Lisa

Hi Lois and Welcome!

Let's keep things simple in the begining.

You have several things working for you. You have a strong family history, you are symptomatic and you respond well to the gluten free diet. It may be very likely that you have Celiac, a gluten intolerance, sensitivity or an allergy to gluten.

If you would like to be tested, this is what you doctor should order:

Of the commercially available serologic tests that aid in the diagnosis of celiac disease, no one test is ideal. Using multiple serologies increases the diagnostic yield. Therefore, in the United States, screening in patients with possible celiac disease should consist of a panel of the following serologic tests:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Take one step at a time and take some time to walk around this site. It's the best around. And know that there are many here that are self-diagnosed and those are quite content with that decision. Others, would like something more definitive. That will be a choice you may need to make.

In the mean time, feel free to ask away. We are here to walk you though it.

I certainly understand where you're coming from. Most of us here have experienced the frustration you have. Celiac takes and average 11 years to diagnose.

We DO need to listen to our bodies and TEACH our doctors. But we must be careful not to play doctors on the internet, unless of course, we are one.

We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

Hi Laurianne,

My name is Lisa and I've been active on this site for over three years. You will find a wide variety of people here. But, there is one thing we all have in common. For the most part, many of us have been very, very ill and in searching for a path to good health, we landed here.

Celiac Disease has over 200 symtoms and the group of us vary in all manners. We gather here because we all have Celiac Disease, gluten intolernace or gluten sensitivities, or associated illnesses caused by it. Some people come here because this is the only place that they could be understood. Some people come to this place for the best information around and others find a hand to hold in a terrible time of their lives. Others are healed and stay to "pay it forward" so to speak.

So, there are many reasons that people find themselves here. I hope you have reason enough to stay. We learn from everyone here. And everyone is welcome!

Question? Is all consumable alcohol distilled? (aside from wines and beers) Wouldn't a potato source for the alcohol be considered organic?

If all consumable alcohol is distilled, and the distillation process is said to remove the offending protein, then all consumable alcohol is considered a safe level for Celiacs, regardless of the source. (other than the super sensitive)

So, I would assume that a synthetic alcohol (as in McCormicks) is a non-organic source, and equally safe for Celiacs to consume. They also list all forms of gluten on the ingredient listing. No gluten is listed.

Rice Guy, are saying that potato sourced alcohol is not safe, regardless of the distillation, to those with potato issues? I honestly don't know?

Expanding on my original post, do I recall wheat is broken down to wheat dextrin and that is considered safe for Celiacs to consume?

...hum, perhaps it was Irish Dave that posted information on "wheat dextrin". Anyone?

(don't try this at home until verified, please)

Just a thought here. I asked McCormick what the source of the alcohol in their vanilla extract is, and they said it was synthetic, and refused to specify further.

For anyone who can't have potato, I suppose vodka could be a problem, and that's what's usually suggested for making vanilla extract at home. I don't know if any companies use vodka.

Rice Guy, wouldn't synthetic be non-organic?

Nope, I wouldn't buy it either and won't in the future, to include all of there products. Pitty

Jealous

Welcome,

I would revisit her gluten free diet. Have you checked your used toaster, wooden cutting boards and spoons, lotions, shampoo, meds, vitamins or any contact she may have with her mouth.

Contamination at school is very difficult to avoid, with personal contact with food and other children. Are her school supplies safe. Play Doh is not. Have you met with her teachers and discussed her diet?

It's so difficult with children, especially when they are out of our watchful eyes during the day.

I could not find an allergen statement on their website. I think that it would be doubtful that it contained gluten, but as Ken stated, it's always good to call the company.

Wheat by law must be listed on the ingredient listing or listed in an allergen statement on the bottle. It is unlikely that barley, malt or rye would be an ingredient.

I use McCormicks.

I got Gulden's Zesty Honey Mustard and noticed 'mustard flour' listed as an ingredient. Is all mustard flour gluten free?

Mustard flour is made from mustard seeds. Not a gluten worry

Welcome and it could be a gluten allergy.

All wines are gluten free, regardless of the distillation process. Wine is derived from grapes.

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

Hi Jim and Welcome!!

Healing time can vary depending on the extent of damage, length of time undiagnosed and diligence to the diet. We all are different.

I have found that I reacted to every food, gluten free or not, until some healing was allowed to take place. Your response to the diet can take several days, several weeks or even several months. It CAN take up to a couple of years for a complete recovery.

As you know, the diet can be tricky and the learning curve is steep. If you need help dealing with this new lifestyle, please feel free to ask. This is a great site. Take a walk around.

Soon, this will become second nature.

Thanks for the information, do you also have chronic acid reflux? We believe his doctor did a celiac panel blood test. Once he quit eating it, all his symptoms disappeared unless he by chance finds some on accident.

It is an ongoing battle. We are both learning from experience and trial and error.

Hi tazz,

Get a copy of the blood work that they ran and post it here. We can interpret his results. Many of us have found that our doctors are not as knowledgeable as we would like regarding Celiac and it's associated ills.

Reflux is very common with Celiac Disease and gluten intolerance. Once he is gluten free for some time, his reflex should subside.

But a word of caution. Gluten can be very tricky and hide it in the strangest places. Please make sure that your has a dedicated toaster for his gluten free bread. Check your scratches pots and pans, wooden cutting boards, wooden mixing spoons, lotions, shampoo, meds, vitamines and YOUR lipstick.

If indeed, he does have Celiac or a gluten intolerance the only cure is a total gluten free lifestyle.

Lots of good people here to help with your questions. Feel free.

I thought Hershey's Milk Chocolate Bar was safe, saw one for the first time here in Chile and so excited. Like a jack@ss started eating it - started feeling a bit funny and there it was plainly on the label.

k,

Bear in mind that ingredients and labeling laws vary from county to county. For instance, Campbell's Canada and Campbell's US have a totally different gluten free listing. Sometimes we do forget that we have an international forum.

Rudder is Goosey's doggie.

(this is Laura posting under MG's name)

Karen made me say that.

Considering tonight is a full moon, I ain't touch'in that with a ten foot pole

I don't recognize anything gluten in the ingredients (I don't have a can with me, will post later at home). I am trying to figure out what is causing a problem for my daughter. There is a big ? mark on these beans. I have quite a few cans.

I'll post the ingredients because if I am missing something that contains gluten, I need to be informed. Meantime, I think I will just donate the cans and go with the brands that are listed as gluten-free to be safe.

Thanks,

Dawn

I sure we can interpret for you. It's very hard and confusing in the beginning. A good rule of thumb is "when in doubt, do without".

The food pantry will welcome your gluteny foods.

Great!!!! Thanks for your effort and time to share with us.

Hey! Does anyone know if yeast infection kits (like Monistat) are safe for people with celiac disease? Thanks

Gluten must be ingested to be a danger to those with Celiac.

Open Original Shared Link

Miralax is gluten free but I don't know about the dulcolax.

I would call the doctor's office and follow their suggestion. This is not a normal reaction to the colonoscopy prep.

EDIT: Open Original Shared Link

Does anyone know if Van Camps pork n beans are gluten free? I have cans and cans of those on my shelves.

Thanks,

Dawn

Well, what does the ingredients say?