LOL. Had the pneumonia shot and exactly 2 weeks later I had pneumonia and again landed in the hospital....
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I was told that Iodized salt has gluten in it - something to do with the iodine. To be absolutely safe, I choose not to use it. I bring a small salt shaker in my purse to restaurents. You can use table salt, non-iodized salt, kosher and sea salt. I have all of them in my home for whatever a receipe calls for. I just went to the CSA book and on page ...
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ARCHIVED How Did You Tell Your Friends/family?
mouse replied to Suezboss's topic in Coping with Celiac Disease
I agree with everyone. People do seem to fall in three catagories. The first catagory includes the people who were trying to help prevent me from dying and I truly was that sick. They are easy to deal with and also to eat anything in their homes. They always tell me the ingreds. if I see something yummy (and the brand names). Then I know if I can touch... -
When I was newly diagnosed with Celiac Sprue, I ordered the book and used it extensively until I was familiar with the products I used. Even now I still take it to the grocery store if I am hunting for a new item for a receipe. BUT, I also went throught my frig and pantry and called all the 800 phone numbers on the products that were not in the CSA book...
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ARCHIVED Bacterial Enzyme Renders Gluten Harmless
mouse replied to Emme999's topic in Related Issues & Disorders
NO OFFENSE Celiachap, but I did not like your answer to the person before you. That was her second posting and I found your answer rude. I thought a Forum was for ALL ideas to come to light. So, she is scared to test the product and that is her right. There are probably a great many of us who were so ill (and almost died) that the thought that something... -
ARCHIVED Fingernails (pictures Of Disorders)
mouse replied to Emme999's topic in Related Issues & Disorders
My nails had the deep ridges for years (toes and fingers). They finally diappeared about 6 to 8 months ago. I had been gluten-free for about 10 to 12 months when they finally left. They also use to split and don't anymore. The one thing I have a problem with is that my fingernails have a SUPER ARCH on the tips. One of Scott's newletters mentioned that... -
ARCHIVED Little Blue Boxes Have Changed!
mouse replied to celiac3270's topic in Board/Forum Technical Help
Thank you!! Armetta -
ARCHIVED Little Blue Boxes Have Changed!
mouse replied to celiac3270's topic in Board/Forum Technical Help
Dear Advanced Board Members. I am still new at this and am just learning what initials stand for. The one I want to know about is lol. Does that mean - lots of laughter - lots of luck - ? - ?. Thanks, Armetta -
I have had the blisters on my fingers and palms, on and off, my whole life (age 63). I remember that my Dad had it so bad that his hands would crack and bleed. I used to think it was nerves. When I got the Celiac diagnosis, my GP thought it was DH, but after my other diagnosis with Scleroderma, the skin specialist said it was not DH, but something else...
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ARCHIVED Question For The Non-celiac Spouses...
mouse replied to frenchiemama's topic in Parents, Friends and Loved Ones of Celiacs
I really hated to write my comment as it was just a gut (no pun intended) feeling. And it is such a negative comment!!. (And I wish the fog box around my brain would lift and let me spell things correctly ) Armetta -
ARCHIVED Question For The Non-celiac Spouses...
mouse replied to frenchiemama's topic in Parents, Friends and Loved Ones of Celiacs
Since this is a forum, where we are suppose to express our feelings. MY fist thought on this is that he is being very selfish, by making you prepare two meals. I totally understand how your lack of energy, would then prevent you from making something decent for yourself. In the beginning my meals were a pit as I was afraid to add anything to my cooking... -
ARCHIVED How Many Of You Are Also Casein Intolerant?
mouse replied to julie5914's topic in Related Issues & Disorders
I have been tested for food allergies and they came up with all dairy products, soy, corn. egg whites, peanuts. The dairy is my highest and I try to avoid it like the plague. But, I still like a cheese omelet - one egg white the rest are yokes, maybe once a month. But then I have to breath on my nebulzer two times in a row to stop the wheezing. I also... -
ARCHIVED Tums
mouse replied to mandigirl1's topic in Gluten-Free Foods, Products, Shopping & Medications
I carry a small bottle of Pepto Bismo Caplets in my purse and they solve the problem if I accidently get into gluten. Changed purses and no room for them. Went to the dentist yesterday for teeth cleaning, small cavity and a broken tooth. & 7 shots of novicaine and then the heart burn started. And it stayed with me through all of my errands and the... -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
mouse replied to groogle's topic in Coping with Celiac Disease
Don't give up on the beer. Check your local health food store and the liquor store. I heard on this site about Bards Tale beer and yesterday I was in Whole Foods and they are checking into acquiring it. They told me today (wish it had been yesterday, so I could have tried some) that they carry a Belgium gluten-free beer called Sarahs? Not sure if I heard... -
ARCHIVED Let's Help The Fm People On Fibrohugs
mouse replied to Jonesy's topic in Related Issues & Disorders
I was diagnosed around 25+ years ago with FM. Every pressure point was super sensitive and they tell me that I have a high pain tolerance. I sure did not feel that way at the time. Before we down sized (June), I had a special made pool and spa that really helped relieve the pain. I had weights, etc. that the physical therapist had instructed me to use... -
ARCHIVED Do You Think Of Yourself As A "sick" Person?
mouse replied to frenchiemama's topic in Coping with Celiac Disease
Like everyone else, I also don't think of myself as a sick person. I find that mentally defeating and serves no purpose. In January of 2004 I WAS SICK and dying. I had already lost 50 pounds and looked like someone from a concentration camp. Every test I ORDERED came back negative. That last month I was living on 100 Lomotil (sp) a week and still could... -
Hi celiac3270, Don't you just love that....an allergy. I only WISH it was one of my allergies. Armetta