Jump to content

skoki-mom

Advanced Members
 View Profile  See their activity

  • Posts

    328

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by skoki-mom

  1. skoki-mom
    If your biopsy was positive, you have it. Sorry. I have it and I had no symptoms at all.
  2. skoki-mom
    Pizza was never a big deal for me, and has been the easiest thing to give up. However, don't get me going on hamburgers. God, what I wouldn't do for a burger
  3. skoki-mom
    I feel this way too, much of the time. I find I just avoid going out because I feel like a leper. I don't mind when it's just me and my BF or my immediate family, but when I'm out with a group of people, I hate doing the 20 questions with the waiter, I find it embarrasing. I may as well have flashing lights over my head that read "FREAK OF NATURE". I...
  4. skoki-mom
    Congratulations on your new job and the move to Cowtown. I think the previous posters covered most of the bases that I am aware of, anyhow. I shop at Co-Op and Amaranth and get pretty much what I need from those places. I am going to have to try out that new place, sounds interesting! Do you know what part of town you will be living in yet? I live in...
  5. skoki-mom
    I don't think you're nuts that human milk is the best nutrition for an infant. However, breast milk is a body fluid and it must be screened, or you may find you have bigger problems than you do now. Human milk banks are rare, but they exist. The Le Leche League could probably help find a suitable bank, or help set up the appropriate channels to find a...
  6. skoki-mom
    LOL! Sometimes I think a cure would be a bad thing for me! I'd probably put on about 300 lbs the first week! I don't even know where I'd start.................
  7. skoki-mom
    Kentucky Fried Chicken. I'd been eating normally for 36 years with no symptoms, so the day of my biopsy I decided I'd have a gluteny dinner for the last time and start the next day. Had a heck of a time trying to decide between the chicken dinner or the Big Crunch Sandwich. I kinda wish now I'd had the Big Crunch, lol.
  8. skoki-mom
    Well, I don't claim to speak for others, so I can't answer for JodiC. As well, after the hell that some people have gone through I would never tell they are crazy if they are self-diagnosed. However, the fact is, like it or not, research is improved by accurate statistics. Positive blood work and positive biopsies are, at least right now, the only truly...
  9. skoki-mom
    Wow!! That is awesome! I've been to the Highwood once since I was dx, they were very good and knowledgeable. The wedding is the end of May, my friend says not to worry, that they told her at SAIT they could deal with special diets. I think it's really cool, though, that they are doing a specifically gluten-free dinner!! Great for the students and would...
  10. skoki-mom
    Kin-Ick-Kin-Ick
  11. skoki-mom
    To be honest, I've pretty much given up on bread. I've tried about 3 kinds of Kinnickinnik, and except for stuffing a chicken/turkey, I can't palate them. I tried the english muffins too and thought they were gross. I was pretty sure I was giving myself a heart attack too, because the margarine kept disappearing and I had to keep adding more in order to...
  12. skoki-mom
    Your doctor is misinformed. While I do not fall into the "overweight" category, I am most definitley not underweight, and I'd sure like to shed about 20lb. I have, no doubt at all, celiac disease. My doctor told me very openly that she had never had a patient test positive for celiac disease before without having any symptoms. Not that she doubted my...
  13. skoki-mom
    Nope. Not a member. My sister is, I pilfer info off of her. I didn't hear her mention anything either, so I doubt she went.
  14. skoki-mom
    I went to a restaraunt in Kensington (Calgary) last night called "The Muse". The prices are not for the faint of heart and it is most definitley NOT a family style place. However, it was my BFs birthday and therefore a special occasion (and I had a GC ). They were very knowledgeable about celiac disease, they were able to adapt any item on the menu or...
  15. skoki-mom
    LMAO!! I wonder how long until Karen sees it........... I for one will never look at Altoids the same way.....
  16. skoki-mom
    You can nuke chocolate and butter, but you have to do it in very short increments of time and stir it a lot. If you heat/melt it too quickly, the butter will just clarify and then it's not mixed so well. It is also possible to burn chocolate in the microwave (trust me, I've done it, you think it's not melted because the squares keep their shape until you...
  17. skoki-mom
    I think salt is one of those things you develop a taste and tolerance for over the years. My ex was on a low sodium diet a number of years ago, and I cut the added salt from all my cooking. I thought it tasted really bland at first, but got used to it, and now I rarely add salt to anything. I don't salt vegetables when I cook them, I don't salt meats etc...
  18. skoki-mom
    I just shrug and say "it's not worth getting sick/dying over". I don't really know why other people care so much what we eat, or don't eat.
  19. skoki-mom
    Bread that actually tastes like bread. I'm dreaming, I know..................
  20. skoki-mom
    I had a bone density scan last summer (while I was waiting to get in for my biopsy and still eating normally) and it was normal. Interesting, since my sister was dx with celiac disease based on the fact she broke her hip last winter (at age 37) and her surgeon told her her bones were s**t.
  21. skoki-mom
    Karen, one thing I found particularily interesting about that article was the recommendation of follow up using antibody levels. My own GI told me that while antibody levels are obviously useful in diagnosis, they do not an accurate predictor of the extent of the disease. Your own results seem to show that. You have had what looks like major improvement...
  22. skoki-mom
    I entered that contest too, lol. But, I think you only win a "portion" of $2000, like $200 or something. Bet hey, anything is better than nothing. I'm still peeved they don't have K-Toos there yet.
  23. skoki-mom
    I could get away with anything, Celiac wise. I'm not a reliable source!!! I never did like beer anyhow, terribly un-Canadian of me!!! My sister is very sensitive to gluten and a number of other food additives (sulphites, MSG) and she drinks Scotch straight up without a problem.
  24. skoki-mom
    Not Vincent, but allegedly the gluten proteins are too big and are "filtered out" for lack of a better word during the distillation process. Here in Canada, vodka coolers are considered safe for people with celiac disease, so I happily indulge in my Smirnoff Ice and my Mike's Hard Lemonade on occasion. I'm not a big drinker to start with, but the playoffs...
  25. skoki-mom
    Gluten-lite, I like that! That is probably the best way to describe my kids diet around here. I fix whatever they want for breakfast or lunch (except pancakes are always gluten-free now, they like them better anyhow), but dinner is ALWAYS gluten free cuz I am not slaving over dinner I can't eat. Besides, I know for a fact the only thing their dad knows...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.