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Celiac Mindwarp

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Everything posted by Celiac Mindwarp

  1. Celiac Mindwarp
    Lisa So glad you are ok, sounds like it all got a bit hairy there. I hope you can track down your trigger. We are an epipen carrying household too, my son has an anaphylactic reaction to almond. So far we haven't had to use it, but it goes everywhere, no exceptions. I had a puffy lips and hives on face reaction to parmesan last week, maybe I need to...
  2. Celiac Mindwarp
    I tend to describe it as feeling like flu without the congestion, which seems to get across the severity without too much detail... Good luck with recovery
  3. Celiac Mindwarp
    I love buying myself flowers, and would certainly encourage others to do it ****** You are right that we don't get to 'mark' our condition. Your story reminds me of my Mum. She was medically retired in her 40s with ME (but I see a host of gluten type symptoms...) When she hit 60 she said she was missing out on a rite of passage, so I got balloons and...
  4. Celiac Mindwarp
    Wooo Wolfie 2k (quick, duck everyone) Mw x
  5. Celiac Mindwarp
    I got this on IH's recommendation and it is excellent. I would say that the chapters are short and self contained enough to copy and pass to family and friends (and more receptive doctors perhaps) to explain certain aspects of the condition without being overwhelming. Definitely recommend
  6. Celiac Mindwarp
    Sorry you are not feeling so good Hope you get some rest. Yesterday we had the most amazing pork roast. It is a long time since I had excellent crackling. Crunch and melt mmmm. Today was chicken and veg stir fry with some fine vermiccelli (sp??) rice noodles. Nice to add a bit of variety to my rice based dishes. Enjoyed an Easter egg hunt with...
  7. Celiac Mindwarp
    Goth
  8. Celiac Mindwarp
    Beef, onions, zucchini, potato. Dull but functional. Turns out I was a bit optimistic on the parmesan, nice set of rashes on my cheeks and, ahem, other symptoms. Ho hum, if I don't try these things I will never know Have a good Easter everyone. In good news here it is less likely to snow tomorrow. Ski, still hanging in for you and Mom x
  9. Celiac Mindwarp
    The other thing to mention is that if you plan to get your kids tested they will need to still be eating gluten, so you might want to hold off with them until they are tested. I think it can be hard to get definitive testing for little ones, someone here may be able to elaborate. Good luck, welcome, come and ask lots of questions (and rant occasionally...
  10. Celiac Mindwarp
    Sending prayers for your Mum, and hugs for you. I hope you both find what you need. I am with you on recognizing that no learning is wasted. I turned from being my own advocate to my son's in the healthcare system. Thank goodness I knew what I was doing 2nd time. You know what you need to do. Love Mw x
  11. Celiac Mindwarp
    I am 7 months in and I think I just got parmesan back, as long as I don't overdo it. Couldn't manage cheddar, yogurt or milk, but I am hopeful for one day Thanks for sharing, I love the positive stuff
  12. Celiac Mindwarp
    Well, we can never be accused of a lack of persistence, Addy, one day you will find your doc. I am wondering if we can lure IHs doc to Florida to visit us all at the compound? Maybe he could also be a cabana boy. I still don't really have a good one. At least I got a diagnosis of ncgi. He referred me to a dietitian for weight loss, but not nutritional...
  13. Celiac Mindwarp
    I got my 1st soy fog this week. Pretty similar to a gluten one for me. I lose the sense of ever being able to achieve anything in the future. I feel like something is pushing me back on my chest. I stare blankly at walls. Daytime tv is as much as I can handle. Even that seems taxing sometimes. I can't file or organise. Bills pile up even if...
  14. Celiac Mindwarp
    I can smell the roast chicken......
  15. Celiac Mindwarp
    Rustic style chicken thighs, a tomato based Spanish tapas sort of dish, with rice, courtesy of Mr Mindwarp. Very nice. Mould operations on hold till the morning. How exciting is my life?
  16. Celiac Mindwarp
    Mmmm gator burgers (and a nice view...)
  17. Celiac Mindwarp
    Laughing now Cringing with embarassment at the ER.... Wait, I missed the corn reintroduction woohoo!! I was going to try it today, but after my sugar and Imodium exploits this week I think I will go for a bit of recovery time first. Sorry to hear about pork IW An exciting weekend of clearing mould caused by condensation ahead here.....
  18. Celiac Mindwarp
    Thanks everyone entirely my own fault, trying to do a job too quickly. When moving shelves, I advise moving the stuff off the top shelf first.
  19. Celiac Mindwarp
    Us Mums have to be sneaky sometimes gluten-free all round sounds good. I am working up to persuading my 6 year old son to try it. He has asthma and I would like to see if it makes a difference. He is totally nut free already. I am scared to make him stand out more than he already does. Hard to see a kid on a nebulizer and struggling to breathe. I...
  20. Celiac Mindwarp
    Dinner is salmon tonight, cooked yesterday. I managed to get myself a great whack on the head Wednesday, quick er trip. Not too bad, cut and big bruise, and some shock. So I had a sweet tea, bit of chocolate. That started up the sugar addiction thing. I had a bit more chocolate, 2 small merrangues (sp!!) and now I am wiped out and have D. Taken immodium...
  21. Celiac Mindwarp
    Sorry to hear you got glutened That's great if you can get diagnosed for prescriptions. It could also help in sorting things out for your son if you do have the genes. It might also be worth asking for genetic testing at the same time once you manage to get him blood tested. I haven't found research on celiacs who test negative on genes, but...
  22. Celiac Mindwarp
    I was tested for 2 and 8 in the UK. I came back negative, but had negative blood and biopsy too (couldn't last a gluten challenge). I was diagnosed non celiac gluten intolerant on the basis of this. I am secretly holding out for better testing. I am gluten-free for life though, anyway. Glad you don't have to eat the evil stuff again for this test. Mine...
  23. Celiac Mindwarp
    Diana I am pleased that you went to the celebration. I had my fingers crossed that you would make it I truly think that you have taken a big step here, and will start to find it easier to join in on occassions in the future, now you have done this successfully. I hope you recover quickly Hugs Mw
  24. Celiac Mindwarp
    So IH, did you buy a whole case of that?? Thinkin I might try out mango next
  25. Celiac Mindwarp
    Thanks guys (well, you know what I mean). I am not too sad about soy. I will try the coconut aminos. I hope I can do soy lecithins, I have found a chocolate which is gluten, dairy, nut and egg free but has soy lecithins. The odd square of chocolate would be nice. Easter George sounds good Dinner is roast chicken, jacket potatoes, carrots and broccoli...
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