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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Low IgA is found more common in celiacs than the rest of the population - I believe it's about 5% are deficient. I have no idea if this applies to those with NCGS as well. I agree with many of the others that the damaged villi may not (probably does not in my opinion) cause nutritional deficiencies in celiac. I think inflammation is probably the bigger...
  2. nvsmom
    Good point.
  3. nvsmom
    Thanks. . We make pizza airily regularly, it's just that "make" thing.... It would be a treat not to have to make the food. KWIM? Just open a box when I get home rather than having to use the oven.
  4. nvsmom
    I know that is the theory but..... What about those like ravenwoodglass who is a firmly diagnosed celiac who does not have those DQ2 and 8 genes, I think she has the double DQ9.... I think that's what it was. I think. I know doctors say that it is impossible to have celiac disease without those genes, but it is quite amazing how often the impossible happens...
  5. nvsmom
    I haven't eaten out, for dinner, for almost 2 years... I feel your pain. For me, it's partially because of my kids who are gluten-free. They are picky eaters and don't want fish, steak or salad for dinner. They want pizza, noodles, grilled cheese, muffins, cakes, or fries... that's not going to work in 99% of all restaurants, so we stay in. But what...
  6. nvsmom
    LOL
  7. nvsmom
    Welcome to the board. Don't forget to get the rest of the family tested as celiac disease tends to run in families. If everyone tests negative, and they continue to eat gluten, they should be retested every couple of years or as soon as symptoms appear. Good luck with the endoscopy. Make sure they take at least 6 biopsy samples.
  8. nvsmom
    I don't know.... When I see a positive tTG IgA with symptoms of gluten sensitivity, I assume that it is celiac disease. The specificity of the tTG IgA is 91-95% according toOpen Original Shared Link, with an average specificity of about 95%. That means that 5% of the time the positive tTG IgA is caused by crohn's, colitis, chronic liver disease, diabetes...
  9. nvsmom
    You could try the AGA tests but the only result you can be sure is accurate is a positive; the negatives could be a false negative.... You never know. Is it possible to get the endoscopy done at the same time as the colonoscopy? A few have had it done that way but I am not aware if they do it that way out here. I never saw a GI ( the wait time was crazy...
  10. nvsmom
    Some doctors think that the AGA IgA and AGA IgG can show gluten senstivity (NCGI/NCGS) in individuals without celiac disease but that is not a widely accepted belief. It's discussed briefly inOpen Original Shared Linkon page 11. On page 12 it shows that the sensitivity is not as good as the other tests so here is a chance that a gluten sensitivity (mainly...
  11. nvsmom
    Those are very positive tests. No doubt about the diagnosis there. . I would personally say that the biopsy is not needed here but your doctor may feel differently. Be aware that the biopsy does not always match up to the blood tests so if it ends up negative for some reason, please go with the multiple positive blood get results. Don't remove gluten...
  12. nvsmom
    I was in the cancer unit for a blood disorder too.... Totally freaked out some friends who came to visit me. Lol I don't know a lot about elevated IgA except that it can be benign, or a sign of problems. Open Original Shared Link. Hopefully it is an innocent thing for you. It can be a sign of SLE, RA, liver issues or cancer. Just don't lose sight of...
  13. nvsmom
    Every month I get back pain (often sciatic), migraines, fatigue, and some D. It's a bit better than it used to be, but not by a huge amount. I get the same symptoms, minus D but with cramping around ovulation... on the bright side it made timing trying to conceive pretty easy. LOL I did not notice any monthly effect on my arthralgias.
  14. nvsmom
    Celiac is found in about 1% of the population but non-celiac gluten sensitivity (NCGS) is in 5-20% of the population (with 6-10% the most common stat). Really, 1 out of every 10 has an issue with gluten, so I think MORE people should be discovering that gluten is a problem - I think it's under diagnosed. I would guess that 75% of us were told that it...
  15. nvsmom
    The tTG IgA misses 5-25% of all celiacs when it is a lab run test. If positive, it is a 95% certainty that it was caused by celiac disease (the specificity) - the problem is that the sensitivity is 75-95%. You could still easily have celiac disease. Easily. My Biocard test had such a faint line that I checked it and dismissed it. Then I came back and...
  16. nvsmom
    Dr Berenstein's books on Diabetes are pretty helpful for turning around high blood sugar. Do you know what celiac tests the doctor ran? Many doctors only run the tTG IgA, which isn't enough as it misses somewhere between 5-25% of all celiacs. Cooties listed the tests you should ideally get done. There is also the possibility on non-celiac gluten intolerance...
  17. nvsmom
    You're right. Those symptoms could all be from celiac disease. I saw a rheumy about my symptoms in my first year gluten-free because I had a hard time accepting that celiac disease could still be affecting me even after being gluten-free for months... but it was celiac disease. After almost 2 years, my arthralgias are much better. I never did see a gastro...
  18. nvsmom
    Unfortunately you'll keep coming up against that attitude. The people who know you will probably become quieter about it over time if you stick to your guns but some will be rolling their eyes over it behind you back. It's just ignorance. They don't understand. They may if you explain it, but many never will truly "get it".
  19. nvsmom
    Hi Ember. I used the Biocard initially too. I just don't like going to the doctor, and I had seen one 30 years ago for my stomach problems - he said I was just one of those people who got a stomach ache after eating. LOL Anyway, I felt comfortable starting with the Biocard. I had a very faint positive line, which as Gottaski said, would be a weak positive...
  20. nvsmom
    Toasters, and damaged plastic or wooden utensils or cooking tools (like a collander) are the only items that you really need to be careful of. I would be more worried about contaminated butter, mustards, jams, peanut butters, sugar and other baking ingredients. Those things can become contaminated too easily to share with others. You may need a small space...
  21. nvsmom
    Welcome to the board. Some symptoms can improve within days but others will take weeks, months or even years to improve. The fact that your D imroved already is on the fast side of things - so far so good. Pale stools are (I believe) from issues with fat digestion and that can take months to improve. I'm guessing that will need a LOT more time. ...
  22. nvsmom
    This report has some good info about testing. Open Original Shared Link
  23. nvsmom
    That DGP IgA tests is 93-96% specific to celiac disease as seen on page 12 of this report: Open Original Shared Link That's pretty specific, especially combined with those classic celiac disease symptoms you listed. It's not uncommon for celiacs to test positive in only a few tests, or even just one so don't worry about those others being negative. The DGP...
  24. nvsmom
    We're west of you ... and north - Alberta. It did not snow today. Not once!!! Yeah!
  25. nvsmom
    I had a couple of symptoms improve quickly, but most took months and months to improve. I'm guessing you need more time as well. Best wishes.
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