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Lisa

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Lisa last won the day on December 26 2018

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  1. My endoscopy showed mild blunting of my villi - yet 2 different doctors who viewed the biopsies said I don't have celiac. So, something besides gluten was causing the blunting...... I'm thinking it was soy because I haven't eaten dairy in awhile and whenever I eat soy, I get major GI symptoms. I think because of this, it caused me to react to gluten in the same way a celiac would. Now I just need to figure out if this gluten intolerance is permanent or just temporary......I'm too scared to try gluten since I've been gluten-free for almost a year.

    With two different doctors confirming blunted villi and yet, they cannot diagnose Celiac Disease? Is there another direction that they are leaning? Visable blunting can be diagnostic. Biopsy samples can be hit or miss and does not indicate that you do NOT have Celiac. Many doctors can see only in black and white.

    If you consume gluten and you have a reaction, that should be adequate to accept a diagnosis of Celiac and remain gluten free. Other things can cause blunting, but it's unusual.

    Not all roads lead to Celiac. A positive biopsy/endoscopy, positive dietary response is a pretty good indicator that you have Celiac Disease.

  2. Ah, I thought there might have been a connection somewhere. Dr Fine and Enterolabs has been the frequent subject of discussion here, as you can tell. Many members here will be looking forward his published work as well as the peer review.

    Welcome!

  3. I would recommend www.triumphdining.com Grocery Guide. It lists over 30,000 main stream product and it is issued every year, with current, confirmed products.

    I sure wish that I had it the first years I was diagnosed. After the first you, you should have learned to read labels. As Peter mentioned, depending on lists has major problems with accuracy.

  4. Open Original Shared Link

    Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data.

  5. A while ago, blue cheese was "started" with molded bread. In current times, this process is costly and most producers use a synthetic started that is not gluten related. Some very high end cheeses may still be "cured with bread cultures and it will reflect in the cost.

    If you do a search for "blue cheese - gluten free" you may come up with some specific brands that are considered gluten free. Generally, if I don't see wheat listed on an ingredient, I endulge. ;)

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