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Lisa

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Lisa last won the day on December 26 2018

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  1. Where do they list their policy on labeling gluten? Is it on the web anywhere, or does one have to get in touch with them for it? It's nice to hear that they do that - we need more of that! - but I couldn't find the information anywhere when I was looking, so I'd love to be able to link to it if it's available. :)

    Taken from their Website: (under FAQ)

    Some of the people in my family have food intolerances & food allergies, can you tell me which food allergens are in your products?

    Our product formulations and ingredients change from time to time; therefore we do not have a list which identifies specific sources of allergens or gluten in our products. If our ingredients contain even trace amounts of peanuts, tree nuts, sesame, milk, eggs, fish, soy, sulfites or wheat (and ingredients that may contain gluten), it will be stated on the label.

    However, in the unlikely event that you cannot determine whether or not a product contains the ingredient in question, we suggest you do not use it.

    For more specific information about the ingredients used in our products or other information you find on the packaging, please call our toll free Consumer Contact Centre at 1-800-565-7273 and they will be pleased to assist you.

  2. I honestly don't, but if it has nuts, that ups the chances it can be CC. The parent company, unilever, also has no information or listed policy on gluten in any of their products on their main website (not a good sign). They did say, however, that you can ask them about gluten, if you list the product in question and the country where you bought it. And the link is broken. :-(

    I'd drop it, honestly.

    Unilever does not have gluten free lists. The DO label all sources of gluten on their ingredient listing, or allergy warning. They are one of the great, reliable companies.

    If wheat, barley, malt or rye is not on the label....it's free of gluten. ;)

  3. Going gluten free is not for wimps. It's hard and it's often a mystery.

    I would suggest that you write down every thing that touches your mouth, including kisses.....new meds, new shampoo, new lotions, new lipstick...bla, bla...

    You might not know what's zapping you, but try going back to simple, clear and clean. (ie. no processed foods, clear shampoo, revisit meds/vits. And take a second or third look at what's new in your life.

    AND, your are wonderful! I smoked for over 30 years, and quit four years ago. You are a cooler person for not smoking. I know I'm cool. :P

  4. You really don't think so?

    i used to play hockey but had to retire at the age of 28 cause i messed up my back, hate running like raq ball but dont play much. i luv skiing and am going this weekend. i also love to weight train but had to stop cause i found that it was exacerbating my upper GI problems, which is REALLY pissing me off cause i am 15 lbs underweight and cant put the pounds on by eating alone.

    Heck Yeah! Do you live in a neighborhood where you can run, or go to a jogging path or a gym. Fresh air and outside is great. It motivates you to do other good and healthy things, like the domino effect. (I know, cold wave at the moment)

    It's time to think about a New Year's Resolution. Get healthy by good food and good exercise. FIND YOUR PASSION! :D

  5. I have a friend who questioned my PCP's recommendation to give myself B12 shots monthly, and to take 50,000 IUs of Vitamin D. She is quite vehement that if I am now going gluten-free, my gut should be healing, and I should now start to absorb the vitamins normally. No need for supplementation. I did not dare tell her that my B12 reading since I started giving myself the shots is wayyy high. I am not that concerned since I have not been able to find any data confirming the danger of too much B12.

    But what are people's thoughts here on vitamin mega dosages? Why do we need them if indeed we are healing?

    Plumbago

    Well, at the time of my diagnosis, I was walking into walls. I could not walk a straight line. So glad I didn't get pulled over, while I was trying to figure out where I was drive, while stopping at green lights and moving forward on red....scary times. :unsure:

    My point being, is that it takes some time to destroy your ability to absorb "fuel". It thus, will take time to put the system back. Critical organs depend on the proper nutrition. The longer you go without the proper mix, the higher the change of long term issues.

    With my weekly B-12 short, I joined the world of the living. I do believe that you release

    any excess B-12. Your body takes what it needs and expels the rest... I think

    Once, you master the diet (and it can take months), you can reduce or eliminate your supplements. Your body will let you know. Listen well. ;)

  6. Thanks to everyone who replied. Thanks for the recommendations. I don't really prepare food directly on the countertops either. The reason though, that I need a good cleaner is to wipe away other people's gluten.

