Jump to content

Rachel--24

Advanced Members
 View Profile  See their activity

  • Posts

    9,154

  • Joined

  • Last visited

  • Days Won

    2

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Rachel--24

  1. Rachel--24
    IgE allergies are "true" allergies. They are usually immediate. A peanut allergy is an example. Symptoms of IgE allergies may be hives, swelling, breathing problems...it would not be delayed. IgE allergies dont usually go away. They can also result in anapylatx reactions. I know I totally spelled that wrong. IgG are considered sensitivities....they...
  2. Rachel--24
    I realized I forgot to mention someone on my previous list. That person is Tarnalberry....she's always helping people and she also gives out recipes. I'm sure there are others I'm forgetting but basically everyone who takes time out of their day to answer questions gets a Thank You!
  3. Rachel--24
    Yeah it is a cute pic! I have a Sun Conure. She's alot smaller than your African Grey.
  4. Rachel--24
    I work in a grocery store and my doctor wrote me a note saying that I couldnt be around flour due to immune response to gluten or something like that. Anyways my work was more than accommadating and they knew I was sick...I had been off 2 years. I didnt work in the bakery but my office was right next to the bakery. I now have a diferent position in the store...
  5. Rachel--24
    I would like to send out one more BIG thank you and that is to the Admin (Scott) because without him this board would not exsist and I would imagine alot of us would still be sick without the support and advice of the people here.
  6. Rachel--24
    LOL....you sound alot like me. I'm a "do it my own way"...."cant be like everyone else" type of girl. Sometimes its not a good thing though.
  7. Rachel--24
    I have reactions to the aspartame in gum.
  8. Rachel--24
    I have reacted to every Bob's Red Mill product I've tried. They have gluten free labels on the front and they say that they are ELISA batch tested. Now I'm not trusting anything thats not made in a dedicated gluten-free facility. Drew, I know what you mean because once I got my hands on the lists I started eating all sorts of things...thinking they...
  9. Rachel--24
    2% of celiacs have DQ1...which is not tested for. Also they havent found all the genes involved yet. My GI wouldnt rule out celiac based on my genes alone. I dont have DQ2 or DQ8. I have DQ1 and DQ3 which are gluten sensitivity genes and can cause severe symptoms and also damage to the body but usually not the villi damage that is seen in celiacs. Its...
  10. Rachel--24
    You can't use anything I've written!! Naw....just kidding! I dont know if I wrote anything useful but feel free to use whatever you want.
  11. Rachel--24
    Lucky you! Wish I could've had that opportunity. Good luck with your appointment and maybe you could post how it went and what he had to say?? I'm curious.
  12. Rachel--24
    I'd have to look back at the test results to see if "casein" specifically was tested. The results showed no elevated IgG responses to ANY foods tested and I was eating dairy at that time. I did have the Enterolab tests for casein (IgA) and that was negative as well. I scored a 9...a 10 would have been positive. I had been off dairy for a few months before...
  13. Rachel--24
    Your symptoms probably wouldnt be exactly the same everytime you eat gluten. Also sometimes reactions may occur quickly and other times reactions may show up a day or two later. Thats what happens with me anyways. I never noticed any kind of pattern with my illness when I was eating gluten everyday. Somedays I could eat things and not be affected and...
  14. Rachel--24
    If you've been mostly gluten-free since August there's a pretty good chance your bloodtests will come back negative even if you have celiac disease. You need to be eating it everyday for about 3 months before taking the tests.
  15. Rachel--24
    Thank you Erik! That was a very thoughtful gesture. I'm still pretty much a newbie myself. I've just somehow managed to aquire quite a bit of knowledege about celiac disease in the short time I've been gluten-free. It was only 3 months ago that I was clueless and scared and this board helped me out tremendously. People like Kaiti, Nini, Matilda, JnkMnky...
  16. Rachel--24
    Just wanted to say I had all your same symptoms + a whole lot more. I had bad TMJ for about a year. I couldnt fully open my mouth. The joints and muscle were always swollen and very painful. I also had swollen glands and pretty much my whole head was puffy and swollen. My neck was also unbearably stiff and would crack alot. My hands would and fingers were...
  17. Rachel--24
    From my experience you can be extremely sick, losing lots of weight, unable to even hold your head up, in tears begging for help and they still don't really think you're sick.
  18. Rachel--24
    They should do the celiac panel which consists of these tests: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA
  19. Rachel--24
    Hmmm...I cant remember if there was anything "incriminating" on the box. I dont think it would be too obvious though...not unless you have some very nosey people at work.
  20. Rachel--24
    Yeah...I'm really feeling that way now. Even though I get careless about checking the lists I feel that I'm being super catious otherwise. I've never eaten something with gluten in it (as an ingredient) yet I'm lucky if I can make it 2 weeeks w/out getting glutened. Its always due to contamination. Anyways thanks for letting me know I'm not alone...
  21. Rachel--24
    Wow Deb! I'm glad you're feeling better about knowing after all this time. I'm very shocked you never heard of the brainfog/gluten link. I think its a very common symptom. Well...better late than never right!!
  22. Rachel--24
    Yes...1 in 133 is an estimate of those who have celiac disease diagnosed or not. Most of these people are not diagnosed so the number of diagnosed celiacs is probably much higher. Maybe you are right Survivor 1 in 4 or 5 thousand. Maybe 1 in 22 are gluten sensitive but not actually Celiac. I dont know where those numbers came from but I think they are innaccurate...
  23. Rachel--24
    OK...first I posted about getting glutened by Barbaras Bakery cereal and I told myself I would *always* check stuff out first before I eat it...at least by looking at the Delphi list. I already forgot my own advice and this time I tried Health Valley rice chex cereal. The next day I felt glutened again. I looked at the Delphi list...of course "after...
  24. Rachel--24
    1 out of 22?? Where did you read that...I thought it was 1 out of 133 people have celiac disease??
  25. Rachel--24
    Brainfog is one of my worst symptoms. With brainfog I cant focus on anything. My thoughts leave my mind quickly and then I cant remember what I was thinking. I feel spaced out like I'm not really "all there". Driving is difficult and I get confused easily...have ran red lights before...not responding fast enough like my brain didnt get the message to stop...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.