Lisa

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This is a beautifully unspoiled place close to my neck of the woods. I am not a birder, but I understand that it is a frequent destination for those who do.

if i make two seperate posts, why is it going into one? i want them to be separate!

You have several on-going thread currently. I assume that your question has been addressed.

In another thread you mentioned that you might have had soy sauce. Perhaps that is what made you react.

I have been gluten free for several years and it would take me repetitive glutenings for me to react. Once you heal, it might take some time for the damage to be bad enough for the symptoms to occure. (I never had immediate pain due to gluten).

Maybe you have had some small continuous cross contamination issue which resulted in your symptoms reoccuring. Or, as Janet mentioned, you no longer have the good bacteria due to long term use of antibiotics.

Hope you find you anwser.

i have only gotten hives, bloating and stomach pain. my hives are crazy though - all over me from the waist down.

even when i take laxatives, i still have an issue going to the bathroom once i think i have been glutened.

could hives be a reaction from getting glutened?

anyone else?

In your signature it says you have a gluten/egg allergy. It sounds more like an allergy to me.

Ok my question is has anyone tried this and what do you think of it. It has the acai berry and a friend said it is great for celiac?????? If you did try it how did you feel and did it help you in any of the ways it says it does?

thanks so much melissa

And what is it suppose to do for Celiac?

Could you please explain more about things other than celiac that can cause gluten intolerance? I would love to find out more. My blood work biopsies were negative, but the gluten-free diet makes me feel so much better. Could it be something other than celiac?

Here is some information regarding gluten intolerance vs. allergy.

https://www.celiac.com/articles/179/1/Aller...n-MD/Page1.html

The Celiac Blood Panel (antibody testing) can be unreliable as can the biopsy through hit and miss sampling. The only sure test for Celiac Disease, gluten intolerance or gluten allergy is a positive dietary response. If you remove gluten from your diet and you feel much better, you have your answer. It's sort of like beating your head against a wall....it feels so good when you stop.

What specific test did you have? Do you have the results?

I enjoy their fries.

Now, do some reasearch on the VERY EXTENSIVE DISCUSSION regarding McD's fries on this site in the past and come to your own conclusion.

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Maybe the ice cream? Milk shake? Anything?!

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I thought that they had a gluten free listing, but this is what I found.

Greetings all,

I am a 24-year old woman who was recently diagnosed with celiac disease via endoscopy. I am trying my best to follow the diet, but am running into a lot of roadblocks. First off, I live in a small town in northern Alberta, Canada, and there is NO health food/celiac type store here. My partner and I aren't exactly rolling in gobs of money either, so shipping stuff in from elsewhere is likely to be more than we can afford. I just feel really bummed about the whole thing.

Sprued

ps I did come across La Messagere here though....very happy about that!

Welcome Sprued,

Gluten free food does not have to be expensive and it's readily available. Start simple. Meat, fish, veggies, rice, potatoes, fruit and other naturally gluten free foods.

Gluten free processed food has come a LONG way in the last few years in taste and texture.

Here is a listing of companies who's policy is to list all forms of gluten, which makes label reading much easier. They will clearly list wheat, barley, rye and malt:

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It's rather rough in the beginning, but it does get easier. There is a great deal of information here on this site and you will find no better experts than here who generously give their time to help others.

Welcome,

Reflux and like symptoms can be associated with food tolerances including gluten. I would suggest that you try to go gluten free for a week or two and see if you symptoms improve. Gluten free does not mean just giving up wheat products. It includes rye, barley and malt. Gluten can hide everywhere from soy sauce to shampoos. It can be quite a challenge.

IF, you choose to be tested for gluten intolerance or Celiac Disease, you MUST remain on a gluten diet in order for the most accuracy in testing.

This is a great site. Take a walk around.

I searched the Celiac Disease Foundation for Nebraska contacts and I am sorry that there is none.

This site is one of the best forums for information regarding Celiac.

Is there any reason to have a "definitive diagnosis" then? Does it matter for insurance or medical reasons? If you know to stay away from gluten, are there any benefits of having a positive diagnosis? My doctor said that I might have celiacs or I might just have a 'gluten sensitivity' and he didn't seem to think that it really mattered either way as long as I stay away from gluten. Is that a normal doctor response?

A defined diagnosis is a personal choice. Your doctor is wise in his recommendation to you. Celiac Disease is classified by villious atrophy which may, if undiagnosed can have deadly consequences along with other unfortunate side issues. With a gluten sensitivity, you will have the same symptoms of Celiac Disease without the villious atrophy, but the prescription is the same - a total gluten free diet.

Gluten intolerance is so foreign to people. I remember the first time I heard it, and I knew it didn't have any bearing on me or my health problems. It's something that just happens to someone else. Oprah probably feels the same way.

