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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Yes, all you need is 1-2 slices of bread per day, or equivalent. Try for 2 slices if you are doing a shorter challenge (8 weeks) rather than the longer one (12 weeks). Since you've reacted so strongly, you definitely know it is either celiac disease or non-celiac gluten sensitivity (NCGS). If tests are positive, it is celiac disease, and if they are...
  2. nvsmom
    Hi Robbo, Your results didn't show up. Can you type or paste them into your reply? Don't forget to include your reference ranges ad=s they can vary widely between labs. Welcome to the boards.
  3. nvsmom
    I got that off of a fortune cookie a good decade ago. It is yellowed with age but still taped to my fridge. LOL I always interpreted it as meaning I should still try to change the things that don't work for me, but I need to accept that not everything is going to go my way - I need to make the best of what I have to work with. So, is that Day...
  4. nvsmom
    Thanks. If you have a good HIT site, I'd be interested in looking at it. I'll go through the discussion you guys have started in Related Disorders and Research over the next few days.
  5. nvsmom
    Welcome to the board. I was dignosed as a celiac with a positive tTG IgA and EMA IgA as well. The first test is about 95% specific to celiac disease but the second is about 99% specific tp celiac disease. You are correct, you have celiac disease. I think doctors like to do the endoscopy on clear cut cases because that's what they were trained...
  6. nvsmom
    Try hitting up your local library instead of buying, much much cheaper, and you can read more books. I really enjoyed Dr Green's Celiac Disease: a Hidden Epidemic. That's my favourite so far. Gluten Freedom by Fasano discusses the science behind the disease for the layman Clinical Guide to Gluten Related Disorders by Fasano discusses the science...
  7. nvsmom
    Yep, I agree, you tested positive for celiac disease. keep it simple. About the withdrawal, I believe I have read in a couple of spots (not sure where - Wheat Belly?, Dr Green's book?) that up to 30% of celiacs go through a withdrawal for a few days to a few weeks when they go gluten-free. I don't believe that it is actually a withdrawal to the gluten...
  8. nvsmom
    So true. I'm sorry. I didn't think how this thread could scare some of the newer people. Healing from celiac disease can be a real hassle, but for most it goes a bit more smoothly than what I've complained about here. From what I see, most people seem to feel quite well after 6 months gluten-free. I hope you heal quickly. ...
  9. nvsmom
    You've been through the wringer! I really shouldn't complain to you all at all - I know that things could be so much worse for me. My pre-diabetes seems to have backed off somewhat after I went off the steroids, but my diet is not as low carb as it should be when flirting with diabetes. To be honest, I didn't take ownership of it like I have with my...
  10. nvsmom
    Hmm, I never thought of that. I'll have to check my toothpaste brand later (don't want to wake up my hubby now) and see what's in it. I use a fairly basic toothpaste (I think it's Tom's) but I'll check that. Someone told me about Biosil (supplements) about my 3rd month gluten-free because I had a major flare-up of some sort and was getting embarrassingly...
  11. nvsmom
    Aw thanks. It really does help knowing that others have gone through almost the same thing... It's good to know that I am NOT special. LOL My hip pain turns into something like a bone pain sometimes. It radiates done my femur and into my knee, but usually it is in my groin to the side, and occasionally in the butt (but not sciatic pain - I have much...
  12. nvsmom
    Wow. I am so grateful for all of your support. You bunch have me in tears with your well wishes, wisdom and advice. Just an amazing bunch of people. I consider myself extremely lucky knowing that you all care and take the time to give your support to me. I am truly very lucky. Thank you. And wow... I was out for the day but I better get typing...
  13. nvsmom
    This is mostly aimed at my veteran celiac friends around the forum. You lovely people know who you are. When do I give up hoping that symptoms will improve on the gluten-free diet? I've been gluten-free for over two years. I would think that should be long enough for things to get as good as they are going to get, although I am still hoping there...
  14. nvsmom
    So true! So true. I eat very little soy as it is. It shows up in my processed treats once in a while, that's about it for me.
  15. nvsmom
    I make coconut flax pancakes. They are heavy but good. 1/4c melted coconut oil 2 scoops protein powder (Vega) 1 tsp vanilla dash salt Tbsp cinnamon 1 1/2 - 2c coconut milk and /or water 1/2 tsp baking powder 1tsp bee pollen (optional) 1/4 c hemp seeds 1/2-3/4c ground flax 8 eggs 1/2 c coconut flour I add ingredients in the order listed...
  16. nvsmom
    (hugs) It can take a long time for your system to stop the inflammation and making auto-antibodies. I know at one year gluten-free, and I know I am gluten-free, I was still not testing normal on all celiac tests, so I know my body still had issues due to that. Hang in there.
  17. nvsmom
    Yep. Ditto the others. Recheck the things you ate just in case it was gluten but but give it more time. I'm 2 years gluten-free and my BMs are ...often normal now. LOL
  18. nvsmom
    LOL My mom is another that always thinks I can't have soy but I have to give her points for trying. I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs. I'm trying to cut down on my soy intake anyways.
  19. nvsmom
    Not everyone can make it through the gluten challenge. Worn your doctor that it could be an impossibility for you, and perhaps he can get you in soon for a biopsy (requires only 2-4 weeks of 1-2 slices of bread per day or equivalent). He might advise against all testing if it is that bad. You can TRY to test on what you are eating now much chances are...
  20. nvsmom
    Welcome to the board. Those could very well be symptoms caused by celiac disease. You might as well get testesd - you have nothing to lose after so much discomfort! To get accurate celiac disease tests you need to be eating gluten (1-2 slices of bread or equivalent) in the 8-12 weeks prior to testing. Do not go gluten-free yet. These are the...
  21. nvsmom
    Your doctor seems a bit misinformed and is somewhat of an alarmist. About 5% of all celiacs are deficient in Immunoglobulin A (IgA) which is higher than the regular population. If you do not make normal IgA, your body will not be able to make enough (celiac) auto-antibodies (tTG IgA, AGA IgA, DGP IgA, EMA IgA) to register in the blood tests. I have...
  22. nvsmom
    You may have been glutened or you may still be recovering. At 3 months gluten-free I felt much worse than I did before I went gluten-free. My body went haywire. At over 2 years gluten-free, I still feel like I am recovering... or at least I hope it will get better than this. LOL Has your thyroid been tested? That cold feeling is often associated...
  23. nvsmom
    Has your thyroid been checked? The thyroid is notorious for causing hair loss. I too had some regrowth when I first went gluten-free but it didn't last - I blame my thyroid. Somewhere around 10-15% of celiacs are hypothyroid, and eating gluten-free does not assure you that it will not develop. Google the symptoms and see if it applies to you. If you...
  24. nvsmom
    It's possible that you have non-celiac gluten sensitivity (NCGS). Some doctors think the AGA tests can be positive for those with AGA some of the time, although not as much as with celiac disease. Those with NCGS will not have major villious atrophy but may show some changes (although I think it sounds like early celiac disease). Only half of those with...
  25. nvsmom
    The tests can be done all at once, it will just be a few vials of blood. Some labs will only run the tTG IgA and total serum IgA, and then do the EMA IgA if the tTG IgA is positive. You may have to push a bit. When you get the kids tested, be aware that they are MUCH more likely to get a false negative. The DGP IgA and DGP IgG tend to be the best...
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