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mendylou

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mendylou

  1. I have been gluten free for four years , I still have DH outbreaks but they are not as extensive as they used to be. I do still wake up every nite with terrible itching which causes scratching to excess. The hot humid weather of summer makes it all the worse. My worst areas are buttocks and forearms. I have not had clear skin for at least 7 years. I figure...
  2. I don't remember where I got this recipe but I have used it a couple times and it seems to work ok. I changed a couple ingredients, this is exactly what I used. 1 cup all purpose gluten-free flour (I used Bob's Red Mill) 1 Tbsp sugar 1/2 tsp xanthan gum 1/4 tsp salt 6 Tbsp cold lard 1 egg 2 tsp lemon juice mix all dry ingredients & butter until...
  3. I am self diagnosed DH. The only 2 places I have NOT had a breakout are the palms of my hand and the soles of my feet. I tend to break out the worst in the same areas. My worst areas are the underside of my lower arms and the backside of my upper legs. I do get scattered break outs in other places, but the ones I mentioned are the worst.
  4. Have you ever used emu oil on your skin? Reason I ask is I bought a container of "blue goo" today. It is for cracked heels and hand. The 2 advertised ingredients are emu oil & beeswax. I have never used emu oil before & thought my skin can't get worse using it so I bought some. I just applied some so have no idea how it will work. I'll give it a...
  5. I don't do much baking, but what I have done is cookies, quick breads, muffins. I don't have many choices living in a small town w/1 grocery store. I have used Bobs redmill all purpose baking flour. That has seemed to be ok for those. I have not tried bread and have never been a bread fan so I don't know how it would be for that.
  6. Is this protopic cream only available w/ prescription or can you buy it OTC ?
  7. In answer to some of your questions, I do eat whole eggs, but not on a regular basis. I also have always been sensitive to dairy. I eat some cheese, never milk , some salad dressings that list milk, egg but again not on a regular basis. One food I used to really enjoy was shrimp. Before this gluten issue became apparent I would notice my lips would get...
  8. I'm glad to hear someone else describe the kind of reactions I notice. Most of my breakouts start with a raised welt which as you said you have to scratch. At first there seems to only be clear fluid but after a couple days I too get the hard ball contained inside. I have referred to that AS GETTING THE CORE OUT. I too would agree that until that core...
  9. I have thru time used my own recipes and adjusted as I have tried them. I have used Bob's mill all purpose baking flour. That has seemed to work for me. I live in a smaller town & do not have a lot of grocery options to choose from, but that one is available.
  10. I can identify with the itching becoming so much worse for a couple hours at a time. And as you say you are always aware of the skin sensation but sometimes it is tolerable and other times not. I always wake up sometime during the nite w/unbearable itchiness. I have to scratch and then I try to leave it alone until it calms down. It often takes at least...
  11. I can identify with all of you. Ihave been gluten-free and as free of iodine as I can be for over 3 years. I have had DH breakouts this entire time but they are not as severe as they used to be. One thing I really miss eating is shrimp. I have not had any in over 3 yrs. One of the first foods I want to eat once my skin clears is shrimp. I may pay the...
  12. I have found the Snyder's gluten-free pretzels to be the best I have tasted. They work good to use with dips, ham salad, chix salad, whatever. They taste just like the regular wheat pretzels. I think they are much better than the Glutino brand.
  13. This burning sensation is very familiar to me but I break out with DH. Do any of you get skin breakouts after the burning sensation? The worst places for me for the burning feeling are from elbow to elbow across the backs of my arms and across my upper back. The other area is from the backs of my knees across my buttocks to the other knee. Very symmetrical...
  14. I tried this recipe in early Nov & I thought it turned out great. It was my 1st time w/gluten free crust. I mad a pumpkin pie. I changed a few thing & am listing exactly what I did. 1C all purpose flour (I used Bob's red mill) 1Tbsp sugar 1/2 tsp xanthum gum 1/4 tsp salt 6 Tbsp lard, cut into cubes 1 large egg 2 tsp lemon juice Combine...
  15. The sensations you are feeling sounds like the ones I get before I get DH breakouts. It gets terribly sensitive, burns, tingles, etc. Within several days I have breakouts. It has been terribly cold here in MN and heat being on all the time causes for excess dryness in the air. My skin has been really dry and itchy lately. Have you ever had the skin eruptions...
  16. This recipe sounds amazing. I am going to try it tomorrow
  17. It seems to me that my DH usually affects the same area over and over and everyone is different as to their most sensitive areas. Mine does affect the hairline, around my lips, on chin; but my worst breakout areas are from elbows thru upper arms across my upper back and my buttocks and the backs of my upper legs. I recently visited my son and of course we...
  18. I have been gluten free for 3 yrs, I have not been DH clear for at least 7 yrs. It is not as severe as it used to be, but I have never been DH free. Just when I think it is clearing up I have another eruption even though I can not connect it to any specific food item. I feel I must be getting glutened unknowingly or come in contact w/iodine which I know...
  19. Iwould be interested in joining an online support chat group
  20. Oh, this looks so familiar to mine. Would you describe the breakouts as divets or craters? Mine eat away at the surface skin which causes craters in the skin. There is usually a fluid or deposit which can be scratched away. After that it takes quite a while for the skin to heal from the inside out.
  21. I have been gluten free for 3 years. My DH was so bad when I started gluten free I was planning to check myself in somewhere. I could not sleep, I itched all nite. Three years later I still have breakouts but they are not as itchy. I itch the worst when my body gets warm. That may be due to room temps, outside temps, level of activity, stress. I thought...
  22. To answer a few of those questions: My flares are smaller in area than previously. They do not really fade faster, they seem to have their own time frame. I do notice the breakouts do not seem to have as deep craters as they used to. They do itch less but only if temp is cool. My worst times for itching are: At nite when I wake up warm I sleep in a...
  23. I have been gluten free for 3 yrs. My DH is much better than it used to be. Just when my skin seems to be drying & clearing up it seems as if I have a new break out.
  24. I don't do much coating for meats, but I like to coat fresh caught sunfish, crappie, & walleye. I use the gluten free all purpose baking mixes. I think they work great. Should work for any meat as well. I have used it to make salisbury steak & meatballs. I like Arrowhead Mills brand.
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