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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    cluecke-Baltimore (University of Maryland at Baltimore) has one of the leading Celiac specialists, Dr. Alessio Fassano. He runs a Celiac research center. His link is: www.celiaccenter.org (I don't know who she is seeing, just wanted to add that it might be him or one of his colleagues, since there are very very very few Celiac experts)
  2. happygirl
    delletank-which salad dressing? xoxo
  3. happygirl
    chrissy-very good point!
  4. happygirl
    Also, it is important to remember that not physically reacting (i.e., not getting sick/symptoms) does not mean that your body is NOT having an autoimmune response. There are many "silent" Celiacs out there, which is proof that symptoms do not always correspond with the reaction. Hope this helps, hon! This is going to come across as harsh, and I don't...
  5. happygirl
    Different structure....yes, but just barely. Authors: Kasarda DD. D'Ovidio R. Source Cereal Chemistry. 76(4):548-551, 1999 Jul-Aug. Abstract: The complete amino acid sequence of an alpha-type gliadin from spelt wheat (spelta) has been deduced from the cloned DNA sequence and compared with alpha-type gliadin sequences from bread wheat. The comparison...
  6. happygirl
    I have been gluten-free for two years, and just discovered that I am also casein/soy/eggs intolerant. I called the pharmacy today and asked about my pill, Kariva (which is the generic of Mircette). It is both gluten-free and cf. Hope this helps.
  7. happygirl
    Because spelt is not gluten free, Celiacs are not supposed to eat it. Plain and simple. Whoever is along the lines that "some people try to keep small amounts of gluten in the diet so their reactions aren't as bad" are not gluten free. If the known way to stop the Celiac autoimmune reaction is no gluten, then that is the clear cut medical answer. ...
  8. happygirl
    justme- it is frustrating! but we are here to help. Give us an idea of what types of things you are eating. we might be able to find hidden sources of gluten. Are you eating out at all? The other thing is that since you have "only" (and, I know, it feels like a lifetime already!) been gluten-free for a few weeks, you are probably not healed yet. It...
  9. happygirl
    I used to have similar pains....very similar to what Shirley mentioned. I mentioned it to my OB-GYN and he said I probably have fibrocystic breasts (and affects the surrounding areas in terms of pain) and that reducing caffeine for some women helps. Sure enough, I cut back my caffeine and that has helped dramatically! If you drink any amount of caffeine...
  10. happygirl
    Doll- You have some great questions! Can't necessarily answer them, but thought you would be interested in reading Dr. Green's new book, Celiac Disease: A Hidden Epidemic. He discusses other autoimmune disorders in great detail. In general, it is a superb book, and really gets down into celiac disease. I have the book but it is at home so I can't look...
  11. happygirl
    Tim- Welcome to the board! We are happy to have you here, even though it is under the circumstances of your health. I think that you'll find some of the best resources on the web are on this forum and on celiac.com. I know you don't have any specific questions today but just for future reference---there is nothing here that is strange! Its a weird...
  12. happygirl
    Just for the record, there are numerous women who are small boned and who are a size 0. Just like there are women who are bigger, and those in between. Not all tiny women have health problems, some are just small. key, I just want to say that I am happy for you that you are finally starting to see an improvement. I have always enjoyed your posts and...
  13. happygirl
    Courtney- According to the website: Top with your favorites and bake at 375 for 10-15 minutes or until crust begins to brown. Longer cooking time produces crispier crust. I think I am now intolerant to ingredients in their products, but when I did eat it, I think I cooked it on the longer side of their directions to get it crispier. I would also...
  14. happygirl
    I was a student in the dorms and apartments, and students (in general, esp undergrads) live off in their own little world...I have no idea about houses or fences, sorry It is a small town, but I hope you love it. I have so many wonderful memories there...there is a reason why it is called Happy Valley. To me and my family, it is one of the best places...
  15. happygirl
    You also might just not have healed yet. I used to react to all kinds of gluten free things until i was fully healed. Sucked, it just took awhile to get back to normal. hope you are feeling better!
  16. happygirl
    taz--that was one of my saddest things to give up---and seemingly so unnecessarily. they do make gluten-free "rice krispies"---usually sell them at health food stores.
  17. happygirl
    Although I was a Penn Stater (1999-2003), I was not diagnosed/sick when I lived there. Nicole has some great suggestions. I love the Tavern-I had my graduation dinner there. In general, I find I do better at locally owned places where the people have more of a vested interest. I get sick at the local "gluten-free" places, but eat out reasonably well...
  18. happygirl
    cornhusker--- if you are still damaged from celiac/gluten, then you could potentially 'just' be temporarily lactose intolerant. have you heard the description about where lactase is located and why unhealed celiacs are temporarily lactose intolerant? if not-i'll write back.
  19. happygirl
    toni--your improvement, although not perfect, is indicative that you are doing well by lowering (and hopefully, eliminating gluten). i will be interested to read you response as to why your docs say you don't have it. couple things to remember - if you do have it, or if you are gluten intolerant, even if you are 100% gluten-free, your body is healing...
  20. happygirl
    here's my two cents---and it's just me and my husband, who is super careful separate butters, mayos, peanut butters, sour cream (anything dip-able!)...label "GLUTEN FREE ONLY" and then label the other one as "other" or something to identify it clearly as having potential crumbs. Get lots of cooking utensils--this way, if something gluteny is being...
  21. happygirl
    good for you for your efforts! its a steep learning curve, but you are doing well! one thing that i wanted to add---while your body is healing, you might be eating gluten free and still feeling crappy. that was something that happened with me....i think it was just the amount of damage and my body couldn't process anything right. i would sometimes wonder...
  22. happygirl
    hey nancy-where do you live in nova? as a military brat, I lived there twice....once when I was very young and once for four years in elementary school. We still have a lot of family friends there, so we are hoping that it works out. we would be moving to fairfax, near GMU. I'll have to learn the ropes in terms of where to shop for food and such...I think...
  23. happygirl
    Jon-Happy to have you on board and congratulations on your ten years! That is amazing and I'm sure you will provide much needed encouragement to all. I was dx two years ago at age 23---my first thoughts were, No midnight pizza!!!!!!!!! And yet, we have both managed to survive.
  24. happygirl
    you mentioned you are lactose intolerant---do you take lactaids? xoxo
  25. happygirl
    Congratulations! What an exciting time for you and your hubby! We all wish you the best.
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