Lisa

How can you argue with success! Consider yourself Gluten Intolerant, which carries a wide spectrum. Labels aren't too important here.

If it feels good, keep it up! Congratulations

Ooops....forgot my manners, WELCOME!

Was flying out of LGA last week, running late and didn't have time to pack my own food for the flight. I figured I'd just grab an expensive airport banana. Low and behold the large cafe/market right after security has a rediculous amount of gluten-free snacks. I counted at least 10 shelves of products. Chips, cookies, bars, fruit snacks, healthy and non-healthy options. All expensive of course but an amazing selection. They even had Redbridge in the beer cooler! Too bad it was 9:30am.

Progress!

If it WAS something else, that's even scarier! That means that whenever I walk into someone's house I'm in danger. Heck, even here at my shop - if someone has just eaten a sandwich and they walk in, will I be sickened by their fumes?!!

At this point, I'd like to go live in a cave somewhere, never come in contact with "contaminated" people, never have to eat again either. Me and the cat and the guitar, living in a cave and eating dirt.

I don't think it's probable/possible that you could be sickened by the fumes of someone who just ate a sandwich. In the beginning for me, every thing freaked me out too. But, I don't think that this is physically possible.

Have you considered your cat. Is the cat's food and litter gluten free? Keep a food log.

You know, it can take up to several years to heal after the damage caused by Celiac Disease in some people. It took me a good six months to have the confidence in the diet. The learning process is large!

Now, after seven years gluten free, I do not feel that I am disabled in any way. I live a life as normal as everyone else. I just don't eat gluten. I have a normal, fulfilling life, eat in restaurants and have an active social life.

Hopefully that day will come for you.

Here's a little background. I'm hoping someone can help me put the pieces together.

I'm 31 yrs old, Female, and have Endometriosis and Hashimotos Thyroiditis. I also suffered from infertility for 3 years before conceiving my daughter via IVF.

I was just diagnosed with the thyroid disease earlier this year.

I've always had stomach issues - but there were periods of time where I didn't have any problems at all. While I was pregnant I never had problems with upset stomach.

After the birth of my daughter I started having skin issues (constant itching) insane bloating and my stomach problems returned. My Endocrinologist suggested going Gluten Free to see if that would help my problems. She never did any blood tests that I'm reading about on this forum.

I've been Gluten Free since September 27th. I've been very strict and have tried my very best to avoid cross contamination problems or "iffy" foods. Believe it or not, my stomach issues have gotten WORSE since eliminating gluten! What gives? I'm so disheartened and frustrated right now.

Is it common to have stomach troubles 3 weeks into a gluten-free diet? Is it possible my body has started detoxing all of the gluten and this is why I'm having problems? The first 2 weeks I didn't have trouble at all, but this week has been hell.

Any thoughts or suggestions are so greatly appreciated.

Hello and Welcome!

I would suggest you give up dairy along with gluten for three weeks and see if you improve. Often time, when some healing takes place, dairy can be reintroduced successfully.

I ordered oranges that were pesticide free, and when they arrived, they were the first thing I ate. Had a gluten reaction immediately afterward.

So the next day I took them all out of the box, rinsed them, washed my hands after I peeled one, and ate it as the first thing I put in my mouth that morning. Another gluten reaction.

I did this twice more before I finally got in touch with someone who tested them for gluten. The orange rind tested at 5ppm of gluten. And I was reacting to whatever low level from that rind managed to stick to my fingers or the knife as it cut into the fruit and gluten cc'd the fruit inside.

I don't doubt your illness..I can't. But I do doubt the ability of gluten strips to detect trace amounts of gluten on an orange rind and then cross "contact" to the point that one would become ill. Sound a bit extreme, to me.

Naturally gluten free produce should not be a concern for people with Celiac or gluten sensitivity. Learning the diet is difficult enough.

Thank you! I have so many Campbells products and use them for cooking often. Hopefully I will be able to find equal Progresso items that will work just as good!

