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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Lol I've done the bag lady thing too last year my husband's work had a fancy Christmas party at the Banff Spring's Hotel - the place is a freaking castle - and there I was in my evening gown and heels with my green cooler. LOL So stylin'!
  2. nvsmom

    ARCHIVED Annoyed

    nvsmom replied to BlessedMommy's topic in Coping with Celiac Disease

    Hugs. Just lie.... Or play with words like "I was tested and it looks like I have celiac disease." All that is entirely true. Even if you do have the piece of paper with a diagnosis, it won't change the fact that most people don't understand the disease and will "pooh pooh" your dietary needs. No matter what, people will still stick their nose in where...
  3. nvsmom
    The first few months gluten-free are difficult. First off, many epode experience withdrawal with extra fatigue, headaches, pain and moodiness - that on top of recovering from surgery would be really tough. Then you need to get used to a new way of cooking and eating. It's hard, and it will take a few months to get used to but by time it's summer, it will...
  4. nvsmom
    If possible, get the kids tested before they go gluten-free. Having a firm diagnosis can sometimes make accommodations at school a bit easier to get.... In theory and on aperture anyways. Lol Good luck with the diet. I hope you feel well soon.
  5. nvsmom
    My kids tested negative too although gluten is a problem for most of them. I am guessing they have celiac disease but the test did not show it, so they are now gluten-free anyways... Just in case.
  6. nvsmom
    Most doctors want the patient (adult) eating about two slices of bread per day for 2-3 months for accurate blood tests. The endoscopy only requires 2-4 weeks of gluten. If possible, go as long as you can. If it is too short, it could give a false negative. And make sue you have the DGP and tTG tests done, many docs only do the tTG tests. Keep in mind that...
  7. nvsmom
    LOL have a fun trip! I spent one year as a beaver leader and another year as a junior forest wardens leader, that was ENOUGH for me. LOL
  8. nvsmom
    Hugs. I hope the doctors help you gain better control of that. Best wishes.
  9. nvsmom
    I had a response typed out and then the iPad died... Darn. Lol Anyway, it looks like you had the tTG IgA and DGP IgA run. Both good tests. Did you have the serum IgA test run? If you are low in IgA, those tests will be invalid. I am not confident that your 3 week gluten challenge was enough. Most doctors not want you to complete a 2-3 month gluten challenge...
  10. nvsmom
    Some people like to have the biopsy done just in case they don't heal in a timely fashion (still have symptoms) and the doctors want to go in again and check for other problems - it gives them something to compare to. Others like to have the biopsy to check for other problems, and some just like to have that extra confirmation to help with their willpower...
  11. nvsmom
    Hang in there.
  12. nvsmom
    YES!! I did it! After half of a wasted day, I did it! It was a bit disappointing that there were no flashing lights or applause though. LOL
  13. nvsmom
    Hmph! First day of Spring - it snowed. Second day - it snowed. Third day - it snowed. Fourth day - more snow. Sigh. It's warmed up to -8C now. Hubby and the boys couldn't take it anymore so they went to the indoor pool at the rec centre. LOL I wouldn't mind the moisture so much if the ground was thawed out and it could actually soak in... and be...
  14. nvsmom
    Curse you, Lisa! I just wasted two hours of my weekend on that game.... Evil! I can only get up to a 512 tile. I had a 256 and a few other high tiles at the same time once, but then it all fell apart. Gah! Eeeeeevilllll!
  15. nvsmom
    Could you have a fracture? Maybe the itchiness is healing? This is just wild guess work on my part... Feel better.
  16. nvsmom
    Which IgA and IgG tests were done? If it's just a serum IgA and IgG, those are not celiac tests. They are tests to check on immune function. Was it the tissue transglutiminase tests? That's what docs usually start with. These are the most common celiac tests: tTG IgA and tTG IgG - most common tests DGP IgA and DGP IgG - newer tests which appear to be...
  17. nvsmom
    To be honest, not really... But I'm not really sure what sort of symptom improvements I was supposed to experience with that. Then again, I don't think I am the best at connecting the dots when it comes to stomach issues so it could have helped. I never did have any tests done that showed I should have been on them in the first place. I just went along...
  18. nvsmom
    Yep. Knowledge is power, and you are on your way.
  19. nvsmom
    For the toaster issue, you could buy some toaster bags as Open Original Shared Link, or just use tinfoild to protect your food. There's always the option of buying your own toaster but I know space and funds can be tight when you are a student. You do need to buy your own condiments if there is a chance they are being contaminated; butter, peanut butter...
  20. nvsmom
    YES! I was convinced I had Lupus because of the pain, and because I had a severe arthritic, fatigue, hair loss flare-up after being gluten-free about 3 months. It lasted 3 months. Yuck. Happily it has been my last major flare-up. I have had minor flare-ups since going gluten-free, but nothing like I used too. I do have other autoimmune problems so symptoms...
  21. nvsmom
    I've had costochondritis a few times. For me, it was a pain to the left of my sternum, near my collar bone, over my heart. It would hurt after sprints or for weeks on occasion, usually after an illness. It hurt more with deep breaths. The pain did not go to my side, and I wouldn't describe mine as itchy. Good luck finding answers.... It can be a frustrating...
  22. nvsmom
    LOL I took Creon for about 6 months too.
  23. nvsmom
    All I can say is, it happens. There are a bunch of people on this board alone who are positive in one test and not in another when it comes to celiac disease. It hits everyone different with different test results and different symptoms. Some have nerves affected, some have skin affected, some have growth affected, some have intestines badly damaged and...
  24. nvsmom
    I think if you are eating small amounts of gluten, you might as well get tested (serum and biopsy). It sounds like you are not completely gluten-free at this time. If you have gluten in your diet, it will set off the overreaction my your immune system that causes pain, bloating, headaches, and the need for multiple bathroom visits (love the name BTW). If...
  25. nvsmom
    Welcome to the board, LolaBean. A weakly positive tTG IgA can be attributed to other causes in a minority of cases. According to the Open Original Shared Link (page 12), the specifity og the ttG IgA is 91-99%, so that means that 1-9% of all positive tests are caused by something other than celiac disease. Open Original Shared Link the specificity at...
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