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Latest Celiac Disease News & Research:
Everything posted by Rachel--24
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ARCHIVED Help!
Rachel--24 replied to danikali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm in agreement about the potatos. Keep a food diary to try to figure out which foods bother you and yes, you can get more food intolerances after going gluten-free. The other food intolerances may have been there all along but you never noticed them because you were still eating gluten. -
ARCHIVED Someone Please Tell Me What Leaky Gut Syndrome Is!
Rachel--24 replied to a topic in Related Issues & Disorders
Thats absolutely not true about leaky gut. From what we know about some doctors not even knowing anything about Celiac I dont know why I'm surprised someone would say that. Some doctors just plain dont want to discuss something if they are not familiar with it. My doctor explained to me why my gut is leaky and how gluten intolerance causes it. I've never... -
ARCHIVED My Husband Doesn't "get It" How Do I Help Him Understand?
Rachel--24 replied to chrissy's topic in Parents, Friends and Loved Ones of Celiacs
Thanks Rusla, Mine is the clay non-flushable kind (Fresh Step). I've never been careful with it. I just pour it, scoop it, whatever. Theres always a big dusty cloud. Have you actually gotten glutened from it? Thats good news about your husband...I'm sure he'll come around. Its just a stressful time and alot to take in at once. -
ARCHIVED Confused About What I'm Reading...
Rachel--24 replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks Nikki, I'm already casein free so its not that....that was one of the first things the doc asked. He'll be putting me on an elimination diet so hopefully we'll figure some things out. I'm definately going to ask him more about the soy, amaranth, quinoa thing though. -
ARCHIVED Glutened At Christmas Party
Rachel--24 replied to Kenster61's topic in Coping with Celiac Disease
Personally, I think it would be sort of difficult to get someone to understand every ingredient I cant have...sooo I would just bring my own food. I think other people mean well and most wouldnt know that soy sauce contains wheat so unless they have time to sit and study the diet (which most dont esp. around xmas) I would think there would be much room... -
ARCHIVED Enterolab Results- Not Mad - Just Sad!
Rachel--24 replied to DonnaD's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Sorry you are feeling sad about your results. I remember feeling the same...but mostly confused. Since your dd had positive biopsy and you also have problems...I'm sure its no coincidence. Have you been gluten-free yet? I'm not too up to speed on the different genes but I'm taking a guess (someone might come along and correct me). I'm guessing you... -
ARCHIVED My Husband Doesn't "get It" How Do I Help Him Understand?
Rachel--24 replied to chrissy's topic in Parents, Friends and Loved Ones of Celiacs
Cat litter has gluten in it? I thought about this awhile back and looked at my cat litter to find out but I didn't see any ingredients on the box. What kind is it that your using with wheat in it? -
ARCHIVED Eating Disorders/weight Loss
Rachel--24 replied to sillyyak's topic in Related Issues & Disorders
I'm having alot of trouble gaining weight on the diet. I'm really restricted with what I can eat so that doesnt help either. I'm 5'2 and have been staying around 103 lbs. but today I'm only 99 lbs. after having a rough week...not sure if I was glutened or what. I ate the same amount of food...have actually been exceptionally hungry this week. I've definately... -
ARCHIVED Front Page Of Wall Street Journal
Rachel--24 replied to 4getgluten's topic in Publications & Publicity
The article is posted on the 1st page of this thread. -
ARCHIVED Confused About What I'm Reading...
Rachel--24 replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I definately wouldnt try eating Oats...even if they are pure. I'm really curious about the amaranth and quinoa though. This past week has probably been the worst for me since going gluten-free. I've had alot of the symptoms I havent had in awhile and I've lost 4 lbs. The only new thing I've eaten is Amy's rice bowl which contains soy...I think it had tofu... -
ARCHIVED Do You Find You Miss Food You Barely Even Ate?
Rachel--24 replied to jkmunchkin's topic in Coping with Celiac Disease
For some reason I really miss cookies alot. I wasnt a big cookie eater when I COULD have them but now I want them badly. I think about fig newtons, oreos, nutter butters, pepperidge farm cookies (the chocolate mint ones) and on and on.... -
ARCHIVED Confused About What I'm Reading...