Here is another link to Pacific Foods Soups:

Open Original Shared Link

Hi! I am brand-new here and just went gluten free starting yesterday. Hydrolyzed yeast protein? Is that safe? I see progresso states on their cans if they are gluten free or not. Camp bells does not and I'm curious if this is safe. I'm trying to figure out why gluten is put in so many products. This is frustrating. Thank you for any help!

Frustrating...for sure!

Not to add to your confusion but, Campbell USA and Campbell Canada have totally different gluten free products, with the USA listing very limited (if I recall almost no, if not all soups contain gluten). The Canadian listing is more extensive.

Progresso is a great company and will clearly list all forms of gluten on their ingredient listing. I love the Creamy Mushroom with a bit of cream sherry. And it's also great in casseroles.

On the home page here, there is a list of safe and unsafe ingredients.

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

Hello,

I have been getting allergy symptoms after eating gluten lately. Nasel stuffyness, sinus pressure, achy teeth, etc. When I take clariten in the morning, I do not get these symptoms.

I got tested to Celiac last year and I was told I was negative.

Can this just be an allergy to wheat or the onset of gluten Intolerance?

Welcome! And yes, it can just be a wheat allergy. What type of test did you have for Celiac?

This Thanksgiving will be my first gluten-free thanksgiving (and of i'll be spending it at my boyfriend's parents house!). They are well aware of my dietary-need and want to be accomodating. i know how my family cooks thanksgiving (we don't actually stuff the turkey, we make the stuffing on the side, we make homemade mashed potatoes so there is no need to be concerned with gluten being added etc). But i'm not sure what other people do so i don't even know what to tell them to be aware of. i'm planning on contributing some of my own dishes. And I'll make mention of chicken broths, bouillions, cross contamination etc.

Any other thanksgiving tips that anyone can share? (either things to be aware of or yummy substitutions or naturally gluten free thanksgiving items).

Thanks!

I think that it's really hard for non celiac people to understand. I would bring enough sides that you can enjoy your meal. And, most people have not problem with you serving your plate first to avoid cross contamination.

You said you were planning on contributing. Bring some rice or sweet potato casserole, vegetables...countless gluten free options. Rather than disrupting possible family traditions (like stuffed turkey), I would bring my own personal mini-me turkey - a cornish hen. I did that once and it was a big hit amongst the little kids. And if you bring enough for you to eat and share with others, it relieves the hostess of tremendous stress.

Please take note that this thread originated in 2006. Product information changed.

And yes, as Gemini and others have stated, Olive Oil should not be a concern for those with gluten concerns.

Here is a list of "regular" food products that can be found at any supermarket:

Open Original Shared Link

I've found it very helpful for my own son, who has celiac.

rose, this listing said it was last updated in 2005. Most like, inaccurate at this time.

Eliminating gluten from your diet can be very complicated. All gluten must be removed to see if a dietary improvement can be marked.

Cosmetics, lotions, lipsticks/lip balms and shared kitchen ware as in toasters, condiments with double dipping (a shared jar of mayo or peanut butter). I don't think that I have found a medicine, that had gluten, but yes...also a consideration.

It took me months before I had the "diet" down and felt 100% confident.

As mentioned, continue to consume gluten until all possible testing is done.

Have your allergist test you for DH, it is closely associated with Celiac Diease:

Open Original Shared Link

Has anyone used any of the grocery store shopping guides? There are a couple of them out there. One is put out by some kind of marketplace, and I saw a couple of others.

My son just learn he has to leave gluten behind, so he is new to the diet. The problem is he is a college student so he will be on his own with this shortly, more or less. We will try to learn as much as we can before he goes.

I was thinking the shopping guide would be pretty useful when he grocery shops. BUT are they reliable? Has anyone used them?

YES, perfect for your son's situation. Eventually he will (or needs to) learn to read labels, but a grocery guide will do in the mean time. And both are as reliable as it gets. If the need arises, they will send you e-mails regarding a product change. I like that.

I would recommend two:

www.CeceliasMarketplace.com

www.triumphdining.com (Grocery Guide)

Both publish annual issues.

