Jump to content

greenbeanie

Advanced Members
 View Profile  See their activity

  • Posts

    357

  • Joined

  • Last visited

  • Days Won

    7

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by greenbeanie

  1. greenbeanie
    We actually did get something of an answer: Her ears are structurally fine (bone conduction good, etc.), and she tested within normal range for the hearing tests when in a closed sound-proof booth. She seems to have a sound-processing issue rather than an actual hearing issue. I hadn't realized it until the audiologist started asking very specific questions...
  2. greenbeanie
    Thanks for the info, Lisa. My daughter has no other tests to compare to, but after that she started taking an adult dose of chewable Caltrate every day (which has 800IU of D3) on the recommendation of the dietitian at her GI's office, mainly for the calcium. My level was retested by a different doctor about six months after the first test and had risen significantly...
  3. greenbeanie
    Does anyone have reliable info about what the recommended D level is? I've heard wildly different things from different doctors. My daughter and I were both tested in early summer last year, at the same lab. We both spend lots of time outside. Her level was 29, and her doctor said he wants to see it much higher, to 50 at least. My level was 30, and my doctor...
  4. greenbeanie
    I think it was maybe four or five months when a little coffee started seeming okay, but I forget exactly. My lactose intolerance pretty much disappeared in the tenth month, which was wonderful (and also made coffee more enjoyable!). I've now been gluten free for just over a year, and I can drink a full cup of coffee - or even two, once in a while - with no...
  5. greenbeanie
    Are you having coffee, tea, juice, or anything else to drink in the morning that you don't drink at other times? Or taking the probiotic in the morning? If so, maybe try doing those things at another time of day, rather than with breakfast. Both coffee and tea made me sick for a while after eliminating gluten (and probably before too, though everything was...
  6. greenbeanie
    Hang in there, and so sorry for your little guy! I had to keep feeding my daughter gluten for about five months after I'd realized she almost certainly had celiac (while we were waiting to see a new doctor). Unfortunately I don't really have any useful advice about how to make it easier, other than to keep focusing on how much better it will be once you can...
  7. greenbeanie
    I haven't tried Against The Grain pizza, but I eat their rosemary baguettes all the time. I did not like them at first, but I love them now (but only toasted). They are great when sliced lengthwise and broiled with cheddar cheese on top. Or when sliced into little rounds and toasted, then topped with fresh basil, tomato, mozzarella, and balsamic vinegar....
  8. greenbeanie
    I had a sleep study a few years ago. It takes a while for them to attach all the electrodes, and it's weird to know that someone's watching you the whole night (through monitors), but aside from the awkwardness it's not bad. The hardest thing for me was that I wasn't used to sleeping on my back, but rolling over gets the wires all tangled up, so it's kind...
  9. greenbeanie
    Update: Well, it seems like the straw really might have glutened both of us. My daughter's tTG had dropped steeply in the first six months after her diagnosis, and then more slowly but significantly in the three months after that. If it had kept falling at even half of the previous rate, she should have been negative by now. Just got the results from the...
  10. greenbeanie
    Welcome to the forum! Though it is confusing to take everything in at first, if your daughter does indeed have celiac it's great to find that out sooner rather than later. It sounds like you may have caught it early on. Do you know what specific tests were run and what the reference ranges are? If you have a copy of the results and post them here, people...
  11. greenbeanie
    If you have a sympathetic allergist, you might try getting the allergist to push the primary care doctor's office for a GI referral (without waiting for the appointment). A two-minute phone call from the allergist to the other doctor might accomplish what patients/parents themselves cannot. We had a similar situation with my daughter - her old PCP kept...
  12. greenbeanie
    Idgy's in South Yarmouth, MA (Cape Cod) is entirely gluten-free. We just got back from vacation and ate there twice. The inside is small with only a handful of two-person tables, but larger groups or families could get meals to go. They have a good selection of breakfast and lunch items. Unfortunately they used latex gloves for food prep, so I was not able...
  13. greenbeanie
    The one I have now is a cal-mag-zinc vitamin with 500mg of magnesium oxide chelate. I don't know much about the ins and outs of different kinds, but I've tried several different magnesium supplements and they've all seemed to help.
  14. greenbeanie
    Has your magnesium level been checked? I had this kind of internal shaky feeling, and also hand cramps, for years. Another forum member recommended magnesium, and it made all the difference in the world. Come to find out, a blood test from when I was in the hospital years ago had showed magnesium deficiency, and the doctor hadn't even told me about it. I...
  15. greenbeanie
    I second the concern about cc from otherwise-safe foods at a potluck. In addition to the risk of dropped crumbs and shared serving spoons, you also never know how fruits and veggies were washed or cut by whoever brought them - whether the celery sticks were sliced on a contaminated wooden cutting board, whether berries or grapes were rinsed in a pasta strainer...
  16. greenbeanie
    Here are a couple sources with lists of foods that contain sulfites: Open Original Shared Link Open Original Shared Link The second one is from Canada, and I'm in the U.S., and I'm not sure if the regulations here are the same. I definitely react to foods with naturally-occurring sulfites too, not just processed foods with it added as a preservative...
  17. greenbeanie
    Thanks, Colleen. I know you are right - there's nothing to be gained by worrying about it, and I'll have the results soon enough.
  18. greenbeanie
    I'm having a colonoscopy on Friday, and I'm getting worried that something else is really wrong, in addition to the gluten problem. I'm not worried about the procedure itself, just the results. My previous doctors never referred me to a GI when the daily diarrhea, insomnia, and SI joint pain started as a teenager (22 years ago), telling me that this was...
  19. greenbeanie
    I get this after eating sulfites. It started during my gluten challenge last year and has persisted even though I've been gluten free for a year now. Last time I went to the doctor (for something totally unrelated) the nurse did a routine pulse check and asked if my heart always beat like this. I said no, but I'd eaten a couple pickled olives an hour earlier...
  20. greenbeanie
    The box I have does not say that the seed mix was processed in a shared facility with wheat - the allergen statement on the box only says it was processed with soy. The wheat statement was stamped onto the plastic seed pouch itself, inside the Go Picnic box. So it would be impossible to tell without buying it first and opening the box up. The chocolates...
  21. greenbeanie
    I realize this thread is a couple years old, but I'm wondering if anyone has recent experience with this. We've eaten a couple of the gluten-free Go Picnics with no problems - the pepperoni one with Crunchmaster crackers, and the one with a turkey stick. All of the contents of those boxes seem fine. However, we just opened the Black Bean Dip & Plantain...
  22. greenbeanie
    This was one of my scariest symptoms too (that and walking into door frames and falling down stairs for no reason), and it's gotten better with time. I forgot days of the week, the names of colleagues I'd seen every day for years, and common nouns. Alzheimer's runs in my family, so although I'm only 38 I was really terrified that I had it. After a year gluten...
  23. greenbeanie
    What is the status of "no gluten ingredients" claims? I seem to be finding conflicting information about that phrasing. At first I read the rules to mean that any form of a "no gluten" claim had to meet the new guidelines of less than 20ppm. But upon further reading it started to sound like "no gluten ingredients used" could still be used - as long as the...
  24. greenbeanie
    Desert Essence Organics fragrance-free lotion is quite thick. I've only found it at one health-food store, but you can buy it online.
  25. greenbeanie
    Thank you, LauraTX! I'll bring this info to the audiologist and ask to see an ENT too. My daughter's tTG went way down from 65 to 5 in the nine months after diagnosis (with 4+ as positive), but it's still above normal so maybe this will improve some on its own with more time. If additional things keep popping up and her local doctors can't find an explanation...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.