I can understand this. How many of you wish that "gluten" had a different name. I always felt that being "gluten intolerant" sounded like you had an allergy to glue. That's why people look at you so oddly.

I think we need to come up with another name for gluten. Any thoughts?

Did anyone see her today?

She is all about the women's body and natural ways of healing. I could not believe how very cool is what to listen to someone who actually knew how to take care of so many problems naturally.

She also mentioned that 1 in 4 women have a gluten sensitivity and women over 50 have a hard time digesting grains.

I thought she was fascinating.

Anyone have any of her books?

Yeah, I watched her. I learned how to get my lower heart to smile.

Oprah also talked about the "so many new diets these days" when Dr. Northrup was talking about "wheat is bad for many people." Not impressed with the Big O today.

I live on quaker rice cakes, but never feel 100%. maybe the cc is my problem. Where do ya'll get the Lundberg rice cakes? I have never seen them anywhere. I am in Fayetteville, NC and there really isnt all that many places for me to shop for gluten free food here.

I am not in your area of the state, but you can find Lunberg rice cakes at Farm Fresh and some updated Food Lions.

Here is a "warm" site where you can find a local contact who can direct you to covenient stores in the Fayetteville/Jacksonville area.

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This is also something that I've been wondering too. I was just about to post the same question!

Does anyone know if their tests are the most accurate?

Also, does anyone know if you can get your insurance to foot part of the bill?

I cannot tell you about the reliability of their testing. I have had no relationship with Enterolabs.

I do know that Enterolabs does NOT DIAGNOSE for Celiac Disease. It CAN test for sensitivities to various foods.

If you choose to have a diagnosis or testing for Celiac Disease, this the the Blood Panel to request of your Doctor:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

It is the same way with us...there are so many contributing factors that can cause my dd's moodiness, but if we start a new product, I always assume it's the new product. Then I have to factor in that she also has ureter reflux, and that can cause her to be irritable. I just never know anymore!!!!

I didn't know ConAgra labeled rye, barley and oats too......last I heard they only labeled wheat. Glad to know I was wrong!

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Yup, all gluten. They are some of the good guys.

Try to eliminate dairy for a while while you heal. I am sure that it will make a difference to you.

La Choy Teriyaki is gluten free.

La Choy is made by Con Agra, which is one of the companies who will list wheat, barley, rye, malt. It frequently is on my shopping list and I don't see any gluten ingredients.

Please also confirm on your own when someone tells you that a product is gluten free. Some may have more knowledge than others and some may have a higher tollerance of gluten than others.

We use LaChoy soy sauce consistently and I was pleased to see the Teryaki appeared safe as well. It is made by ConAgra which is a "good label" company. However, after a few glutenings in the last few weeks (after 3 months of NO GLUTENINGS!!! Our longest stretch yet!) this is one new product I know we have introduced that could be a culprit.

Has anyone else here used it and had or not had a reaction?

Anyway, for now we're back to basics on whole, pure foods and nothin' overly processed while she "recovers." I had all but forgotten what the brain fog, ADD-likeness, and fatigue was like it had been so long. Darn. Darn. Darn.

Thanks in advance for your help.

La Choy Teriyaki is gluten free.

As I sit here munching on my Peanut butter and chocolate rice cake I can tell you that they are very safe to eat!

I have been eating Quaker rice cakes since I was diagnosed and have never had a problem with them.

I eat the lightly salted, white cheddar, chocolate chip and peanut butter and chocolate and all are good!

I also get HORRIBLE symptoms very quickly after being glutened.

Here you go (this email is from November 2005):

RE: Quaker Rice Cakes , REF.# 025522610A

Hello Annette:

Thank you for contacting us about Quaker Rice Cakes. We do our best to

provide accurate information so that you can make informed choices

about the products you purchase.

We are concerned for your health and want you to know that grains are

handled and transported in bulk by our suppliers. We understand that

individuals sensitive to gluten cannot digest even trace amounts. It is

important we let you know that this product may contain trace amounts of

grains that may be grown, harvested or stored with other grains and we

cannot guarantee this product is gluten free.

We thank you for your interest in our products and hope this

information is helpful.

*****

Even though this is a 2005 response, it speaks for itself. It would be good to receive current information.

I am looking for a support group in southern Mississippi. Or if there isn't one, I would love to start one, if there is anyone out there that would like to start one with me.

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Here is a link that may get you started. This is a great sight for the best Celiac information available.

Please don't waste your money. Learn to read labels instead.

Here is a list of "good" companies who have a wonderful policy of listing all gluten (as "wheat, malt, barley, rye"):

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It is better to rely on reliable companies rather than gluten free product listings.

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Hi,

Do you need to be still eating gluten to have these tests show a proper DX?

Yes, it's recommended to eat the equivalent of 3-4 slices of bread for at least two months.