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Celiac Mindwarp

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Everything posted by Celiac Mindwarp

  1. Celiac Mindwarp
    Hi I am in the UK too and just got my results, one test only and not even a range, just 'negative'. My doctor tested after a week on gluten, so not much chance of decent diagnosis. Stinks doesn't it? Sorry you have been through this to. Reading around here I have decided to be my own best advocate. Next battle, getting my kids tested... Good...
  2. Celiac Mindwarp
    Me three!!!
  3. Celiac Mindwarp
    Investigate, please!!! My son had bad colic and always had a bad reaction to formula. I did mixed feeding, breast and formula. He hated cows milk. He now eats yogurt and ice cream but no milk or cheese. He now has asthma eczema hayfever and severe nut allergy, all classic atopic stuff. When I was pregnant with my daughter, a colleague who specializes...
  4. Celiac Mindwarp
    Thanks so much. I will have to have a check with my local pharmacies. This disease aint cheap!! Good luck with the Tylenol. I am secretly hoping to be able to eat fresh corn again one day, as it seems to be mostly processed corn I struggle with.
  5. Celiac Mindwarp
    Wow, I remember when I used to have energy like that, well done for sticking at school. Some great ideas, thanks, I'd forgotten about sunflower seeds, I really like those Thanks
  6. Celiac Mindwarp
    No, that must be something the board does. I play a relaxation disc...
  7. Celiac Mindwarp
    That's relaxation celiac disease. Think my autocorrect has gone celiac mad...
  8. Celiac Mindwarp
    Hi This sounds rough. My migraines last about 12 to 24 hours, and I have to lie in the dark. I take paracetamol and dihydrocoedine (UK, not sure what it is there). I alternate between a hot water bottle and an ice pack (which ever I can stand at that time). I used to use a hot wheat bag, ho ho. I sometimes use 4head, a rub on stick with levomenthol...
  9. Celiac Mindwarp
    Hi I think I may be corn intolerant as well as (currently suspected) celiac. Does anyone have any advice? Most of the meds I have checked seem to have either maize starch or maltitol. Help??
  10. Celiac Mindwarp
    I know, I've not started the diet yet!!!
  11. Celiac Mindwarp
    That's great, thanks I feel a bit like I'm living on cheese some days! Fingers crossed I dont turn out intolerant... I need to be a bit more prepared I think. Hippie is good, in my view. I have yet to convince my family about better eating. Though my husband did say he was jealous of my breakfast of rice avocado chicken and gluten-free soy sauce...
  12. Celiac Mindwarp
    Hi I am loving the look of primal/paleo, and I know when I did Atkins years ago it was great. However - my son has a severe nut allergy and we can't have them in the house. I tried Atkins again recently, but struggled without nuts for snacks. I can't have too much fruit, or any seseme either. Can anyone suggest easy to carry snacks? Many...
  13. Celiac Mindwarp
    All sounds sensible to me. I had to go back for my results too, didn't occur to me to get them at the time. My doctor said she needs to ask a specialist about testing my kids. I know the advice here (UK)is to test all 1st degree relatives (parents siblings kids). That only works if I get a positive. I think my Mum may have it too, but can't persuade...
  14. Celiac Mindwarp
    I am in a similar situation, and it is tough. My blood result was negative, though I have been wheat free years, so I wasn't surprised. Are you still eating gluten? Do stay on it if you can until the biopsy. I couldn't, so expect that to be negative too. However - with my massive reaction to gluten when I tried I have decided to go gluten free. I...
  15. Celiac Mindwarp
    I think lots of people have found gluten-free in DCs list helpful. Even those with years of experience get caught out by the basics sometimes. I regularly have a 'doh' moment picking up info from the boards or realize maybe I have let something slip. Don't diss it too easily, make the most of the massive experience here and value the time people take to...
  16. Celiac Mindwarp
    Ah. Sulphites are my next investigation then....
  17. Celiac Mindwarp
    I'm in the need to avoid corn group. It is a shame and a pain, but I would agree that you need to find out which are the things YOU can't eat. I would hate people to lose foods if unnecessary. I have found out through elimination diets. I have been in denial about corn for years, gave up last week and am starting to feel human. I still does my head...
  18. Celiac Mindwarp
    1 week challenge before the B12 test - my doctor didn't ,,,know the minimum recommend here is 6 weeks. I had celiac test done at the same time but the lab lost it. So when I retested for celiac only, in total I did 3 weeks gluten challenge, 10 days gluten free, 5 days gluten challenge (so gluten on 26 out of 36 days). We were aiming for 6 weeks...
  19. Celiac Mindwarp
    Got loads of blood results, mostly ok I think but I am a bit unsure about, any help much appreciated. My celiac result says: Anti-transglutaminase level =Negative Celiac disease unlikely unless IgA deficient/on a gluten free diet. No other figures, values etc given. I have been wheat free 9 years and only lasted 3 weeks on gluten challenge. ...
  20. Celiac Mindwarp
    Eek! But how can I resist having a go... Thanks x
  21. Celiac Mindwarp
    Pricklypear Your spikey devices are even more hardcore than my golfball! I am collecting past results from doctor soon. Will look at the thyroid readings then...
  22. Celiac Mindwarp
    Yes yes yes!! I just read this in another post. I have had it 8 months and it is excruciating. My doctor told me it is especially common in those over 40 who spend lots of time on their feet and especially women. She gave me exercises that stretch the bit at the back of the heel and suggested rolling my heel over a golf ball. She did also tell me...
  23. Celiac Mindwarp
    I tried quinoa twice, and I might just as well have tipped it straight down the toilet, given how quickly it went through me. Shame, I loved the taste and texture. Corn does sound the other possible culprit (or both, you gotta love celiac). I am just starting to admit I am going to have to eliminate it. Happy healing x
  24. Celiac Mindwarp
    Hi I can't answer questions about uni in Australia, but I can say you will have an excellent chance of successfully returning to studies if and when it is right for you. I used to be a university lecturer in a place that had about a third of the students 'mature'. I had the total pleasure of teaching many older students, many in their 20s and thirties...
  25. Celiac Mindwarp
    Not crazy!! If you can stand it for a bit longer it is worth carrying on with gluten to get blood work and a biopsy done. I had been off wheat for years when I realized I had stacks of celiac symptoms, so blood work came back negative, and to be honest I expect my biopsy to be negative too. I did do a gluten challenge, but only lasted 3 weeks, not...
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