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powerofpositivethinking

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by powerofpositivethinking

  1. so even though they were perfectly nice about it, the ob/gyn would only order the Vitamin D 25 hydroxy. they said I should really be going to my PCP for the cholesterol tests and to discuss other symptoms. I moved almost 5 years ago, and got an ob/gyn, dentist and eye doctor, but I never got a PCP close to me because they have walk in clinics, and I've...
  2. hi cyclinglady, if you don't mind me asking, what were your cholesterol levels? thanks!
  3. I love coupons, and saving money! I'm a big fan of this one website called hip2save.com, and every so often she posts deals about gluten-free items. follow the link, and you can get $2 off one Glutino product and $2 off a Udi's product. Open Original Shared Link happy saving
  4. she took the time on my very first post to bold things I should include in my symptoms list to give to my GI, and that was only the start of her help. I noticed she hadn't posted in awhile, but I thought maybe moderators rotate schedules, and she was on vacation. too bad I was wrong thank you for sharing your knowledge with others, Mushroom, and...
  5. no need to post any info on amount of biopsies, etc. since you're going to Columbia, which is awesome btw did you have any of the blood tests done? good luck, and let us know how it goes!!
  6. I hate humidity too, but the east coast is where I am i live just outside Wilmington, DE, and the location is so accessible to major cities. 40 min from Philly, 1 hr from Baltimore about 2 hours from NYC and DC, and although I've never been, Boston isn't too far by train. I'm an elementary music teacher, and there are quite a few local stores already...
  7. welcome you should ask for a complete celiac panel which consists of: DGP iga/igg TTG iga (already done) TTG igG EMA Total iga serum (already done) you produce enough iga, so that makes the result valid. i've seen it quite a few times on here that IBS really stands for "I Be Stumped" ask for the complete panel because some people...
  8. huh? unfortunately the actual suggestion to the original post did not work I had given that a try too, but Peter had to go in and fix it.
  9. i found this article on pub med Open Original Shared Link maybe I need to ask to have my slides reevaluated since there wasn't actually anything written on my report regarding Marsh scale or IELs. All it stated was, "Biopsy, duodenum: duodenal mucosa with no pathologic change; no evidence of celiac disease identified." maybe their definition...
  10. I promise I'm not a spokesperson for the magazine , but if you're interested in getting a subscription to Gluten-Free Living, Open Original Shared Link is offering a year subscription (6 issues) for $17 right now. I bought it because I paid $10 for the last issue alone, but for the autism supplement, it was well worth the money!
  11. when I was first looking into constipation issues, the gallbladder kept coming up, but I kept reading about horrific pain others would have, and I don't have that. my older sister had her gallbladder removed in the 7th or 8th grade, which is really young, but I remember her being in intense pain. I think she has a problem with gluten, but I'm just the younger...
  12. i'm so sorry you were treated that way please go find another doctor! a complete celiac blood panel is: DGP iga/igg TTG iga/igg EMA Total IgA serum-this is a control test to make sure you produce enough igA antibodies linked below is one of my favorite documents because it was written by the World Gastroenterology Association and the USA review...
  13. so glad you have an answer!! you can do this
  14. so I bought the latest issue of Gluten-Free Living last weekend, and it had an Inside Autism supplement coupled with it. I just finished reading Inside Autism, and it was great!!! Go out and buy it if you're able! I learned that Dr. Fasano is conducting an extensive study relating to autism and dietary intervention. Can't wait for those results! Also...
  15. nope, shadowicewolf, you are correct mushroom gave me the info, and here is the link to the Dr. Fasano article Open Original Shared Link it starts at the bottom of p. 42. problem is he doesn't list DGP as one of the tests because this article was from 2010
  16. thanks for all the replies! I put the monkey back. he is pretty cute, and he happens to be playing the best instrument ever I had changed it to the beach because it's almost beach season in Delaware. yay!!! No, I've never been diagnosed with Aspergers. though interestingly enough those with Aspergers and autism tend to do well in music, and...
  17. Hi Nora, Here is my info on the procedure report: "Normal duodenum bulb, 2nd portion of the duodenum, and 3rd portion of the duodenum. 8 biopsies taken." On the pathology report it reads, "Biopsy, duodenum: duodenal mucosa with no pathologic change; no evidence of celiac disease identified." that's all it lists in regards to the duodenum...
  18. Hi Caroline, thanks for the ideas! Sugar is my downfall. chocolate gives me that kick of energy, but I feel better when I just eat fruit. Currently, I am not eating dairy and gluten. I have thought about stopping grains, but I am only two months into gluten-free/df, and I want to give it a solid three month try before making any more big changes....
  19. nicole and marcus, thanks for your responses I wasn't going to send a response back to UCCDC, but I decided to anyway. If people don't ask for things, how will the medical community know there is a need for it? Here's my response: "Thanks for your response. I hope that future research leads to more definite answers of what an elevated DGP...
  20. so I sent the following e-mail back in April when I had just found out I had a negative biopsy to UCCDC, and wanted to share my questions and the responses I've received. Questions: is it possible to include in your FAQ section an answer explaining exactly what Deamidated gliadin peptides are in layman's terms? I have seen it written in very scientific...
  21. ok let me start off by saying that I am not a diva in any shape or form, no matter the sound of this post. I just want to lay it all out I am thankful to never have had terrible acne so far in my life, but when I do get a few pimples, they just don't want to leave. Like a visitor that overstays its welcome the follicle gets inflamed, and stays inflamed...
  22. so glad that you found a rational doctor, and got your diagnosis!! keep moving forward sorry I can't recommend a good digestive enzyme. Waiting to get my vitamin levels checked in may and june before I add anything else in. good luck!
  23. i'm glad you had everything written down I agree about giving someone else the control...it's hard I respect doctors and all the training they've gone through, but you are the only person that knows your own body, no matter what those labs say! Hope today is better!!
  24. I ended up buying a Water Pik after reading reviews on Amazon. I used Target's new price matching policy with the A.com price this afternoon, so I'm going to try it out tonight. I'm a little too excited about it, but if spending $45 could prevent me from spending over $1500 for another root canal/crown in the future, I see it as a great investment. Thanks...
  25. sending you positive thoughts right now! I'm sorry your appointment did not go as planned, but I like how Gemini thinks, "Tomorrow is another day!" I tend to revert back to being a little kid in a doctors office too and feeling inferior, but with the past few appointment I've gotten better. Something that is really helping me is writing out all of...
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