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AlwaysLearning

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Everything posted by AlwaysLearning

  1. AlwaysLearning
    I hear you. I just spent the weekend with family, staying with the aunt who has had most of her spine replaced with metal after the bone disintegrated, has diabetes and thyroid problems, and definitely has digestive issues. Though she was one of the first people I told about the dangers of gluten after figuring out my problems, she seems to be more concerned...
  2. AlwaysLearning
    I just got home from a weekend out of town for a family event. Before going, I was pretty concerned about having to deal with all of the questions that may arise from family I haven't seen in years about why I wasn't eating at the restaurant gathering, or bringing my own food with me everywhere. In hindsight, that was the LEAST of my problems. Sure...
  3. AlwaysLearning
    Holy tangent, batman. I'm thinking that there are plenty of water products out there that contain gluten, but not so much for plain water. I'd read the label on anything that had flavorings, vitamins, or even colorings added. And I don't consider the "Vitamin Water" brand to be water myself, but I bet others do. To the original poster, so sorry to hear...
  4. AlwaysLearning
    I continued to feel worse after I went gluten free as well, and it took another few months for me to figure out that it was vitamin deficiencies that were causing my fatigue and abdominal pain, though I never did get neuropathies on the level you describe. Even if they aren't the cause of your symptoms, it is very likely that you are low on something. Most...
  5. AlwaysLearning
    I know I will sometimes put off "dealing" with emotions soon after the event that triggers them, but am hit by them later, when I've gotten a little distance and they aren't so overwhelming. It is a defense mechanism and personally, I think an extremely effective one. Much better than what I've seen others do when faced with adversity such as not eating...
  6. AlwaysLearning
    Sorry, I didn't get it. I did notice a change, but it turned out that I was drinking too much ginger tea, which has some negative effects. I bet if you drink lots of water and take daily walks, you could speed it up a little.
  7. AlwaysLearning
    Congratulations on three weeks!
  8. AlwaysLearning
    Okay, back to the original topic. One, I think that it is absolutely fantastic that you are here on the forum asking for tips because you want to do better. Kudos for that. I'm only nine months in myself so I'm still struggling with a lot of the social aspects. How can I start dating again now that I feel better when restaurants and bars are pretty much...
  9. AlwaysLearning
    Does anyone out there have any understanding of the connections between celiac and mononucleosis, interleukin 15, and long lasting symptoms of mono (Chronic Fatigue Syndrome) amongst celiacs? I was doing a ton of reading last night that led me to believe that mono is a common trigger for activating the genes that celiacs may have had previously, but hadn...
  10. AlwaysLearning
    I've gotten minor contamination from nuts. I've learned to go with unsalted varieties. (Roasted has been fine.) I'm suspicious of anything that comes in a powder form, including flavored or seasoned salts. I had to toss my garlic salt because the "anti-flaking agent" seemed to contain gluten. And even if your nuts were okay, they could have been processed...
  11. AlwaysLearning
    B12 deficiencies can cause nerve pain anywhere in your digestive system, and are easy to test for. (Levels below 400 can cause symptoms.) Supplementing my B12 deficiency did help with my pains that sound somewhat similar, but I don't know if I have additional problems as well. My pain started before I discovered that gluten and I are mortal enemies, but...
  12. AlwaysLearning
    Yeah, I'd say definitely get tested for vitamin deficiencies. There are quite a few that are common with celiac. Despite having a ton of symptoms disappear when I went gluten free, some still got worse for 4-5 months before I finally figured out that I was missing something. I guessed a couple on my own, but went to see a doctor to confirm before supplementing...
  13. AlwaysLearning
    Very cool about the dye for seeing the patches. Anyone know if this is common in the testing process?
  14. AlwaysLearning
    I had no idea that there was such a thing as "geographic tongue". Thanks for helping me learn something new! Just throwing some ideas out. • Get your teeth cleaned if your are due and ask your dentist if you have gingivitis (can cause bad breath). • Get yourself some natural dental products that are fluoride free (toothpaste and mouthwash). If nothing els...
  15. AlwaysLearning
    Thanks for the post. Though you may be feeling lousy, it is nice to see someone be able to laugh at themselves (and make me giggle too). Heck, even if I had just stuck to the fish and not eaten the mussles, the cross contamination from the restaurant's kitchen probably would have had similar results for me. But the mussles!?! You didn't! I hope they ate...
  16. AlwaysLearning
    Back to the original post ... I'd get on top of the vitamin deficiencies. I say this because B12 deficiencies seem to get worse when you are prepping for something big, adding stress and activity. And B12 definitely can affect your mood. B12 stores in the body are drawn upon when needed, and additional physical activity or being under stress would both...
  17. AlwaysLearning
    Though I haven't eaten as much gluten as is in a cracker since going gluten free, the mood and odor sound familiar. I'd make sure he drinks lots of water in the short term as it should help the symptoms ease up faster, saving him a few extra days of misery. And otherwise, I'd just make sure to avoid sugar like the plague (including too many carbs) and...
  18. AlwaysLearning
    If I were to compare it to my own gluten reactions, I'd say yes, that was caused by gluten. I do get irritability kicking in after the gurgling but before the headache, and I skip the foot pain, but otherwise, that is pretty spot on. The thirst is new to me, but some of the ingredients they add to mixes to add fiber could be the problem? When I researched...
  19. AlwaysLearning
    My diarrhea went away immediately after going gluten free and stayed away. The only time I've had the big D in the past 9 months was likely caused by overdoing a vitamin B12 supplement. I'll never really know, I suppose. That said, I've heard of plenty of people who seem to take longer to start to feel better and/or have symptoms resolve. But I would...
  20. AlwaysLearning
    LadyK, you totally made me do more research into fluoride with your comment about the allergy. Thank you! I may finally understand why I've had to buy spring water for years and can't use fluoridated dental products! Some online reading tonight tells me that 1% of the population is allergic to fluoride and hypersensitivities are seen more often in people...
  21. AlwaysLearning
    Just another thought, but have you tried avoiding fluoride? I didn't know that people could actually be allergic to it until someone said something in another thread and I researched more, but gastrointestinal problems are one of the symptoms. Another scientific study linked hypersensitivity to fluoride to those with other autoimmune system or gastrointestinal...
  22. AlwaysLearning
    Wanting to run the same test again makes me think of that quote about insanity: doing the same thing over and over again and expecting different results.
  23. AlwaysLearning
    I think the probiotics concerns are fairly complex but a great thing to keep in mind as you start into a new food regime. Here are some things that I think I understand. • The standard western diet is not strong on probiotics. Generally, processed foods don't contain probiotics so we're not introduced them into our systems in the quantities that we would h...
  24. AlwaysLearning
    That B12 level isn't all that great. I just got a copy of some tests I had done and this is the verbiage the lab supplied about B12 levels. "Please note: Although the reference range for B12 is 200-1100 pg/mL, it has been reported that between 5 and 10% of patients with values between 200 and 400 pg/mL may experience neuropsychiatric and hemotologic abnormalities...
  25. AlwaysLearning
    This isn't related to celiac at all, but really interesting. It talks about how dairy products have been eaten historically and explains why some people continue to be able to tolerate milk into adulthood while 2/3 of the world population cannot. Open Original Shared Link
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