    Thanks again.

    Any good cleaner will do. A bleach cleaner won't kill the gluten, but rather a good spray to dislodge any stuck gluten, like 409 or....

  7. Welcome to the Club trk!

    Unfortunately, it's a life long commitment. But, after you get over the initial shock, it gets so much easier. And we are here to help young along this new road you travel.

    Everyone is welcome. There are no stupid questions, because everyone here has been in your shoes. Please ask away. This is the best source you can find and good people who will guide you along your road.

  8. The problem with Rice Krispies is malt, which is barley. If you live in the US, maltodextrin should be safe. And if wheat was used, it would have to say so on the label although it's such a highly processed ingredient that it would be gluten-free. To be sure, I just looked it up in Celiac Disease: A Hidden Epidemic by Dr. Peter Green, which is an excellent book. Hope this helps.

    Super answer sa! ;)

  9. Hmm...yeah, you are probably right, and that's probably a stupid question, but you never know! The idea of just spreading gluten all around as I otherwise do my utmost to avoid it just drove me to the telephone and stayed on hold for forever. They told me that no it does not contain gluten. I guess one reason I asked was that there was some discussion about dish liquids containing gluten.

    Basically, just being extra sure!

    Thanks.

    No problem with being extra sure! :)

  10. ok thanks for the responses.... I did notice on McDonalds website that the oil does have wheat protein in it so how are their fries safe? I haven't had them since I read that and would love to get them given they have a dedicated fryer and the oil is safe.

    The wheat protein is processed out, and tested to a level that is considered safe for people with Celiac to consume.

  11. Yes, there is some research that links cold sores or mouth ulsers to Celiac....now, to put my finger on it? :huh:

    From PubMED:

    Aphthae are seen in patients with hematinic deficiency (iron, folate, or vitamin B12); celiac disease; Crohn's disease; HIV infection, neutropenia, and other immunodeficiencies. The mouth ulcers in Behçet's syndrome are often major aphthae with frequent episodes and long duration to healing

    Diagnosis of aphthae is based on the patient's history and clinical features because specific tests are unavailable. A full blood chemistry (hemoglobin level, differential white cell count, and red cell indices), iron levels, and possibly red cell folate and serum vitamin B12 measurements, and other investigations may help exclude systemic disorders. Biopsy is rarely indicated.

  12. I was going to mail some food ahead of me so I wouldn't have to run to the store as soon as we got off the flight...Is there anything that I can't get there that I may be able to get here? I know I can find Udi's.

    THanks for your help!!

    Kate

    Open Original Shared Link

    Call a head and they can hook you up. They come highly recommended by Laura and Lisa. ;)

  13. The first offenders I'd be looking at would be the almonds (biggest processing CC risk), then the craisins (I don't know them specifically, but many dried fruit has CC issues), then the pudding (only because it's got some extra additives, if it's flavored and gluten free).

    The worst gluten reaction I ever had was to pistachios, actually - same as you, I figured they'd be safe, but woah....BAD reaction. My daughter and I both were very ill, yuck.

    Good luck - hope that your reaction passes quickly

    With due respect, do you have any substantiated evidence for your "offenders"? Many people depend on the information found here. Links or citations are welcome.

    Many companies have been friends of people with food allergies. Ocean Spray is one of them. As always mentioned here, every one is different. But, please do your research.

    Board Rule # 5

    https://www.celiac.com/gluten-free/index.php?app=forums&module=extras&section=boardrules

    * Any claims you make here should be based on legitimate sources, or be expressed as opinion, experience, or inquiry. You should remain on topic and be consistent with the theme of the forum as a whole.

  14. I agree with Patti that the Crans are gluten free. Please check their website (Oceanspray) to verify, or 1-800-662-3263

    Not knowing how long you have been on the diet, but it's often recommended that you give up dairy products for a while, until healing can take place. It can often be re-introduced without issue.

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