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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    LOL OOOOOH NO! You get Biebs! I remember two years ago he played at our Grey Cup (like Super Bowl) and he was almost boo'ed off the stage.... I almost felt sorry for the kid. Almost.
  2. nvsmom
    Glad you know for sure. It can take days to weeks for stomach issues to improve. The unlucky few take months to years. It really varies between people. Do be aware though that some celiacs go through withdrawal in the first few days to weeks of the gluten-free diet. Some will feel more tired, cranky, sore and headachey. It can get worse before it gets...
  3. nvsmom
    Holy crap! Women's gold medal match... THAT was a hockey game! It's not often you get such well matched teams. Wow. And when the puck hit Canada's goal post after we'd pulled our goalie? I almost had a heart attack! Nice game my southern neighbours.
  4. nvsmom
    Your TSH could be a bit high for you, but as the others said it could be fine. For me, a 3.8 is hypothyroid... You really need more tests to be sure. For someone investigating hypothyroidism, I would recommend these tests: TSH - Many with hypothyroidism say the feel best near a 1. I feel best below a 1. free T4 and free T3 - Should be in the 50-75% range...
  5. nvsmom
    Ditto the advice cyclinglady gave you. I don't think type 2 is related to celiac except maybe in that the inflammation a celiac experiences may mess with your body and how it reacts to insulin. ... Or too many processed gluten-free "foods" that are just glucose in a pretty package. Seriously though, gluten-free substitute foods have a horrible GI rating...
  6. nvsmom
  7. nvsmom
    (hugs) If you don't get the scope (or more testing), just start the diet. Your son has more positive tests than my kids (who had none) but they are doing really well on the diet. No one needs a doctor's permission to change their diet for the better.
  8. nvsmom
    The EMA IgA is usually only positive in more advanced cases of celiac disease. To have a positive EMA, tTG and DGp test is a sure thing.... I bet they find damage on the biopsy - damage s usually not visible during the procedure.
  9. nvsmom
    I used to see coloured shapes when my hypotension became a bit too much and I was getting tunnel vision before passing out, but I don't think it was celiac disease related. Uveitis creates floaters in your field of vision and can be related to celiac disease. Her symptoms could definitely be from celiac disease. I am glad she is being checked. The best...
  10. nvsmom
    If IgG based tests were crap, then they wouldn't exist. The DGP IgG test is one of the best out there for sensitivity and specificity, unlike the AGA IgA test which is not all that reliable.... Not all tests are created equal, nor are all doctors. I think your doctor is misinformed. I believe that a casein intolerance can cause some damage to the villi...
  11. nvsmom
    I agree that the main reason would be for school accommodations. Check with the schools in your area and find out how they would handle food sensitivities with or without a doctor's diagnosis.
  12. nvsmom
    I'm another who's ttG test took a long time to come down. It was just about normal after over a year gluten-free, and while on mild steroids. Some of us take longer. Also, an elevated tTG can be caused by thyroiditis, diabetes, crohn's. colitis, chronic liver disease, and serious infections. I have thyroiditis and my blood glucose isn't what it should...
  13. nvsmom
    I think that was the site I that I found... I found the oozing a bit odd too. Lol But half of the articles I read I take with a grain of salt as so many of them seem half correct. I know iodine can be helpful with low thyroid function, and low thyroid function is common among celiacs, so I find it a bit interesting to discuss ideas that "could" help. I...
  14. nvsmom
    Thanks. . That's what I'm hoping for too!
  15. nvsmom
    I too would have him tested before trying the diet because if you want to test later, you'll have to reintroduce gluten for a few weeks for accurate testing- two months if he has been gluten-free for a long while. When requesting testing, ask for: TTG IgA and tTG IgG (most popular tests) DGP IgA and DGP IgG (these are the best tests for kids, by far...
  16. nvsmom
    Some celiacs get dermatitis herpetiformis, which is a very itchy rash caused by gluten consumption. The area beside the rash can be biopsied for celiac disease, but I a, afraid I can't tell you much more about it. If you are concerned you have celiac disease, you should ask you doctor to be tested for it. Ask for the complete panel, and do not go gluten...
  17. nvsmom
    I agree. You have had one positive (for sure) celiac test, and one test (biopsy) which could be celac, so I would go with celiac disease as a diagnosis and try the diet for a good six months.... Try for six months as many symptoms take months to improve, so if you quit too soon you might mss the benefits and think the diet did not help. A food and symptom...
  18. nvsmom
    I was wondering if anyone had any tips on good forums / discussion boards, or sites on diabetes or prediabetes. My blood work is doing some funky things (slightly high fasting glucose, OGTT test, and A1c plus reactive hypoglycemia) but my insulin levels don't seem high (or I'm missing it). Anyway, I'm looking for a reliable place to "talk" where I can get...
  19. nvsmom
    Oops! You are right, Lisa. I completely misread that... That will discount most of what I said too (about effect of high IgA on the test). Sorry about that.
  20. nvsmom
    My doctor has me taking a few drops of iodine per day but it is a low amount below the RDA. It sounds like you would have to go fairly high to have the possible side effects of subclinical hypothyroidism or a thyroid storm. This Mercola site mentions a skin patch type of test too. Open Original Shared Link
  21. nvsmom
    Congratulations!
  22. nvsmom
    False negatives aren't unusual in toddlers... unforunately. The deaminated gliadin peptide antibodies (DGP IgA and DGP IgG) are the best tests for kids followed by the tTG IgA and tTG IgG. Were those the tests she had done? If not, perhaps request them before trying the gluten-free diet as the tests lose accuracy pretty quickly in most kids. I do think...
  23. nvsmom
    We have a beer machine?? That . Is. So. Cool! LOL I loved when the American won silver in woman's skeleton today. She crawled over railings into the crowd to get to her family to hug them I had goose bumps.
  24. nvsmom
    Six weeks is a pretty short gluten challenge, 8-12 weeks is more the norm, so I agree that it could have affected your results. That is is pretty high negative result - only 0.14 higher would have classified you as a celiac. I'm not sure if your high serum IgA could have caused that to be a bit high or not; conversely, low IgA is more common in celiacs...
  25. nvsmom
    I agree with Cara, in spite of negative tests you could still have celiac disease, or it could be NCGI, but treatment is still the same. The only difference is that one attacks the villi, and occassionally the skin, and the other does not, but deficiencies, fatigue, pain, etc happen in both. I agree about kids too. If you have some, and are planning...
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