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Lisa

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Lisa last won the day on December 26 2018

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    North Carolina

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  1. I tried De Boles Corn Elbow Style Pasta tonight for the first time, for a cold pasta salad and it is better than the "real" pasta that I remember.

    One box of De Boles Elbow Pasta (corn pasta) - cooked and drained

    One Can of Sweet Corn - drained

    One Can of Black Beans - drained

    1/2 finely chopped Onion

    One diced ham steak (Smithfield)

    Kraft Ranch Dressing

    Salt-Pepper-Crushed Red Pepper - Ground Italian Seasonings

    It is delicious and only to be better tomorrow. It is GREAT PASTA! ... Thought I'd Share :D:D:D

    PS - ooops, add a "w" on the end of elbo_.

  2. I used to work at Dairy Queen and I thought that y'all like to know that, even tho their soft serve is gluten-free, we used to practice making cones (that little DQ swirly thing is hard to master) and then dump the ice cream back into the machine. I don't know if all DQs do that, but you may want to ask to avoid CC.

    --Heather

    oooh, shutter the thought! :o

    I know that I will check with my local DQ!

  3. Being as I'm new to this disease, I've been on the no gluten diet for a month now and feel the same as before <_< . The wierd thing for me is, besides the "foggyness" and being dizzy and light headed is, my face and mostly my lips are numb most of the time. Has anyone had that?

    I also need a sleeping pill each night, or I don't sleep very long.

    So how long have you been on the diet before you started feeling "normal" again??

    Hey Mr. Cool:

    Welcome to this site. You will find some great information here.

    No...It seems to me that something is going on because you should be feeling some improvement after a months time.

    Do you have a dedicated toaster, cutting boards, new wooded spoons and check your scratched pots and pans. Gluten can hide everywhere. Have you check your toiletries and medicines or vitamins? Every thing that gets near or in your mouth is suspect for gluten. I have found that it is nearly impossible to be 100% gluten free in the beginning. The learning curve is way too steep. With time and a crash course, you can achieve 100% (or darn close).

    It is also recommended that newbies to the diet eliminate dairy for a time until healing can begin. Then you can re-introduce it.

    I hope you begin feeling better soon.

  4. i have no clue if it's because of celiac or not, but i feel like i have the chills deep down in my nerves, but it feels like a weak, sickly type of chill, yet i feel extremely sensitive to heat and have both at the same time, i can be taking a hot shower or have the heat blowing on me, yet i still have that deep shivering, but i can barely even tolerate the heat so it drives me nuts! anybody ever struggle with this? people are shocked that i don't have a fever too, because my head always feels like a burning hot fever, yet i never have one! i guess that's why i'm real sensitive to heat, because for whatever reason my body feels extremely warm and flush, which is just as uncomfortable as the cold feeling

    I'm taking a guess here, but your thyroid may be the cause for your temperature variations.

  5. Hi and welcome. Glad that you found us.

    FIRST, take a DEEP breath, relax and think about this as an exciting new beginning. :) Food allergies and gluten can reek havoc on your body and brain. We have all been there.

    Don't make meals difficult. Start simple: meats, seafood, rice. potatoes, fresh veggies and fruit. Here is a listing of companies who will list all of the eight allergens on their ingredients:

    Open Original Shared Link

    I would like to suggest that you have your itchy sores biopsied when they flair up. It could very well be DH (dermatitis herpetiformis) and can be easily tested.. DH is a confirmation of diagnosis of Celiac Disease.

    This site is a wonderful source with many people who have been where you are now. Take a walk around.

    Edit:

    You might be interested in this: https://www.celiac.com/articles/179/1/Aller...n-MD/Page1.html

  6. :o The photos that one of you sent look a lot like the rash my husband has had for some time. What do I look for in the ingredients of laundry soap? Will it just say "wheat" Do the laundry and soap makers have to identify ingredients that are a frequent cause of health issues like the food companies do? I tried the link that someone sent but it did not work. Does anyone know where I would get a list of soaps, detergents, etc that are gluten free or a list of those to avoid? Thanks

    Other than foods, companies do not have to disclose any allergins.

    Here is a list of thingss to look out for:

    https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

    Here is a list of companies who wil list gluten as in "wheat, barley, malt and rye":

    Open Original Shared Link

  7. You are so lucky.... I am from California too, and Arizona has Picazzos. It is sooo good. My parents live in Mesa so I head out that way every so often. They have one in Tempe, Flagstaff, and somewhere else I can't remember, but google it.

