Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    If you go back on gluten, perhaps try biopsying beside the rash for a dh diagnosis. Not everyone with dh will have a positive blood test... If you get a referral to a dermatologist, then you won't be bothering your GP anymore. LOL An endoscopic biopsy might be something to consider, although you'll have to pester the GP for a GI referral for that...
  2. nvsmom
    I make shakes for my boys and they generally like them. I have a Vitamix blender so it makes everything very smooth. My usual smoothie for them involves Vega chocolate protein powder, bee pollen, hemp, coconut cream, coconut yogurt, bananas, apple, carrots, cucumber, spinach, avocado and water or ice. Lots of good fats and the bananas and protein powder sweeten...
  3. nvsmom
    I'm another that likes winter, I just don't like how LONG it lasts. We usually get our first snow in September and it's pretty chilly by October. The cld comes and goes at that point but every other Halloween is trick or treating in the snow. Even if it was just November through February of winter I would be happy but the snow in April is annoying. LOL ...
  4. nvsmom
    Someone around here said IBS stands for " I be stumped". Seems bogus to me too. Non-celiac gluten intolerance (NCGI) can be found in 6 to (over) 10% of the population. It is more common than celiac disease, has all the same symptoms as celiac disease (except the villi damage) and can only be treated with a gluten-free diet... That how you diagnose it...
  5. nvsmom
    I get costochondritis pains every few months. It can last a few hours to a few weeks. For me, it hurts over my heart, and the pain gets worse when I take a big breath or sometimes if I bend forward. This has more info: Open Original Shared Link
  6. nvsmom
    Welcome to the board. Those symptoms can be gluten related. With a tTG test over 100 and a positive EMA, it's a sure thing that you have celiac disease. Unfortunately nerve symptoms (pain or cognitive issues) tend to take the longest to change. Hang in there and give the gluten-free diet a few months or years and I am guessing you'll see improvements...
  7. nvsmom
    Yes and yes. Sometimes the endoscopic biopsy can catch cases of celiac disease that the blood tests miss, if that's something you would consider doing it could clarify the situation more. Some feel better within days, some take weeks or months and others experience withdrawal in the first few weeks and feel worse for a time. It really varies from person...
  8. nvsmom
    No, no. Nothing implied. I know you only mean the best but my responses aren't coming out as well as I mean them. KWIM? LOL Who knows what it is. If it only lasts a week then maybe it is a muscle or gluten thing. If it settles in for a few months like it used to, then I'll know it's just my body misbehaving again. And thanks. Hopefully Hubby will...
  9. nvsmom
    Thanks IH, you are a sweetie. Yep, I think I'm having an AI flare-up but with thyroiditis and ITP, well that's two other active AI disorders so I'm not too worried it was gluten. I haven't eaten out in months, and the only new foods I've been eating is some Hershey kisses - this started before that too. I suppose it is possible it is gluten, but I'm...
  10. nvsmom
    I get feelings like I was glutened once in a while but I chalk it up to an "autoimmune flare-up" of some sort. I'll get tired, hair falls out, stomach acts up and I get pain... It seems to be linked to stress and getting ill. It's acting up on me now, darn it. I do have a tough time with some foods but I don't know if it's worse than the typical person...
  11. nvsmom
    I switched to coconut milk myself - the real stuff in the cans. I was unsure about Rice Dream's gluten-free status so I dropped it just in case.
  12. nvsmom
    That is completely correct. There are a few parts to the immune system that the immunoglobulins measure (IgA, IgE, IgG, IgM), and celiac disease is testable is two parts: IgA and IgG. Many people are positive in the IgG version of the tests even when they don't have an IgA deficiency. Below is the full panel of celiac tests that can be run; as you can...
  13. nvsmom
    Yes. With those two tests it's a sure thing even if they miss the damage in the biopsy. The EMA is positive once the damage being attempted on the villi gets pretty severe - that test is often negative in early cases or in very young children. I also had those tests positive and chose to skip the biopsy because it was pretty much a sure thing/diagnosis...
  14. nvsmom
    Welcome to the board. About 5% of celiacs are deficient in immunoglobulin A (IgA) which is the part of the immune system that deals with the mucosal linings such as in the nose, mouth, and intestinal tract. It's not something that will have a large impact on someone's health, except maybe an immune "under-reaction" when an infection is in those areas...
  15. nvsmom
    I agree. I think of it like a pregnancy test... There's no such thing as a little bit pregnant. There's no such thing as a little bit celiac - just the severity of our symptoms may vary.
  16. nvsmom
    Sounds like it could be celiac to me. Not all celiacs have their growth affected. I have had undiagnosed celiac since infancy (tummy aches, "growing" pains in my joints, headaches, constipation since as far back as I can remember) but I was really tall. Off the growth charts. I stopped growing at age 12 when I was 5'8". My kids, who tested negative...
  17. nvsmom
    Welcome to the board. Sorry you are here, but welcome. You might want to consider making your youngest gluten-free too. Celiac testing is not as reliable in babies and toddlers compared to adults, or even older children. Did she have the DGP IgA and DGP IgG run? Those seem to be the best at detecting early celiac disease. There is also the chance that...
  18. nvsmom
    Awesome!
  19. nvsmom
    Nope. No where to introduce yourself - just jump right in. The symptoms you mentioned are common in those with NCGI (or NCGS) as well as in those with celiac disease. Plus having celiac disease doesn't always mean one has those symptoms. I have had untreated celiac disease since infancy but I have never suffered from celiac related anemia or major nutrient...
  20. nvsmom
    Biopsies often require a shorter gluten challenge; It's more along the lines of 2-4 weeks rather than 2-3 months.... But it would be a loooong 2-4 weeks I'm sure. I don't know of any testing that does not include consuming gluten. Sometimes antibody levels stay high for a while. The tTG IgA is one of the last to come down; that one can take weeks...
  21. nvsmom
    LOL We are "Chinooking"! This weekend it's gonna warm up enough to make snowballs... Doesn't sound like much but we're excited. LOL
  22. nvsmom
    I had joint pain as a kid. The grown-ups called it growing pain but it never left - as an adult they changed the name of it to arthralgias. LOL I believe it could be a symptom in a child. Be aware that joint pain and nerve issues are often some of the slowest to resolve on the gluten-free diet. Best wishes.
  23. nvsmom
    Woot*Woot! Glad they are coming down already. I'm one whose tTG test took forever to come down. My last test was at about 15 month gluten-free and it finally had almost hit normal BUT I had started steroids so I'm sure that did something to the results.... The members on here helped me with my patience. LOL
  24. nvsmom
    It really varies from person to person. Some people don't feel it at all and others are knocked back by a few weeks. I was only glutened in the first few months of the diet so I honestly don't know what it's like to take a hit while feeling good... but it did take over 6 months for me to get to feeling good. At 3-6 months in, my immune system was acting...
  25. nvsmom
    Some antibody levels fall faster than others. The tTG IgA and tTG IgG tend to stay elevated longer than the EMA IgA and DGP tests.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.