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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    A food journal is a good idea. Somthing innocent like apples or tomatoes could be causing you problems. Lactose is a common problem among celiacs. I hope you figure it out. As for helping with healing, L-Glutamine can help with that too. Best wishes.
  2. nvsmom
    I'm so glad you had a good appointment. Your doctor sounds like a real keeper.
  3. nvsmom
    My lab's range was 0-20 and I believe my result was >200; I don't know the actual number. I never did the biopsy so I can't personally comment on your question about visible damage during an endoscopy, but I think that usually all that is seen is inflammation - a biopsy is usually needed to see the damage. Fatigue and appetite changes are often due...
  4. nvsmom
    I hope he continues to feel better. Good catch on that, Mom!
  5. nvsmom
    Rent a cabin or a condo somewhere. Some of our best vacations have been in cabins in the Rockies or in a cabin on Vancouver island. With a cabin you will have your own kitchen, living room/play area, and naps are not a problem. I honestly wouldn't want to stay in a hotel unless it's just for one night. As for locations, I've only ever visited western...
  6. nvsmom
    LOL I just had one of those for the first time the other night. I woke up thinking how lame of a dream that was. LOL
  7. nvsmom
    Ugh. That sounds awful. It sucks when you get cold and stay that way. I hope you thaw out soon. (hugs) Thanks. We also have fat heads, eh? LOL Sigh... Florida does sound nice right now. Ground hog day went by and no one around here even noticed. I mean, of COURSE we have 6 more weeks of winter - only 6 weeks would be nice.
  8. nvsmom
    I received this email today: On the sixth day, God turned to Archangel Gabriel and said, "Today I am going to create a land called Canada. It will be a land of outstanding natural beauty. It shall have tall majestic mountains full of mountain goats and eagles, beautiful sparkling lakes bountiful with bass and trout, forests full of elk and moose...
  9. nvsmom
    One positive test is caused by celiac disease about 95% of the time. Three positive tests is a sure thing - she has celiac disease. This report has more info on the blood tests on pages 10-12, and info on the endoscopy from pages 7-10: Open Original Shared Link The endoscopy is helpful for a few reasons: 1. It gives the doctors a chance to look for...
  10. nvsmom
    The tTG IgA catches 75-95% of all celiacs, so it could be possible that you are one of the minority. Could you have the tTG IgG run? Some celiacs are positive only in the IgG versions of celiac disease tests. The deaminated gliadin peptide antibody tests (DGP IgG and DGP IgA) often catch cases that the tTG IgA can miss. If you get these tests done, makes...
  11. nvsmom
    Occasionally an infection can cause elevated tTG IgA, as can colitis. 95% of the time a positive tTG IgA means celiac disease though. The EMA IgA tends to show advanced damage to the intestines. Basically, the gut is attacked and damaged and then eventually EMA IgA is produced to wipe out the upper Ayer off the damaged villi. It's like cutting off a toe...
  12. nvsmom
    I guess the polar vortex has broken up but now we got the cold weather again! It has been COLD for a few days with high temps around -20C and a bit of a windchill that took it down into the minus 30's. Brrr. My car doesn't like it. Even though I had the car's block heater plugged in, and I let it run 5 minutes before I drove, it was still cold enough that...
  13. nvsmom
    Welcome to the board. A gluten challenge before testing usually requires a good 2 month of eating gluten regularly (about 2 slices of bread per day). I can see how you'd like to skip that! An endoscopic biopsy requires a shorter gluten challenge of about 2 or so weeks, but the wait to see a GI specialist in my home town, Calgary, is about a year so...
  14. nvsmom
    An endocrinologist is a good place to start. I had to go to an alternative practitioner (orthomolecular MD) because endocrinologist do not see people for "plain old" hypothyroidism up here... well they do but it takes a year to get in. I pm'ed you.
  15. nvsmom
    Be careful with that normal range, it can include a lot of people with thyroid problems. TSH should be near a one regardless of the range. FreeT3 and Free T4 should be in the 50-75% portion of the lab's normal range. TPO Ab should be low too. Just makes sure you look at the whole picture before dismissing thyroid problems. They can be hard to see. Take...
  16. nvsmom
    The only test that is thought, by some, to possibly indicate celiac disease and non-ce,iac gluten intolerance (NCGI) is the AGA tests. The others all show that your body is attempting to do damage to your intestinal villi, which is usually the defining diagnostic criteria for celiac disease. NCGI does not cause intestinal damage but it can cause all the nasty...
  17. nvsmom
    I use Vega protein powder in my kids smoothies; usually chocolate because the vanilla flavour turns everything green. LOL I also add avocado, hemp seeds/hearts, coconut yogurt, coconut milk or cream, vegggies like carrots, cucs and spinach, and fruit like bananas, berries, kiwis, or mangoes. I blend it all in a great blender and send it out with them when...
  18. nvsmom
    Awesome! You're a quick healer. LOL Most celiacs lose their lactose intolerance after 6 months gluten-free; that's great you beat the average.
  19. nvsmom
    I have thyroid problems (probably Hashi's) so I think that's why my numbers like to stay a bit higher than most celiacs do. Hashi's, diabetes, and other autoimmune diseases are linked to celiac disease, so it's a good idea to keep an educated eye open for them just in case they crop up... Hopefully they never do!
  20. nvsmom
    Like desperateladysaved said, I think we just notice reactions a bit more because we are in a healthier place. Think of health as a ladder. When we are in good health we are higher on the ladder. When in poor health we are lower on the ladder. When we get glutened it knocks us down to lower health. If we were already low on the ladder, the fall isn't...
  21. nvsmom
    For me, those labs are hard to read. Your IgA was a 42 and the range was 81-463? If that's right then ditto the previous posters: your low IgA will make all other IgA based celiac tests invalid. You'll need to run the IgG based tests. You should probably have more testing down as the tests they ran on you are pretty outdated. Almost no one uses the reticulin...
  22. nvsmom
    30% of the population will have one or two of those genes (DQ2 and DQ8) but only about 1% of the population has celiac disease. Having the genes just meas that you have a greater chance of developing celiac disease compared to the rest of the population. You can have celiac disease without those genes. I know of at least one board member who has celiac disease...
  23. nvsmom
    LOL Those with a gluten sensitivity can be divided into two groups: Celiac disease - have tonnes of nasty symptoms and villi damage, some have dh (BTW, celiacs are people who have celiac or celiac disease) Non-celiac gluten intolerance/ sensitivity (NCGI or NCGS - terms are interchangeable) - haves tonnes of nasty symptoms. No villi damage or dh.
  24. nvsmom
    For both disorders, being glutened sets your health back a few weeks to a month - generally. Obvious symptoms may only last a few days (stomach ache or headache) but others can last a while (arthritis, hair loss). There is also the possibility of increased inflammation which can contribute to other health problems. Once you have been eating gluten-free...
  25. nvsmom
    Looks good to me too. My tTG IgA was still a 34 when I was one year gluten-free. You're doing great. If numbers are still high after 6 months or a year, there is a small chance that other health issues could raise it. Hashimotos, diabetes, crohn's, colitis, liver disease, and infections can all raise a tTG IgA test to a weak positive.
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