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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Excellent. Good luck with the job!
  2. nvsmom
    M&M's and Hershey kisses are gluten-free. I think Turtles are too.... Just settle yourself in front of a candy aisle and read some labels of the ones that interest you. I'm sure you'll find plenty, especially being in Canada where gluten must be listed on the label (read the whole thing anyways), although you may have to skip some packages of assorted...
  3. nvsmom
    I agree that the blood on your stools is most likely a hemorrhoid. They can make a fair bit of blood to the point where toilet water is tinged red. If it lasts more than a few weeks, or as SMRI said, there is a lot of blood, then see your doctor about it. I think you may still be in the up and down stage - it can last for many months. At 2 months gluten...
  4. nvsmom
    Oh yes, withdrawal is horrible. I too felt much worse for the first couple of weeks... doesn't seem fair or right, does it? LOL
  5. nvsmom
    It could be gluten. I didn't react obviously every time I ate gluten. Food sensitivities are hard to figure out because the reaction can occur within minutes or days of eating the product. To see if a food is at fault, you would need to be without that food for weeks before its symptoms have left you. People who try the gluten-free diet often need...
  6. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    I had some baked goods this weekend (with soy, eggs and sugar) but I'm getting back on track today. I'll need another 3 weeks without eggs, soy, milk, eggs, sugar, and (mostly) corn, since I ate those foods this weekend. We were out of the house and eating at other people's homes to be strict. It wasn't worth the hassle... and I wanted a few tortillas,...
  7. nvsmom
    It could be celiac disease. As Cycling lady said, there are over 300 symptoms for celiac disease, including no symptoms at all, so we could not say for sure if her symptoms are from celiac disease. Get her tested, it's the only way to find out. If she is tested, she must be eating gluten in the 2-3 months prior to testing so do not try the gluten-free...
  8. nvsmom
    (((Hugs)))
  9. nvsmom
    Is your thyroid fine? Hypothyroidism affects a large minority of celiacs, and that can slow things right down.
  10. nvsmom
    Welcome to the board, Charlie. I hope you continue to feel better. I know that blood shot eyes can be considered a symptom of celiac disease but I've never heard of the chronically dilated pupils being associated with celiac disease. Eye problems can be made worse by celiac disease so they are always good to get looked into. Hopefully things will improve...
  11. nvsmom
    Keep in mind that if you do decide to test for celiac disease, you will need to complete a gluten challenge consisting of the equivalent of 1-2 slices of bread per day for 2-3 months before you can accurately get tested. That's why it is often a good idea to get tested for celiac disease before going gluten-free - reintroducing gluten into your life (if...
  12. nvsmom
    Ravenwoodglass made a very good point, steroids can (and often do) cause false negative celiac tests. Since immunosuppressants and steriods are used to treat the rare few who have refractory sprue (celiac), I wouldn't be surprised if your meds could cause a false negative test. Being gluten-free for 3 weeks could also cause a false negative in some cases...
  13. nvsmom
    Some people go through a withdrawal period in the first few weeks after going gluten-free. Some symptoms get worse (for me it was headaches, fatigue, moodiness) even as some slowly improve. And recovery is a slow process with many ups and downs that lasts for many months. Most celiacs are still making autoantibodies after being gluten-free a few months...
  14. nvsmom
    I've seen different stats than SMRI. False positives occur very infrequently at a low rate like 1-2% - they almost never happen. On the other hand, false negatives can happen a fair bit. The tTG IgA has a sensitivity of only 75-95%, so that means that on it's best day it misses 1 in 20 celiacs, and on it's worst day it can miss 1 in 4 celiacs. While false...
  15. nvsmom
    At this early point in your recovery, there is no way to know for sure if you are glutened or f it was just a blip in your recovery. The first 6 months gluten-free can have a bunch of ups and downs. When you feel poorly it is always a good idea to recheck all of your food labels and recheck for cc, but if you find no gluten culprits, the you know it's just...
  16. nvsmom
    I'm sorry for your loss. You've had a horrible few months. I hope 2015 is a better year for you. Eating gluten-free takes some time to get used to. Many of the gluten-free substitutes are not in the same class as the wheat flour products, and it will be a few months until you are used to eating this new way. Bread is definitely a tricky one. ...
  17. nvsmom
    Yes, inflammtion goes hand in hand with untreated celiac disease. It can wreak havoc with your other organs like your liver, pancreas, gall bladder, skin, and even your brain. Bloating is also a common symptom and can make you feel very large and full. Have you had blood tests done too? It is often a good idea to have that done before going gluten...
  18. nvsmom
    Ask lots of questions. Celiac an dthe diagnositic criteria ARE very confusing. Asking questions will help others who come along behind you. Most people around here are happy to help. For a minority of celiacs, being gluten-free for a week or so can affect their test results and cause a falsely negative result but for most, it takes months on the...
  19. nvsmom
    Yes, celiac disease can show up at any age so he'll have to continue to keep an eye out for it even as an adult.
  20. nvsmom
    Hi Icelandgirl, it sounds like you will be safe and well taken care of. I agree that you should help with food prep and get into the food first. It makes the most sense. Watch out for cc like bread crumbs in the butter that is drizzled on veggies or mashes potatoes, and make sure that bird wasn't stuffed with gluten before you eat it. Happy Thanksgiving...
  21. nvsmom
    Yeah, they only ran a couple of celiac disease tests on you. The immunoglobulin A (serum IgA) is just a control test to make sure you make enough IgA as to not cause false negatives in your IgA based tests (tTG IgA, EMA IgA, DGP IgA). About 5% of celiacs are low in IgA, compared to 1 in around 700 in the regular population, and that's why they check it when...
  22. nvsmom
    No problem. Just remember that that "TSH near a 1" is not true for everyone. A few may find that a TSH at a 2 feels better... I've never met someone who felt best at a 3 - at least not someone who has a thyroid problem. My TSH is suppressed because I take some T3 along with the usual T4 medication (ex. Synthroid). My TSH was near a 0.011 the last...
  23. nvsmom
    (hugs) Yeah. It is not fair. We just have to go with the hand we are dealt and make the best of it because it isn't going to change. Try to remind yourself that it could be worse - much worse. Celiac isn't great but it is doable. Stock up on some cheap gluten-free treats (chips, cookies, whatever) and when you cook, make extras and freeze it so you...
  24. nvsmom
    I agree that thyroid problems are linked to celiac disease. I think celiac disease often kicks off other diseases when we are living undiagnosed for so many years. I ended up with three autoimmune diseases and I often wonder if I could have avoided two of them if my celiac disease diagnosis was discovered 30 years earlier. Newly diagnosed celiacs should...
  25. nvsmom
    I don't know much about gall bladder problems but there are a few around here who do (its not uncommon in celiac disease). Hopefully they'll add their $0.02. I do know about celiac disease testing, and I think you should be tested further for celiac disease if you are able. You are correct about the 2 biopsy samples not being enough. When biopsying...
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