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happygirl

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Everything posted by happygirl

  1. happygirl
    "After postive enterolab tests, I'm gluten free for only two weeks. And I'm not feeling normal yet....so (as Laura points out) I'm having mild doubts about whether the tests are accurate and wondering whether all of this effort is worth it. But, many have said it may take a couple months or even a year to heal. So I'm going to try to stick with it. " Patrick...
  2. happygirl
    I just want to say that THIS is why this board exists---to provide support, knowledge, and personal experience to those who need it. I sure wish I had found it sooner! Susan, I certainly hope that this info has helped you. Please keep us updated---call your dr. back on Monday and ORDER him to run the full panel The full panel, according to Dr. Green...
  3. happygirl
    my sister tested normal on bloodwork and recently tested positive by Dr. Fine.
  4. happygirl
    Just to put this out there---if you are not eating gluten, the chances of your bloodwork being indicative of Celiac are highly decreased. The blood tests are testing your level of antibodies in reaction to gliadin. If there is no gluten, your bloodtests are not necessarily accurate. IF you want as accurate of a bloodtest as possible, continue eating gluten...
  5. happygirl
    gluten free lunch meat with cheese and mayo, in little rollups (I got the idea because I used to do this as a kid---and I love it). other option is to do rollups with lunchmeat and cream cheese. mmmm. leftovers are ALWAYS good. whenever we cook, we try to make extra so that at least one of us has lunch for the next day. Spaghetti is easy to make in...
  6. happygirl
    I'm just putting this out there, so no one get mad at me--- I'm not "bashing" enterolab by ANY means. In general, the medical community does not fully accept enterolabs method of testing. It is different than the standard (bloodwork/biopsy) and many doctors don't "believe" their results. There are some doctors who will give you a dx of Celiac/gluten...
  7. happygirl
    taken from celiac.com, based on a study by leading Celiac researcher Dr. Fassano: (I have been interested in this as well, as we want a family in the next few years) According to a recently published large-scale multi-year and multi-center study, 1 in 133, or a total of 2,131,019 Americans have celiac disease. Alessio Fasano, MD, et. al., and colleagues...
  8. happygirl
    "Celiac" is the common American spelling; "Coeliac" is a more common European spelling. Although you see it used interchangably, even by America drs.
  9. happygirl
    I did a search on the forum and couldn't find any posts about this, but wanted to post it. This is a bibliography of published journal articles (I would hope peer-reviewed journal articles because it was compiled by NIH/NLM) on Celiac from 1986-March 2004. So, the absolute most recent research is not listed here, BUT, it is a wonderful resource for those...
  10. happygirl
    Emily- If by chance you ever have the opportunity to hear either of these men give a presentation, I know you would enjoy it. I was so inspired...not just for the outlook on Celiac, but the underlying research that could potentially be a MAJOR breakthrough in the way doctors learn about auto-immune disorders. I went with my mother-in-law and grandmother...
  11. happygirl
    chewymom-I graduated from Auburn last summer with a master's degree. I love your family picture. Does your family live in Alabama? War Eagle!
  12. happygirl
    Unfortunately, many....and by many, I mean most.....GIs and GPs are not educated about Celiac. Good for you for following up---and yes, you want the FULL celiac panel run. I'm sorry he'll have to have blood drawn again.
  13. happygirl
    i am currently in vabeach, but may be moving to nova---so maybe i can join
  14. happygirl
    I think Kendra's example is perfect for this discussion. We don't know why there are asymptomatic Celiacs or why there are Celiacs who get violently ill. What we do know is that gluten causes an autoimmune reaction to occur, regardless of symptoms. I know this doesn't really answer the question, but I just thought it was important to highlight.
  15. happygirl
    i had positive bloodwork, was TOLD by my 1st (i'm now onto #3) idiot GI to START the gluten-free diet BEFORE the procedure (which, I know now is incorrect). Magically, my biopsy came back negative. Due to the positive bloodwork and positive dietary response, he agreed that I probably had Celiac. I have been gluten free ever since. So the biopsy doesn...
  16. happygirl
    i'm gonna try pubmed and the journals through school-who knows what i'll find.
  17. happygirl

    ARCHIVED Celiac Sprue & Doctor Too!

    happygirl replied to RKB-MD's topic in Doctors

    https://www.celiac.com/st_prod.html?p_prodi...-35106112548.2a balsamic vinegar is safe. it is the flavored "vinagrettes" that could be in question. hope this helps.
  18. happygirl
    please define "can't get insurance." Personal health insurance or insurance through, say, a company or the government (i.e., through your job).
  19. happygirl
    the drug is only being tested on biopsy confirmed celiacs, so my thought would be that it is only for celiacs. who knows where this drug will lead though. the premise behind zonulin has research supporting its relation to type 1 diabetes---their hope is that it will help other autoimmune disorders by "closing" the leaky gut, essentially. zonulin was...
  20. happygirl
    www.albatherapeutics.com It was founded by Dr. Fassano, one of the leading Celiac researchers, and Dr. Blake Patterson. There are numerous posts on the forum about zonulin, as well as article blurbs on celiac.com. The pill is not zonulin---zonulin is what they believe is "over expressed," which allows gluten to penetrate barrier cells that should have...
  21. happygirl
    Thanks for those articles, Andrea. I appreciate them. Does anyone know if there are peer-reviewed journal articles about the effects of soy? I know there is much more written about gluten in the medical journals but was wondering the state of research in this area (as well as casein).
  22. happygirl
    andrea- you mention that soy causes the same damage as gluten. can you provide a reference for that? i would appreciate your help! thanks, Laura
  23. happygirl
    Welcome to the board! We are happy to have you here! We have all come here for a variety of reasons and were diagnosed (or for many, never diagnosed) in different ways, but we are all here to support and help each other. You mentioned "-I know about balsamic vinegar, and white pepper – but other surprise gluten containing compounds?" Are you i...
  24. happygirl
    Susie- Welcome to the world of gluten free I had heartburn as one of my symptoms before being diagnosed. After going COMPLETELY gluten free (no glutenings....multiple glutenings means you are not gluten free), my heartburn and other symptoms went away. It took months for me to feel even remotely normal. Until you are consistently gluten free AND...
  25. happygirl
    distilled vinegar is gluten free. https://www.celiac.com/st_prod.html?p_prodi...-51106074601.1d hope this helps!
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