I didn't say that I had an issue with distilled alcohol or canola oil... only that other people who post here say that they do.

I have no idea if it is "true" or not, but who am I to disagree with their experiences?

The internet if full of information. Some accurate and some not. You have to pick and choose what applies to you and your situation. Same here on this site.

Celiac Disease carries over 200 symptoms. None of us have the same blue print. Take the information that you find here and fine tune it to make your life more comfortable, and disregard the rest.

In a word, "yes." Any level of atrophy in the villi is highly indicative of celiac disease. While other causes are possible, they are rare. If symptoms resolve on the gluten-free diet, then you have your answer.

Yes, yes...I agree with Peter! There are other possibilities of blunted villi, but coupled with the symptoms, it appears that gluten may be a good indicator.

Do you have a family history of digestive issues? The tenancy can be a heredity.

Before you explore a gluten free diet, I would re-test for a full blood test. There are now new tests that are more accurate than in the past.

Here is some information:

Open Original Shared Link

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.

No, no...not a silly question at all.

Many people here have been diagnosed with Celiac as a secondary issue. Although gluten can not be attributed to all our issues, it can play a part - large or small. That part varies widely amongst us.

But, to answer your question, I have a minimal reaction to exposure after six years of being gluten free, 24 hours later.

I think we will try both gluten-free and dairy free for a while and then challenge them one at a time. I truly hope that solves the problem. I must admit the fact that it bothers me that he seemed to be fine before I started all this gluten-free business. I know it was a path we needed to go down though.

He might have had an issue with oats all along. Since you eliminated the gluten, the oat spoke up....know what I mean?

You might find that dairy is the issue. Often time, dairy can be introduced with no issue. I would give it a month or two, though.

Consider turning our entire house hold gluten free. It will be much easier on you in the long run.

You sound like you're an informed mom...good luck to you and your babies.

There are more details in my siggy, but my oldest son (age 6) has significant risk factors for celiac disease. He has never been prone to diarrhea. However, we put him on a gluten-free diet for 10 weeks this summer. He had one accidental exposure to a trace amount of gluten without issue, and then started back on oats a week before gluten without problems. The day after we re-introduced gluten, he had horrific violent diarrhea. This continued for the 2 1/2 weeks that he stayed on gluten. We took him back OFF gluten a week ago (keeping him on oats since he didn't react to it before), and he is still having horrible diarrhea. This is a kid who rarely had diarrhea before going gluten-free. Shouldn't it be out of his system after a week? Do I need to try taking him off oats? I have trouble believing it's total coincidence since he's rarely had diarrhea before in his life, and this has now been continual for almost 4 weeks. I'm so puzzled! Thoughts?

Four weeks is a looong time for a six year old to have diarrhea . I would take him off oats and revisit everything. Diary might be an issues as well.

Make certain that he is hydrated. Is he under a doctors care at this time?

I don't have a definite answer for you, but I personally would stay away from any bbq but my own. My husband and I bought a new bbq last year when we bought our house - no glutenous substance has touched the grill, and none ever will.

I have no idea if "burning off" gluten from a bbq grill would work, but I doubt it given some people have sensitivities to some distilled alcohols made from gluten-containing grains, and canola oil due to crop rotation with wheat, etc etc.

For me, it would never be worth the risk.

A good cleaning and a good burn off and a good cleaning again...most likely would render a grill safe.

Distilled vinegar on the grill, field contamination with canola oil is a REALLY great stretch with no substantiation.

Clean it well and enjoy!

Hi all,

I would like to know what people in this forum think about Enterolab and its unique way to test for Gluten reactions ??

I understand they don't rule out Celiac , So can their test be used to diagnose Celiac ??

Thanks.

No, their tests cannot diagnose Celiac. They can, as they profess, determine a sensitivity for various things/foods. I will disclose that I have never used them, and am not 100% confident in their work. Others, here are quite satisfied.

They do offer a gene test that can tell you if you have the a variety of genes ASSOCIATED with Celiac Disease. Although, 1/3 of the general population carry those designated genes and will never develop Celiac.

