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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Welcome to the board, Melissa. Your serum immunoglobulin tests (IgA, IgG, IgM) are not actually celiac tests. They tend to run those to get a better idea of what various parts of your immune system is doing (as I understand it). Celiac mostly involves the IgA which is the mucosal linings in the the body. The IgA can be a bit elevated in celiacs but...
  2. nvsmom
    There's a few of us with multiple issues. Going undiagnosed tends to prompt other AI diseases to rear their ugly heads. I have ITP (thrombocytopenia) and I think Hashimoto's (I've had ignored thyroid issues for a couple of decades and now I'm on a full replacement dose of meds but my antibodies are normal so doctors won't call it Hashis... cranky thyroid...
  3. nvsmom
    The gluten challenge for a biopsy (from what I have seen) is usually 2-4 weeks. If you need to cut back until a few weeks before the test, you can probably do so - check with the doctor first. There are a few around here who were unwilling to be sick for months just to test themselves for celiac disease... You don't have to do it if you are hurting yourself...
  4. nvsmom
    I honestly don't know a lot about elevated IgA. As far I I understand it, it could be an indicator that something is wrong, but it doesn't say what - just that it's in the mucosaal lining.... Frustrating. This discusses it a bit: Open Original Shared Link He might as well go gluten-free if he is done testing. NCGI is in 6-30% of the population...
  5. nvsmom
    The first test, IgA Qn serum, is the total serum Igag which is a control test. It is not a celiac test. As I understand it, the IgA is run because 5% of celiacs are low in Iga (much more than the regular population) and a deficiency in IgA means that the celiac tests that do use IgA will have a negative result even when they should be positive. I'm guessing...
  6. nvsmom
    I agree. The main benefits of testing are being able to stick to the diet better, and sometimes having accommodations made for you at places like school. I would think that you would tell doctors that you have celiac disease and they would take that into account for future treatment, like during a pg. On the other hand, an endoscopic biopsy requires...
  7. nvsmom
    Those are definitely symptoms... I myself was mistaken for being pg a few times, and I wasn't that heavy, just really bloated in the belly. I think you might as well be tested. Do NOT stop eating gluten before you test or it could cause false negative results. About 2 slices of bread per day (or equivalent) for about 2-3 months should give you your best...
  8. nvsmom
    Yeah!
  9. nvsmom
    It took me over a year for my body to really settle down, and there were some ups and downs in there where I felt really good and then really really bad. Keep doing it right and give it more time. Perhaps check your nutrient levels (B12, D, A, K, Fe, Ca, zinc, Cu) and even your thyroid function - that can affect your metabolism a lot; TSH, free T4 and fre...
  10. nvsmom
    Welllll... Everyone is in the cold up there, so what are ya gonna compare against? It warmed up some today after we got more snow. I helped ds shovel the neighbour's driveway since it was a balmy -6C. Poor kid was struggling to shovel the three car garage driveway - the snow piles and drifts are higher than his head now. LOL We had to give the kids...
  11. nvsmom
    Glad you are feeling better.
  12. nvsmom
    For some the reflux improves after going free, for others it is unrelated... Perhaps start a new thread addressing those questions. It may attract the attention of those who have experience with it. I don't know much. Best wishes.
  13. nvsmom
    I don't know either but I wouldn't be surprised. I used to get bad nosebleeds as a child - I remember a six hour one on Christmas once. Bleach! After that I had my nose cauterizd and that helped. My 11 year old used to get nosebleeds a few times a week, especially in the winter, but since going gluten-free it has improved.... Could be a coincidence though...
  14. nvsmom
    My son ended up with some minor frostbite (frost nip) the other day when he was shovelling a neighbour's driveway at the tail end of the last blizzard. It was only -20 then but the wind was gusting up to 80km/h so the windchill was a factor. We only got about half a foot of snow but the drifts were pretty cool... well not cool to dig through. You know the...
  15. nvsmom
    Excellent! . My TPO Ab came down after going gluten-free too, but they were in normal range.... 1900's - wow!
  16. nvsmom
    (Hugs) Welcome to the board.... I think you'll find more than a few people around here who were given a medical run around- it might even be the majority of of. You can include me too. It sounds like gluten is your evil. I'm glad you were able to solve that riddle. How do you do with milk? Many of us have issues with lactose until we heal, you might...
  17. nvsmom
    You do have many celiac symptoms, and gaining weight as opposed to losing, is a symptom too.... I can attest to that. LOL make sure you keep eating gluten until your testing is done because going gluten-free early can cause false negative results. Welcome to the board.
  18. nvsmom
    I would lean towards still recovering. I was still having BM issues after being gluten-free for nine months. My GI symptoms were very improved at three months, and my pain was diminished at six months, but some symptoms lingered. The gas could be from specific veggies. I still get some bloating from raw veggies no matter what I do. Some are worse than...
  19. nvsmom
    Excellent! My babble above was about the extent I could stretch my brain this evening. LOL Good luck with the stats!
  20. nvsmom
    I was an undiagnosed celiac for decades. During that time my symptoms would come and go, change form and last for varying lengths of time. As I got older my symptoms would grow in severity; they lasted longer, became more frequent and caused more pain. Eventually it led to other diseases too. Basically I went from being a varsity athlete, running 20 miles...
  21. nvsmom
    I think, and I could be reading it wrong, that those stats mean different things. The ones I remember from Dangerous Grains (and I may have remembered wrong) refere to the percentage of celiacs who have those genes whereas the sites you provided refer to the percentage of the total population that have those genes. If we combine our stats it could be...
  22. nvsmom
    Don't forget the free T3 too -that's the active hormone in the body. That one you want in the 50-75% range of your lab's normal reference range. I'll join the party too. I get mad at the unfairness sometimes too. I get mad that I have health issues and I get really mad that no doctor caught them - it was me and they "confirmed it" decades after my first...
  23. nvsmom
    I don't know about the dog-allergy myth thing. I think some animals/breeds are worse than others. We had a terrier poodle cross and it did not bother any people we knew who were allergic to other dogs including a young neighbour who was a severe asthmatic and very allergic to dogs... Just my anecdotal input. Anyway, my son who is a very mild asthmatic...
  24. nvsmom
    I used a Biocard test which is the tTG IgA test, and the control line is the total serum IgA test. I had a weak positive result, ate gluten heavily for two more weeks and then had very positive doctor ordered tTG IgA and EMA IgA tests. I think the Biocard test is generally fairly accurate; most people I know of who have used it had accurate results. I...
  25. nvsmom
    AGA IgG is a celiac test. It's just not used that often anymore because it is not a very sensitive, it can miss up to 83% of celiacs. It's specificity is between 85 and 95%, which means 85-95% of positive results are celiac disease.. If you manage to get a positive in that test, it's probably celiac disease. Not all celiac are positive in all celiac tests...
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