Rachel--24 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
As I mentioned in a previous post I found a new doctor knowledgeable in the area of gluten sensitivity. I visited the clinic's website and they had a special section dedicated to learning about gluten intolerance. I read something that I'm confused about regarding Amaranth, Quinoa and Teff. This is what it says.... What do you guys think... -
ARCHIVED Someone Please Tell Me What Leaky Gut Syndrome Is!
Rachel--24 replied to a topic in Related Issues & Disorders
Of course...emails are always welcome. A doctor is going to work with me starting in Jan. as far as figuring out other food intolerances, leaky gut, possible bacteria or parasite infections. I'll let you know how things go. The other food intolerances can keep the gut from healing so its important to not eat those things if you can identify them. ... -
ARCHIVED Someone Please Tell Me What Leaky Gut Syndrome Is!
Rachel--24 replied to a topic in Related Issues & Disorders
I'm so sorry Kim, I forgot to get back to you on this. I've been having a rough week. Leaky gut is when the intestinal lining becomes permeable, meaning "leaky". Usually in a healthy intestine nothing crosses that protective barrier...everything stays in our intestines and is digested and everything happens the way it should. If the gut is leaky there... -
ARCHIVED Caution On Gluten Free Alternatives
Rachel--24 replied to thomas3000's topic in Related Issues & Disorders
I agree George, I just saw a doctor who believes in finding the root cause of symptoms rather than treating them with meds. He said his "pet peeve" was doctors who believe "it's all in your head" just because tests are negative or they cant perscribe a drug to "fix" the problem. He said when something shows up in a test that they can "understand" and... -
Bummer. Do you have to stick with that same practice? If you're not happy with any of the doctors there maybe you could find someone who is as good as he is. Maybe you can contact him and see if he knows of someone you might be happy with??
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Exactly! When someone with bad BO walks by I cringe and I'm thinking EEEWW...but then I think to myself "At least its not making me sick like the last person who went by wearing a gallon of toxic chemicals." I'd rather smell someone's BO anyday!
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ARCHIVED How Did You Acquire Celiac?
Rachel--24 replied to tasha's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't really know to tell you the truth. A doctor I saw yesterday told me it was there my whole life....slowly doing damage. Certain circumstances either caused it to progress with noticeable symptoms or the damage just finally took a toll on my body. I was under alot of emotional stress at the time and had Graves Disease also. He said the thyroid... -
I believe he was talking about parasites mainly. He asked me if I had been tested for parasites and I told him I had through Kaiser. He said their test consists of only 1 stool sample and ONLY checks for Ghidardia (sp?) and is totally insufficient. He also said looking at one stool sample will give you 50% chance of finding the parasite...a second sample...
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Yeah...I can relate. I was doing fine at work but the last few weeks they've been keeping me in the checkstand (Safeway) for the last 3 hours of my shift. This is suppossed to change next week but my experience with having to deal with customer after customer with perfumes and colognes has been a nightmare. My tolerance is getting less and less and today...
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Thanks for the responses. I will definately keep everyone updated as to what goes on with my treatment. I wont be seeing him again until after my insurance change takes effect but he will have a plan laid out for me of what we'll be doing. I think his first priority is checking for infections. Unfortunately his clinic is not part of a network so my coverage...
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Well...even though intitial response to removing gluten from my diet was amazing...I'm still struggling. I'm still having sensitivities (both food and chemical), mild brainfog (comes and goes), and havent gained any weight. Some days are better than others. My doctors were the worst and I changed my medical plan but it wont take effect till the 1st. In the...
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I'm 34, female and I still love games and toys too....especially legos. No dolls for me though...I played with trucks and wore superman underoos (not now of course). Funny about the racecar bed....I've always wanted bunkbeds. Bunkbeds seem like they'd be FUN!
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ARCHIVED Peanut Butter Without Any Peanuts/nuts!
Rachel--24 replied to RiceGuy's topic in Gluten-Free Foods, Products, Shopping & Medications
I have no trouble finding nut butters and I recently tried sunflower butter (Trader Joes). I eat Macadamia butter (sooo good), peanut butter, and almond butter. Next one to try is cashew butter. Oh yeah...I also have sesame butter but I dont like it as much as the others. I think I have to aquire a taste for it. -
ARCHIVED Seeking Diagnosis Advice
Rachel--24 replied to MarshaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tiffany is right, you can't 100% rule celiac in or out with genetic testing. You can also have gluten intolerance with all the same problems of celiac but w/out villi damage. It's called non-celiac gluten sensitivity.