Often time, testing through Endo will be an additional piece of the puzzle after years of testing/symptoms/frustration. I respect that Endolabs has a place.

If you are new to gluten intolerance, a Celiac Blood Panel, endoscopy and positive dietary response can also be diagnostic.

You are smart to ask questions. Just one persons opinion....for what it's worth.

I was reading a post by someone who saw the vinegar manufacturing process on Modern Marvels. They said that after the mixture is distilled, a grain based mixture is then added to help ferment and there is absolutely NO distillation after it's added so whatever was in the mixture that was added is also in the final product.

If that mixture contains gluten...

Perhaps what you read was MALT Vinegar. Malt Vinegar is not gluten free. All others are considered safe for most people with Celiac to consume.

Yeah there are some good points you made there, i suppose it doesnt matter whether there is science there is not if you feel it just do it, i do really feel allot better since i stopped eating dairy and gluten so i will continue, my appetite seems to have balanced itself now, good news. I think the main thing that i achieved from all my posts so far is a bad reputation haha. Good to see also that you have had some good results from the stuff your doing, keep it up .

HEY! Keep an open mind...take time to walk around this site....and take it all in. Everyone can learn new things.

I have found a loose association to gluten issues so I know I'm on the right path. But wow wish it wasn't so hard!

I would strongly suggest you get tested. Hopefully, your symptoms have not disrupted your life as much as many of us. A diagnosis of a gluten free diet, with no pills, no surgery and only a diet change to regain health again....is something to be grateful about.

Unaddressed Celiac disease can cause some life-threatening issues. Please be proactive and seek testing.

What would be a reason to fast?

Hi all -

Love this forum. I am just at the start of suspecting serious gluten and or wheat allergy issues. I just have birth last year to twins and since then have begun to piece together a wierd pattern. I'm hoping someone can point me in the right direction in how to proceed or at least recognize similar symptoms.

First, I've have always been mega bloated while eating a high carb diet. I've always reported "feeling amazing" and clear headed on a Atkins type program but could never sustain my weight loss. Recently I've noticed my whole mood worsens if I eat pasta, bread or bagels. Its as of I cant keep a clear head - which is tough with twins and a three year old at home.

I developed a strange allergy to the cold - so bad that if I pull out a bag of frozen peas from the freezer my hands are instantly covered in hives. I had to finally come to terms with the fact that I've had diarrhea for four to give months now.

Ive been tested 3 times for parasites because I eat a lot of sushi but all came back negative. And finally I notice that if I eat pasta or bread etc. My stomach becomes massively distended like a pregnant belly. My stomach issues have become horrendous and my only relief is to eat veggies and protein.

But the problem is with the kids and stress I cheat all the time - it's second nature to eat what I make them.

I went to an allergist 2 years ago who laughed off my food concerns - at the time I was in great shape for a 40 year old mom. But I do recall being told as a teenager I had a wheat allergy but my parents did nothing about it and I just kept dieting eating salads and them giving into massive cravings for carbs and sweets - regained it all over and over.

Where should I go now given these symptoms? Should i just go to an allergist or do my symptoms warrant w closer look at celiac disease? My husband knows of a good gastro doctor - what tests should ask for? Any guidance is appreciated - I'm rather short on time and need to take care of my health for the sake of my children.

Thanks in advance

Welcome Arilou!

It makes me so angry when I hear of doctors brushing people off. You have found a great place here. Read as much as you can and go into your next doctor's appointment armed with facts and confidence.

Many times Celiac Disease can be "triggered" by birth events, stress, mono or other issues. Your story is not uncommon.

You already know that you have a history of issues with wheat. Whether it has progressed to the point that you have developed Celiac, will have to be determined through testing. Never the less, you either have a gluten allergy, gluten sensitivity or Celiac Disease. All remedied by a total gluten free diet.

Below is some information on testing. But, do not begin a gluten free diet, until all testing is finished. The test results may not be as accurate as you may want.

Open Original Shared Link

A gastro doctor would be more desirable and request a FULL Celiac Serologic Panel.