Lisa

I am pretty sure I have celieacs, still waiting for the test results. I am also extremely allergic to MSG. Anyone else have similar problems. I am just getting used to eating diffeerntly although I had been on Atkins for several years there are still hidden glutens that you would have on that diet that I now can't have.

Yes, many people on this forum have issues with MSG. It's not gluten related, but it certainly can bother people.

Oh,my manners.....WELCOME!

Please remember, that if wheat is listed in "natural flavorings/flavor", it by law, must be listed if derived from a wheat source.

I would suggest you call the 1-800 number on the container or e-mail the company and verify it's gluten or gluten free status.

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***Lists can change without notice. ALWAYS read labels.

On the flip side...

Glucose is so highly processed that the offending gluten proteins are removed, rendering it gluten free. It should be safe for most people with Celiac to consume.

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wheat-based glucose syrups

Based on the FDA proposed gluten-free labeling regulation a product can be derived from a gluten-containing grain such as wheat based glucose syrup and be labeled gluten-free yet the ingredients could say glucose syrup (wheat) provided it is under 20 parts per million (ppm). This will be very confusing for patients as we teach them to avoid wheat and yet a product like glucose syrup may have no or very little residual gluten and be labeled gluten free.”

Here is a good source of information:

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This is an interesting article, in reference to the new "fad" weight loss diet:

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With a few errors....

"It's also used as a thickening agent in ketchup and ice cream. It helps ferment vinegar and alcoholic beverages. It's even in lip gloss and envelope adhesives."

Never knew thickening agent is in ketchup or ice cream....news to me (but always read the labels). No proven presence of gluten has been documented in envelope adhesives. And Vinegar and Alcohol is distilled and the offending gluten is removed, rendering it gluten free and safe for most people with Celiac to consume.

I can't tell you it's gluten free, but it is unlikely that wheat are barley would be in apple sauce. Wheat would have to be listed, by law.

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Not having a jar in my house, I have bought it frequently, after checking the label.

Methinks Jyess will fly the polar route (we did from SFO to Frankfurt) up over Reykjavik and then zoom in down before the west coast of Scotland, and it may not take her that many hours to get to Heathrow. It's not like you have to go to New Yawk, or stuff like that, she is flying around the smallest part of the globe, not the longest way .

Yes! In aeroplanes, the shortest distant between two places is not always a straight line. Looping over the North Atlantic is, in fact, the short route. Planes over the North Atlantic have NO means of control/communications. They have over five hours of non-communications. As long as they stay where they were told to be, no problem. Scary isn't it. They are given a vector and they are to remain on course (unless there is a declared emergency). Reyjavik is the nearest emergency landing destination after leaving North America.

Most planes leave the east coast in the early evening, with destinations throughout Europe. They are spaced out horizontally about 500 feet and vertically 1,000 feet.

...Are you comforted yet? BUT, they are all "sticks" and well trained and know what they are doing. Trust me!

But, I thing Jess found Nikki !

Most toothpastes are gluten free, but I use Crest. Dove shampoo contains no gluten and I also use Lubriderm lotion.

Actually there are some people who desensitize. When I went to a celiac conference this spring one of the speakers mentioned it. Here is a case study of someone who was gluten-free for 10 years, gradually introduced gluten, and was able to eat wheat again with no damage and no antibodies.

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That paper that was all over the news about a "celiac vaccine" was based on this idea.

Interesting, thanks.

just reported that if a person has celiac, it may be possible to re-introduce wheat after 'awhile'!! is this true in any way, shape or form???

I don't think that there is enough research on that. The doctor (on the Today show), said that re-introduction of wheat may be possible in very small quantities, after healing. That may be in conjunction with the 20ppm of gluten tolerated for MOST people with Celiac to consume. (Which soon will be the standard reference range in the US for labeling a product "gluten free".)

The general consensus of this forum is zero tolerance. I too have followed that advise and have given it often.

Every person with Celiac Disease is different. After over five years gluten free, I can now consume small amounts, on infrequent occasions and be totally symptom free...and I know my symptoms, and am thoroughly aware of hidden/silent damage. I consider myself in remission. I would never recommend that a fellow person with Celiac to consume gluten. I am just stating my personal experience.

Distilled vinegar is considered safe for people with celiac to consume. The process of distillation removes the offending proteins.

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3 Distilled white vinegar is safe to consume on the gluten-free diet. Vinegar is a solution made of acetic acid and flavoring materials such as apples, grapes, grain, and molasses. For example, cider vinegar is made from apple juice; malt vinegar is made from barley malt, Balsamic vinegar is made from grapes. Distilled vinegars are gluten-free because the distillation process filters out the large gluten proteins so that they do not pass through to the end product. Therefore, the finished liquid is gluten-free. Patients with celiac disease should not be concerned about distilled white vinegar or foods such as pickles, which may contain it. The exception to this rule is MALT VINEGAR, which is not distilled, and therefore is not safe to consume.

Same is true for alcohol.

Now, some super sensitives people may react, but generally, it is considered safe. And there is some very, very out dated information out there.

Oh, one more thing If vinegar is derived from wheat, it by law must be disclosed as "Vinegar (wheat), on the ingredient listing. So if you just see "vinegar", it is not wheat derived, and safe regardless of the distilling.

