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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    If you have a good relationship with your RA Dr., I'd start there. If he won't order the tests, have him give re: a GI And from all of your symptoms and heritage, celiac disease would be a likely candidate. If your dr's don't think that celiac disease can do all this, have him/her go the NIH digestive issues - very informative. There is a lot of things...
  2. nettiebeads
    You all? You all from the South? Just joking . When I get glutened, it depends on the amount and time since my last glutening. Usually within 12 to 24 hours I'd get that horrible fatigue where I felt like I was wading through molasses. And the depression would last at least 36 hours. But I've been on Zoloft for 5 years, which was 4 years after I developed...
  3. nettiebeads
    I emailed smirnoff's a while back. The coolers are made from malt, which is just the same as drinking beer, even though it isn't beer. I was informed from Smirnoff's that all except their Vodka products are not safe for those with gluten problems. Even though their vodka is made from grain, the distallation process removes the protein that causes reactions...
  4. nettiebeads
    Glutamate is an amino acid and a building block of protein. It is used as a flavor enhancer and is gluten-free.
  5. nettiebeads

    ARCHIVED Ugh--doctors!

    nettiebeads replied to skyengabbie's topic in Doctors

    Ranting is fine here, esp when it comes to the medical community. I'm sure on the average the medical community is caring and professional, it's just that this is a field where a slip up can be fatal!! It's frustrating I know. I guess call them back and ask why your messages aren't being written down and acted on. I've had to deal with insurances over...
  6. nettiebeads
    The gluten-free diet to the newbie sounds like a deprivation diet. I can understand your unwillingness to jump into it, but it is the best way to go. The relief you feel from your symptoms and getting your life back will more than make up for going without gluten products. It is tricky, confusing and maddening at first, but after awhile it will become...
  7. nettiebeads
    The hair loss, fatigue, diarrhea, and possibly dh makes me suspect celiac disease. Or at least gluten problems. My mother is diabetic and doesn't have the stomach problems you describe, although both diabetes and celiac disease are autoimmune disorders and it's possible to have both. The first part of the gluten-free diet seems easy, but it's complicated...
  8. nettiebeads

    ARCHIVED Wary...

    nettiebeads replied to AmandaD's topic in Doctors

    I was browsing the web and came across Dr. Fine's bio and resume. I'm impressed, especially since he received his Dr degree from University of Missouri at Kansas City, the same one my retired dr came from. And it was my gp that dx'd celiac disease. They must be teaching something right at that school. Dr. Fine's work is impressive, and you can see the...
  9. nettiebeads
    Hey PreOptMegs! Haven't heard from you, obviously you've been busy with school. I was thinking of you Sat - we were at the Touhill for a concert, after eating at PF Changs in Chesterfield. How are you doing?
  10. nettiebeads
    Had another thought re: test. (sorry, couldn't keep focused last night - all these little creepy things were at my door for candy) - He wants the test as a baseline, right? Well, that means if he doesn't order the test again in the future, then what's the point of getting the test now? Meaning, this would be the FIRST $900 you'd have to plunk down out of...
  11. nettiebeads
    Do you have a microwave at work? Campbells has a few soups that are safe. Dinty Moore beef stew is okay. I had leftover pizza (gluten-free of course)- still a kid at heart, I can eat that cold. Delimex has a couple of taquito varieties that are safe. Good ole salad, but I can only do that a couple of times a week. Otherwise my taste buds rebel! Have...
  12. nettiebeads
    If I were in your situation, I'd skip it. There are other ways of monitoring your health - if you're feeling healthy, you probably are. I was dx'd old school - diet challenge. None of my drs (the original one who dx'd me) or subsequent dr's have ever mentioned looking into things, as it were. I think it's easier for the dr's to look at images, but it...
  13. nettiebeads
    The fatigue and weight loss to me are very good signs of celiac disease. Also if your poop is really foul smelling it's gotta be celiac disease. The poop problems are from the malabsorption caused by celiac disease. I don't think IBS has the malabsorption issues that celiac disease does. Ask for the celiac disease blood panel from your dr. If he won...
  14. nettiebeads
    I've had celiac disease for 9 years and still don't like to travel like I used to. I even talked my boss out of sending me to San Diego for a seminar. I don't like letting celiac disease control me, but I'm so tired of cross contamination issues that I don't enjoy myself like I used to. Maybe later on as you get used to the diet and learn what to look...
  15. nettiebeads
    I've always used the Fanny Farmer but substituted gluten-free flours - sometimes my nongf dh can't tell the difference. Now for a pot of chili - them's good eats!
  16. nettiebeads
    It sounds like your mother may have "wheat free" confused with "gluten free". Rye is a bad thing for us with celiac disease. I'm sure she meant well. Don't worry, we all go through mistakes on this diet, but this forum should help shorten your learning curve. Also, I've read (and it helps me) to try to get more than average protein. The normal diet is...
  17. nettiebeads
    I would imagine high IS celiac disease. Borderline or not. I really really dislike it when dr's are so dismissive of anything that they can't pinpoint or fix in 11 minutes At least here people believe you and have experienced some of the same problems.
  18. nettiebeads
    yeast is fine, so long as it isn't brewer's yeast, which is normally a by-product of beer making.
  19. nettiebeads
    I'd blame the nuts. I also have diverticulosis and nuts are a no-no for me. But I don't have the symptoms that you did. I'd try a few peanuts next week when your body has recovered, and also when you have some "down" time in case..
  20. nettiebeads
    I have diverticulosis and when I eat something I shouldn't (nuts, seseme seeds, any small seedy things) my stools are thin and soft.
  21. nettiebeads
    I have multiple food allergies and never had a panic attack. But since I've developed celiac disease, give me gluten and I'm "weirded" out for quite awhile - almost panic attack like. Anyhow, diabetes and celiac disease go together quite often. I'd recommend both children be tested for celiac disease - at least the blood panel, biopsies can come back false...
  22. nettiebeads
    Well, I'm not a dr, but I've had celiac disease for 9 years. You really didn't give much info - How long sick before dx, extent of damage, how long gluten-free? The results of going gluten-free vary w/everyone. Depends on the variables I just mentioned. And also, are you truly gluten-free? No hidden sources that you thought were okay, but not? Still...
  23. nettiebeads
    Thanks, I'm thinking of printing that off to hand to my brother next time he tells me Reliv will cure me or able me to handle gluten again.
  24. nettiebeads
    I got to eat at PF Changs last night and it was wonderful!!!! Serendipity raised her beautiful head and I am so thankful. Whenever dh and I go to St. Louis I drive since I know my way around pretty well (he's been in KC for the past 13 yrs, even though we went to hs together in Rolla) ANYHOW - he had (until last night) a rather annoying habit of reading...
  25. nettiebeads
    That is the right attitude to succeed with this diet.
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