    Also, there is Joe's BBQ in Gilbert which I used to always go to when I was visiting out there prior to going gluten-free. So I recently emailed them, their BBQ sauce is gluten-free (it's Heinz based) so some of their meets are safe. I just sent them an email last week and got a response if you are interested I will post it or forward it to you.

    I am jealous.

    Scottsdale.

  8. I do not live in Arizona but I have some family there and have visited a few times since diagnosis. Phoenix should have all the major chains (Outback, P.F.Changs, PeiWei, etc.) THere is a pizza place called Picazzo's that is wonderful. And if In N Out is near you (mostly in CA and NV but I think they have branched to AZ...now waiting for them to get to TX) thats a good fast food place to eat

    Picazzo's, ummmm. I've been there once, I thought I was in heaven. :rolleyes:

  9. neesee,

    I am sorry that you are upset. As you well know, the Internet has no way to convey emotions and intent. That is why it is so hard sometimes to get your point across. We, at this site, have these dumb little emotion faces :rolleyes::(:P:unsure: that help us convey our intent.

    You have twenty years experience to share with others and that is very important. There are many, many people who frequent this site that do not have Celiac, but have issues related to gluten. We consider every one the same regarding need.

    Use your own words and join our community. We can all teach each other something. :)

  10. I don't think that we need to have a general consensus as to what we call gluten. Does it really matter?

    neesee, I would assume that you refer to gluten in a manner that your grandson could understand and most likely "rat poison" would be a little severe. How you choose to make reference, is your business. How others choose, would be their choice.

    I would hate to see an insignificant topic become and unfriendly issue.

  11. While visiting family recently, I had dinner at Fat's Asia Bistro. If you're from the Sacramento area at all, it's part of the Frank Fat line of restaurants. I'm always afraid to ask about gluten-free options, but the response I got from the server stunned me. At first she mentioned steamed vegetables being a safe option, but then she explained why many entrees may not be safe. I guess I've been looked at like I was growing a third eye so many times that it was a revelation for someone to talk to me about gluten without me having to explain it.

    She then asked me how sensitive I was, because apparently there are a few dishes that many people are able to tolerate without getting sick. Since I do seem to be able to eat some food with traces of gluten, I tried the mango ginger chicken, which was good and more complex than other versions of mango chicken that I've had. The server also requested that our fried rice be made with less soy sauce in case I wanted to eat it. I appreciated that she thought of that, and was able to eat it just fine. We actually thought it tasted great that way.

    My husband and I ended up going back a few nights later for New Years Eve and would highly recommend it!

    I am happy for you that you seemed to have an enjoyable time at Fat's Asia Bistro.

    When you said that the server requested that your fried rice be made with LESS soy sauce, you really lost me. For true celiacs and those with gluten intolerances, less mean getting sick. Many here are very sensitive and the least bit of gluten or simply some cross contamination could set off a reaction that could takes a week to recover.

    I just wanted to respond to let some of the new people who frequent this site that LESS is not OK. The damage done would certainly not be worth the risk.

    Thank you :)

  12. Hello Everyone,

    This afternoon I tried looking for some gluten free soy sauce and I could not find any. I tried calling Trader Joe's, Mrs. Green's, and Whole Foods. Whole Food's said that they had a substitute called Amino's or something but not the San-J that they said they had on their list. Mrs. Green's said that they had wheat free but not gluten free soy sauce and explained that even though it is wheat free it probably has some other gluten ingredient in it. When I went to Mrs. Green's I did not find any wheat free soy sauce. I called up Kari Out and they said the nearest store that sells it is in Connecticut and I live in Yonkers, NY. I cannot believe that in Westchester County and NYC I cannot find a gluten free soy sauce. I called the Whole Foods in Union Square NYC and they said do not bother calling the other stores we have wheat but not gluten free soy sauce. The first one I called was in White Plains. Does anyone know where I can get any type of gluten free soy sauce in Westchester County or NYC?

    Maybe you're looking too hard. La Choy is gluten free and can be found almost anywhere and as you mentioned San-J Wheat Free Tamari, is gluten free.

  13. Welcome and we're glad that you found this site so informative. :)

    I am not a fan of the doctors you have been seeing. There are three ways (to date) for Celiac testing. 1. You can have an IgA Antibody Blood Panel. 2) An endoscopy/biopsy exams can confirm Celiac, but it is often hit or miss. 3) Positive dietary response could confirm Celiac or Gluten Sensitivity without an "official" diagnosis.

    Should you decide to pursue further testing it is important to remain on a full gluten diet.

    If you choose to forgo testing you can begin your gluten free diet immediately. Here you can learn how to begin. The diet is much more involved than just removing wheat from your diet. This site will be helpful.

    I hope you find your answers soon and feel free to ask away.

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