Lisa

Welcome!

This is a great site and we are glad that you joined us. Every thread of full of valuable information and it's the best around! This diet is really hard and it's great when you can commiserate with others. We've all been here.

Feel free to ask questions.

Welcome to the Club!

There are no conclusive tests with the exception of a positive dietary results. I believe you have your answer.

The neurological symptoms will clear up with a continued gluten free diet.

Everything you would like to know can be found on this site. Again, welcome.

Unfortunatly, I haven't found any package gravy that is gluten free. I have heard, that there are some gluten free versions at health food stores.

When making gravy, I always use corn starch. If that won't work, I do without.

Sassy, someone will be with you shortly. I'm not good at test results, but I wanted to say welcome.

Hi, have trying to find out about Dr. Pepper. since it has 23 ingredients and secret. Was wondering if anyone else has had problems with it. I drink very little soft drinks but tried Dr. Pepper a couple weeks ago. Now my DH is very active. Trying to track down the cause. Thanks for any help. Babs.......Oh I have no idea about the slushies.

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If you cannot handle eating gluten again, perhaps you shouldn't. You felt better without gluten and that can be a diagnosis in itself. You may not have Celiac, but rather a gluten intolerance. Many people here are self-diagnosed and feel quite comfortable with their conclusion.

I would pursue the endoscopy and biopsy though. It's good to rule out other areas of concern because all ills are not celiac or gluten related.

Oh, and as far as the proceedure goes...nothing to worry about, it's easy.

HI Michelle and Welcome,

All coke, pepsi, 7-up and sprite products are gluten free. I would suggest that you stick to those until you learn more about the diet.

You can learn a lot on this site. Welcome again.

Happy Birthday Andrea! May all your wishes come true.

Welcome!

The best diagnosis is a positive dietary response. Since your tests (but not knowing exactly what tests they were) were boarderline, try the diet and see if you feel better. Your symptoms certainly could reflect Celiac or a gluten intolerance.

Take some time to read around this site. There's some great information.

I'm not a fan at all.

I can handle gluten, but I am always careful to wash my hands well and wipe down any counter top that is used.

I don't impose my restrictions on my husband and he is always courteous of mine.

Hi Sonya,

I would revisit your diet. Check you meds, vitamins, shampoos, makeup and lipsticks. In other words, anything that can get near or in your mouth.

Do you have a dedicated toaster just you for you and your daughter. Wooded spoons, scratched pots and pans, wooded cutting boards and colanders can be a good source for hidden gluten.

It is near impossible to begin this diet and be knowledgeable of every sneaky source. It took me many months to master the diet, and mistakes were frequent.

If you have any specific concerns, please feel free to ask.

And welcome to the Club!

I am very sorry that you have had such difficulties. But, I am a firm believer that we take on sole responsibility when we eat outside our home.

We have Celiac Disease, restaurants did not cause this and it's not their responsibility to remedy the situation.

I am grateful when some restaurants make an effort to accommodate those of us with food concerns, but again, my health concerns are my responsibility alone.

larry mac, are you misbehaving AGAIN!

It's obvious that you have either Celiac Disease, a gluten intolerance or a gluten allergy. The diet is a diagnosis in itself.

Sometimes it does seem like a very dumb thing to do by making yourself sick, do further damage, just so that MAYBE that damage can show up for doctors to be satisfied. Your doctor said that he/she was 90% sure you have Celiac, is the remaining 10% worth feeling sick as a dog?

Angie, my advise would be, that if it makes you that sick, stop. Go back to the gluten free diet and feel better. You already know that you have an issue with Gluten. Listen to your body.

Whatever you choose, I hope you feel better soon.

I toast them every morning and spread them with peanut butter and marmalade. Just love 'em.

Welcome Jen,

Migraines can be a common symptom for Celiac, gluten intolerance or allergy. There is bountiful information on this site. Take a walk around and if we can help you in any way, let us know.

This is the panel that you doctor should have ordered:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Hope you get some answers.

The presenter said that people with gluten intolerance are actually casein intolerant. If they give up the casein (all milk products and ones with added casein), in time their guts will heal and they will be able to have gluten again.

ML

Hummm....why does this sound vaguely familiar to me. Someone, a while back seemed to imply the same thing, but I can't think who it might have been. But, I'll work on it.

...in the mean time, I hope no one takes this seriously.

Ask for 6 to 8 samples from various places to biopsy.

Don't worry, you won't remember a thing and it's painless. Take a friend with you. You won't remember the conversation with the Doctor post proceedure.

You need to read the ingredients. Generally butter is gluten free.

I am not good at interpreting test, but perhaps this will help:

Table 1: Serologic tests for celiac disease--pitfalls

Serology

Comment

AGA

Relatively non-specific

Anti-EMA

Highest overall sensitivity and specificity, but poor sensitivity in patients with partial villous atrophy

Anti-tTG

Sensitivity and specificity not equivalent to anti-endomysial antibody, Less sensitive in partial villous atrophy

Total IgA

Screens for IgA deficiency. Often present if IgA deficient and one of the following present: IgG AGA, IgG anti-endomysial antibody, IgG anti-tTG

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When my daughter's blood work came back it was negative. I forgot that she had been taking Acidophilus tablets everyday for at least two weeks before she had her test. Could this have affected her test results?

Thanks!

I don't know how old your daughter is, but the celiac panel is highly unreliable for children under the age of five.

We are glad that we can be of some help. Hopefully, you will have a resolution to your problems soon.

From my experience:

You can read about a product that is gluten free on this site.*

You can look at a shelf label that states a product is gluten free.

You can learn from your cousin's second wife about a gluten free product.

You can trust a hourly paid customer service rep to inform you on a gluten free product.

You can order at a restaurant, because it is on a gluten free menu.

You eat things other than broccoli, carrots, apples, etc.

Until you do all of these things, you cannot be truly be certain that a product is gluten free. The risk is our responsibility alone.

*most people who post product information on this site, have research before they qualify something as gluten free. A few make mistakes.

Yes, the menu is limited, but it is a gluten free menu and I shall not complain.

BUT, your gluten free meal is only as good as the employees that handle it. I have found the employees at Chilli's to be mighty slack in their concern. Cross contamination could be a big player here.

I am sure that others have had a good experience, but do be cautious.