Yes I've been tested for a wheat allergy. I am NOT allergic to wheat. Gluten intolerance is a self diagnosis...but years of arthritis, brain fog, migraines, stomach issues, brain fog, fatigue cleared when I eliminated gluten.

I'm sorry, when you mentioned that you reintroduced wheat, I thought that was a possibility.

Well... here is some information you can ponder:

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Sometimes we need to ask questions, in order to direct members in the proper direction.

As a "self diagnosed" gluten intolerant, I would encourage you to have and endoscopy exam. With years of "stomach issues", it might be wise to rule out some potential serious issues.

Welcome!

Since you haven't gotten any satisfaction from your doctors, why not consider the gluten free diet.

You can give it a go for several weeks and see how you feel. It's not an overnight fix and it will take some dedication and time, but you may find your answer.

I was on prilosec for YEARS and no longer have that need.

If you would like some guidance, we are here to help.

Hi everyone. I am really new to this site but have been getting so much good info from it. If nothing else it helps to make me feel less crazy.

Here's my question (which I'll try to keep short and sweet) with a tiny bit of background. When I found out I was gluten intolerant back in March 2010 I was on a whole foods detox diet. After two weeks I felt amazing. I did try and add wheat back in only to get sick again, and again, and again...until I finally accepted the fact that I was gluten intolerant. Slowly I began adding other foods back in, and slowly I began feeling a little sick again.

Now I'm back on the same diet as I was in March but I can't seem to get back to feeling as good as I was then. There's always some little food reaction, mostly with joints as I try and figure out all the different things I'm sensitive to. (No wheat, wine, dairy, soy, coffee)

Two days ago I cheated and had some coffee with rice milk, and I also at out at a (gulp...) pizza place with my daughter where I had a salad.

Within 24 hours a lymph node under my right ear started swelling and became very painful. So painful that last night I finally broke down and took some advil to manage the pain. I probably haven't taken an advil in 5 months. Today I'm foggy and my stomach is bothering me. Could this be from the advil, or I'm wondering if the swollen lymph node is a food rxn and these other symptoms are just following close behind.

Has anybody else dealt with the swollen glands from eating gluten...or is advil a problem. I thought it was gluten free?

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Advil is indeed gluten free.

Have you been tested? Have you considered that you may have a gluten allergy as well as a wheat or gluten intolerance?

Ocuvite is a pill containing vitamins and nutrients

and is used to treat macular degeneration of the retina.

Likewise, I did not know that Bausch & Lomb made products other than contact lens stuff. Thank you for posting this. I'm sure it will be helpful to others. My apology for being silly.

Just for clarification since I didn't know what they are. They are vitamins not contact lense solution or eye drops. I didn't know B&L made vitamins.

Yes, I was concerned for a moment how barley could be an ingredient in contact solution???

I called the Sara Lee company today, to ask about the Hillshire Farms packaged deli meats. I was told that they offer "truth in labeling", and will always list any gluten ingredients or possible contamination on their labels.

I've eaten the Hillshire Farms turkey polska kielbasa without any problems, in fact they are a stable 'go-to' dinner item in our house. Has anyone tried the deli meats? Any problems with them? Or with other Hillshire Farms items?

Thanks!

We love Hillshire Farms Kielbasa all the time. I would suggest the pre-package deli meats, providing your read the labels. I do get confused sometimes when people use reference to deli meats, whether sliced on demand (by people ) or their deli selected, contained meats.

With contained deli meat, pre sliced, no problem as long as you read the label.

Dr. Shelia Crowe:

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Is the menu more limited than pf Changs? I'm alright with a few choices at this time, if they are very careful with CC. Thanks for the info! I'm driving in from the other side of Charlotte.

PFChangs has a HUGE menu option. They recently added some yummy beef options.

Welcome Crampy Girl!

Many of your symptoms can be attributed to Celiac Disease and it's collateral associations. Lactose intolerance, depression and anemia are all associated with Celiac Disease. I would strongly suggest that you be tested for Celiac. Here is the test to request from your doctor:

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In order for the above test to be as accurate as possible, it is important that you continue to eat gluten, until your testing is over.

I also, recommend that you have a endoscopy/biopsy exam. Anytime one has a history with digestive issues, it's wise to have some base testing and to rule out some critical conditions.

Testing is easy

Yes, this is a CYA statement. ALTHOUGH, ConAgra is one of the good companies who will clearly list all forms of gluten on their ingredients listing. As mentioned in their response, no gluten will hide in Natural Flavors or such.

Many companies will not qualify a product as being gluten free, unless it is "tested". Often times it's just not practical and cost wise, prohibited. Even a product with no gluten ingredients cannot guarantee gluten free status, unless it is tested. And the standard for what is considered "gluten free" has yet to be established in the US. Labeling a product "gluten free" is strictly voluntary currently.

Read the label of any ConAgra product and if you do not see any gluten ingredients, it should be safe to consume.

Celiac has many symptoms and can create lots of collateral damage:

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REPRODUCTIVE SYSTEM SYMPTOMS IN MALES IN CELIAC DISEASE

Disorders of organ structure and function.

* Hypogonadism

* Impotence

* Infertility

* Sperm Abnormalities

Welcome RR!

This is a great place for information or just meeting other people who walk in your shoes.

Oh, if all restaurants would be like that. Glad you had a wonderful experience.