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JoeB

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Everything posted by JoeB

  1. JoeB
    I had DH for a couple of years before I was disagnosed with celiac and I've also had hives from food allergies. The main difference I found is that Benedryl brought the hives under control within about 20 minutes of taking the pills. Also, I found that when I got hives, I could feel them start in one part of my body and then travel to other parts of my...
  2. JoeB
    1 - bread 2 - bread 3 - bread The first thing I'm going to do when someone comes up with a pill for celiac disease is to buy a loaf of hard-crusted Italian bread and a tub of butter!
  3. JoeB
    After I was diagnosed, I realized the grill was a problem. First, I heated the grill up and scrapped the grids with a wire brush. After it cooled, I cleaned the grids again using a wire wheel on my electric drill, then I used brillo. Probably overkill, but I haven't gotten sick since then. Just keep anything with gluten, especially marinades and bread...
  4. JoeB

    ARCHIVED Doctor In Utica Ny

    JoeB posted a topic in Doctors

    My brother is having symptoms that suggest celiac disease. Any recommendations for gastroenterologists in the Utica, NY area?
  5. JoeB
    I've been eating NuGo Free bars. They are gluten-free, soy-free and are higher protein than most. Plus they taste pretty good!
  6. JoeB
    I haven't seen much written regarding whether edible films used in food and medicines are gluten-free. I've only done a little research on the subject and found that in addition to medicines, edible films are used for coatings on foods, like the glaze on hams. The films can be made from a number of substances, including wheat. The problem is that these...
  7. JoeB
    Next time you're there, ask them for Gilbert's Goodies cookies. They make 2 kinds of cookies (chocolate chip and cinnamon, I think). They are both very good. I understand Stew's is trying out a few gluen free products to see how they sell, so it wouldn't hurt to send them an email to let them know you're interested.
  8. JoeB
    Barley malt is not listed as an ingredient. The box previously was labeled gluten-free. The new boxes are not. I understand the cross contamination issue, however, I've gotten very sick on several products that contained no gluten, but were produced in a factory that processed wheat products. As a result, I try to stay away from those products whenever...
  9. JoeB
    I just started using Nestle's hot chocolate mix last month after seeing on this site that it is gluten free. Unfortunately, I just bought a new box and it no longer says that it's gluten free. It now says it is made in a factory that processes wheat. Be careful! Check the box before using.
  10. JoeB
    Lydia - I have no medical background, but the symptoms you describe do not sound like celiac symptons. If anything, it sounds like your son is having trouble absorbing oxygen, which may indicate that there is a pulmonary problem. You may want to contact another physician to get another opinion. Good luck.
  11. JoeB
    We've been going to Ocean City for a lot of years. Try the Island Grill. I think it's on 1st and Atlantic, a little north of the boardwalk. It's a small, privately run restaurant. The staff is really helpful and I've never had a problem getting a good gluten free meal there. Another plus - they take reservations. There really is nothing safe on the...
  12. JoeB
    I'm one of those guys who always opts for "more power." I was concerned about the stuff (barbeque sauce, marinade, etc.) that was burned into the surface and wouldn't come off with just plain washing, so I cleaned the cast iron grates first with a wire wheel attachment on my electric drill. Then I cleaned it again with brillo and finally with dish soap...
  13. JoeB

    ARCHIVED Need A New Doctor In Ct

    JoeB replied to KathleenBP's topic in Doctors

    I've used the same gastroenterlogist in the Bridgeport area for the last 15 years. If you contact me directly, I can give you his name and number.
  14. JoeB
    First, if you have a doctor who doesn't listen to you or help solve your problem, change doctors. Second, find a good gastroenterologist who can test you for celiac and DH. Third, you can not be 99% gluten free. You have to remove all gluten from your diet, otherwise you are wasting your time. I had DH when I was first diagnosed with celiac disease...
  15. JoeB
    I've been gluten-free for 3 years and am very careful about what I eat. For the first time in about 1 1/2 years, I got glutened twice in the last 2 weeks and the reaction was horrible. Within about 20 minutes both times, I had uncontrollable "D". I've never had that happen before and I don't want to have it happen again. The last time was yesterday morning...
  16. JoeB
    Interesting. I was fingerprinted for a job about 35 years ago and the prints were processed without a problem. I was fingerprinted again about 2 years ago, about a year after being diagnosed with celiac disease, and my prints were rejected twice by the FBI as being unreadable. I thought it was just "wear and tear" but this is making me wonder whether it...
  17. JoeB
    I've been gluten free for about 3 years (I've also had DH and am being treated for osteoporosis). I found out recently that my prothrombin time is elevated, which means that my blood clots as if I'm on blood thinners, which is most probably the result of celiac disease. My GI put me on low doses of vitamin K shots, but they didn't help, so I have to go...
  18. JoeB
    I've been gluten free for about three years, but I'm sure I've had celiac for about 30 years (I'm 56). I had a peptic ulcer about 20 years ago (negative for h pylori). I'm not sure about cause and effect, but I do know that before going gluten free, my stomach also had some problem (pain, gas, nasea, etc.) I haven't had any of those problems since going...
  19. JoeB

    ARCHIVED Good Ol' Ct?

    JoeB replied to Mal's topic in Introduce Yourself / Share Stuff

    We like to eat at Dock and Dine in Old Saybrook. It's right on the water at the mouth of the harbor - the view is great and the food is pretty good. If you have friends in the area, they'll know where it is. You can also find them on the web. I was just there about 2 months ago. I think I had something broiled, probably scallops. When I explained my...
  20. JoeB
    After about 3 months being gluten-free, the outbreaks lessened, but every once in a while, I'd get an outbreak on my elbows, knees or shoulders. I never used Dapsone because I found I manage the problem by using aloe and an occassional benedryl to keep the itching bearable. It took me about 18 months after being diagnosed for all the DH symptoms to completely...
  21. JoeB

    ARCHIVED Good Ol' Ct?

    JoeB replied to Mal's topic in Introduce Yourself / Share Stuff

    Katie - I'm in Trumbull, too. That makes at least two of us in town with celiac disease!
  22. JoeB
    I can sympathize with you. I've been gluten-free for more than two years and have generally been feeling a lot better than I have in years, except for occassional minor DH symptoms. I just went for a check-up and found that now I have a severe vitamin K malabsorption issue (I was previously diagnosed with osterperosis, but it looks like my calcium absorption...
  23. JoeB
    I got glutened last month by Lay's Ruffles chips. The ingredients listed on the package were fine, so I assumed it was cc, too. I switched to Wise chips and haven't had any problems so far. It is discouraging when you're so conscientious about reading ingreadients, but there's nothing you can really do except switch to another product.
  24. JoeB
    I've only been glutened twice in almost 2 years, but the reaction is fast and furious. Both times, I got a really bad stomach cramp within about 1/2 hour of eating and I know I don't have to explain what happened next. The other symptoms (headache, brain fog, unsettled stomach, etc.) last for about 3 days. I understand the longer you're off gluten, the...
  25. JoeB
    Kara - I've had a couple of colonoscopies. I used the gallon jug the first time and that wasn't a lot of fun. The second time, I used prescription pills. I don't recall what they were called, but I remember I had to take about 3 dozen pills over 2 to 3 hours. The pills are bigger than vitamins, so they may be difficult for you to swallow. I also remember...
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