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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I think I've given you the link to the World Gastroenterology Celiac Report before, but if I haven't her it is again. It's a good report to print and give to the doctor, and to get info from. Open Original Shared Link On page 12 it shows that the AGA IIgG is 85-95% specific to celiac disease, so 5-15% of positives are caused by something other than celiac...
  2. nvsmom
    We're back to winter again here too. Light snow and somewhere around -16C with a windchill. Brrr. The roads are a hazard now with the snow, melting and re-freezing, my road has 8 inches of ice on it with ruts.I t's so slick that if you get stuck in a rut, it's tough to get back out - even with my studded tires. Kinda fun though. Oh well, better now than...
  3. nvsmom
    That reading for cortisol is super high, especially for being taken at noon - cortisol usually peaks in the morning. As far as I know, high cortisol can be caused by stress (mental or physical) as well as glandular problems like Cushings (pituitary adenoma) or an adrenal adenoma. Cortisol is also a check for Addison's (when body attacks the adrenal gland...
  4. nvsmom
    Withdrawal could be the culprit too. It usually hits sometime in the first week gluten-free and lasts for a a few days or a couple of weeks. I found it quite exhausting when I experienced it. Either way, virus, or withdrawal, I hope you feel better soon. This is the newbie link: https://www.celiac.com/forums/topic/91878-newbie-info-101/
  5. nvsmom
    https://www.celiac.com/forums/topic/91878-newbie-info-101/ Best wishes.
  6. nvsmom
    As Karen said, celiac disease is not an allergy (immunoglobulin E based) but an autoimmune disease (Immunoglobulin A and G) triggered by an intolerance to gluten. You definitely sound like you have an intolerance to gluten, whether it is celiac disease (where the intestines are damaged) or non-celiac gluten intolerance (NCGI) can't be told until you do testing...
  7. nvsmom
    If you think you might want to be tested in the future, you will need to do the gluten challenge for about 2 months for test accuracy. If instead you get tested immediately, you won't have to add gluten back into your life for two months... Much less painful. Eat gluten for a few more days and then test if you think a test result will be helpful in the future...
  8. nvsmom
    Welcome to the board. Yes, it could be due to a gluten intolerance. Because your symptoms changed when you stopped eating gluten, that also points towards gluten being a problem. People who have problem with gluten are either celiacs or they have (NCGI) non-celiac gluten intolerance, which is much more common and does not damage the intestinal villi...
  9. nvsmom
    I don't think it was that your comments were overlooked, they just weren't agreed with. I think that is a spot that we get the most arguments on this board - new health/scientific ideas that are not widely accepted. Ideas that are not proven true but not proven false either, and that's where I think adrenal fatigue falls. We can't prove it or disprove...
  10. nvsmom
    I agree with Lisa, try the gluten-free diet for 3-6 months and see what happens. My kids tested negative too but they had health issues so we tried the diet anyways. Their health has obviously improved and behaviour changed as well. NCGS can really impact a child's health, just like celiac disease can... that inflammation can really mess up one's health...
  11. nvsmom
    I think, and I'm not sure about this number, that it's somewhere around a 10% chance of getting celiac if a first degree relative has it but it doesn't seem to work out that way. It usually seems like a few people have it in one family, or just the one isolated person - that's just my observation and opinion though. I think having the house gluten-free...
  12. nvsmom
    Welcome! That's impressive that you figured out your gluten intolerance and have started to take action already. I hope your days of cheating are behind you though, because regardless of whether it's celiac disease or NCGI, you're hurting yourself when you eat that stuff... but you know that already, right? I wish you good health and success with...
  13. nvsmom
    L-glutamine can help with muscle and mucosal healing so it is thought that it can help speed up up villi recovery. With pellet poops and blood, I would guess the blood is from hemorrhoids, especially if it is new and bright red blood. If you have old, blackish blood in your stool, that is something to investigate immediately. Celiac can cause constipation...
  14. nvsmom
    I had a two hour oral glucose tolerance test today for growth hormone suppression, but at the same they also ran my blood glucose. I think the results point to reactive hypoglycemia. What do you all think? 0 minutes = 6.1 (normal blood glucose is 4-6 I think) This was taken after a 13 hour fast. After this was taken I was given a very very sweet drink and...
  15. nvsmom
    This is an interesting report that you might want to read, or even print off and bring to your appointment. Pages 8-12 discuss endoscopy and blood tests: Open Original Shared Link You sound a lot like me when I was first diagnosed: scared and mad. You'll be okay. Celiac disease is one of the easier autoimmune diseases to treat. No medications required...
  16. nvsmom
    Oh... that does sound good! LOL I had a hard time walking away from my Grandma's sweet dough cinnamon bun recipes. I can still imagine the flavour and texture. Mmmm. I made a point of not having any gluten-free cinnamon buns for a good 6 months after going gluten-free. It gave my taste buds some time to (sort of) forget how much I loved them. When I finally...
  17. nvsmom
    I'm glad Ds1 is feeling better. Are you going to convert the other kids to gluten-free (for a few months) to see if that improves their health too? I think I mentioned to you before that my kids all tested negative to celiac disease BUT a couple of them are definitely gluten intolerant so our whole house is now gluten-free. According to doctors, my kids...
  18. nvsmom
    Awesome! I hope it keeps thickening up due to your good health!
  19. nvsmom
    Celiacs are more likely to be deficient in Iga than the regular population. About 5%, or 1/20, celiacs have low Iga, so that in iteslf could lead a doctor to suspect celiac disease, but it's not diagnostic. I found the following ranges at this site: Open Original Shared Link IGAS/87938: IgA Subclasses, Serum IgA 0-<5 months: 7-37 mg/dL 5-...
  20. nvsmom
    Most doctors seem to like to diagnose with a biopsy or a biopsy with blood tests. Some doctors are willing to diagnose with positive blood tests alone, Some doctors are aware that having the positive genes, a family history of celiac disease, and reactions to gluten makes it pretty likely you have celiac disease, but I'm not sure if the give a diagnosis...
  21. nvsmom
    Ditto all that Lisa said. You haveNon-celiac gluten intolerance at the very least. That's basically the same as celiac disease but without the villi damage... but you have the beginning of villi damage so I would guess at celiac disease too. You can be 100% gluten-free. You can do it. Yeah it sucks sometimes but you are really paying for those king cakes...
  22. nvsmom
    When my doctor started me on cortisol back in the late spring, he also had me taking about 165 mg of selenium (Selmet) per day. I guess he was on the ball for that one. Man.. those symptoms are all so vague. I wish symptoms were clearer: Oh you have green spots? Must be adrenal insufficiency. Green spots only on the hands? Must just be adrenal fatigue...
  23. nvsmom
    Not having a know it all attitude. If a doctor is willing to say "I don't know but I'll find out" that is just wonderful. Almost every doctor I've been to has told me there is notrhing wrong or nothing they can do, and I trusted them so I just got worse and worse. I'm tough - I can take a lot of pain and discomfort - and I let things slide too long on a doctor...
  24. nvsmom
    That is pretty okay. Your free T4 looks great. I'm not sure what "TSH w/reflex to FT4" is.
  25. nvsmom
    Soy,eh? Hmmm. I've had this hypotension since my late teen years. I wonder if there was some food that caused it. I'm pretty sure it wasn't gluten because it continued after i went gluten-free; although gluten certainly could have exacerbated it. I doubt it's soy as I ate it very infrequently. Could be something else... I almost wish I'd given it more time...
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