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greenbeanie

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Everything posted by greenbeanie

  1. greenbeanie
    My daughter is 5 and has celiac, and she takes the chewable Animal Parade multivitamin. That's seemed to agree with her the best out of all the brands we tried. We got it in a health food store, but it may be in some mainstream stores too. The dietician at her GI's office recommended giving her the adult chewable Caltrate tablet too, since she can't tolerate...
  2. greenbeanie
    I agree, Colleen - I wasn't terribly impressed with my doctor's response. Granted, I just spoke to her assistant, so maybe the doctor herself will have more to say in person...when I eventually get in to see her. I always have to wait 2-4 months for an appointment for anything, as there's a shortage of specialists in my area. The wait to get in elsewhere...
  3. greenbeanie
    Update: Well, the plot thickens. Fecal elastase was fine and my pancreas looked normal on MRI, so apparently that's not the problem. My vitamin K level was in the lowest 20% of normal, which is odd because I eat tons of green veggies and take a multivitamin with it too, but it was within range. I seem to be keeping enough in my system despite the steathorrea...
  4. greenbeanie
    I'm not sure if everything they make is gluten free, but many Badia brand spices are certified gluten free by the GFCO. I am in the U.S. and get them at Big Y supermarket, but I imagine they must be available at other places or online too.
  5. greenbeanie
    This is interesting...I hope someone finds an explanation, as I've had no luck making sense of it either. When eating gluten, my B12 was high. That wasn't terribly surprising, as I had been taking a multivitamin and/or supplementing B-complex on and off for years, so I figured it was high from the supplements. It was odd that I didn't pee out the excess B...
  6. greenbeanie
    Wooden knife block if it previously had a bread knife in it! I missed that one at first...
  7. greenbeanie
    My daughter's belly looked like that at that age (still before her diagnosis) - sometimes a bit bigger, sometimes a bit smaller. It varied a lot from day to day. Now that she's been gluten free for just over a year, it still swells up a bit when she has too much dairy, but not nearly as much as it swelled up before.
  8. greenbeanie
    My daughter had a rash like that on her bottom for pretty much her whole life, and was diagnosed with celiac (via blood tests and endoscopy) at age 4. Doctors also kept telling us it was nothing, or just extreme irritation from diapers, etc. We must've tried every brand of diapers and wipes there is - and then the rash remained after she was potty trained...
  9. greenbeanie
    No lung issues. I tested negative for cow's milk allergy. I was very lactose intolerant from my mid-teens until I'd been gluten free for about ten months, but that's much better now. It's only high-fat dairy, not high-lactose dairy, that seems to bother me. I was so used to avoiding dairy due to all the years of lactose intolerance that I don't eat much dairy...
  10. greenbeanie
    Thanks for the suggestion, but I can't imagine how I'd be getting gluten cc, as we eat very few processed foods, and almost all the grain products are either certified or from dedicated facilities. Our house is almost entirely gluten-free, with only a few packaged non-crumbly foods (chocolate with malt, etc.) that my spouse keeps in a separate cupboard and...
  11. greenbeanie
    Thanks so much, powerofpositivethinking! Reading your postings about this on other threads was tremendously helpful and was how I knew to request the elastase test. Now I just need to wait for more results to come back...patience is hard! I do hope to get other vitamin tests done at some point, especially A and E. My D was at the lower end of normal last...
  12. greenbeanie
    I have tried over the counter enzymes and they made me feel worse at first, but after that they seemed to help a little (not enough to make a big difference, though). My doctor won't give me a prescription unless tests first show that it's needed. I have been taking probiotics for about 18 months and magnesium supplements for over a year. The magnesium makes...
  13. greenbeanie
    A qualitative fecal fat test just confirmed that I still have significant malabsorption. I've been strictly gluten free for 13 months. I feel like I'm digesting things much better than at any other time in the last ten years, and after a few months gluten free my stools started sinking most of the time. But the continued sticky stools do worry me because...
  14. greenbeanie
    I don't know of anything to help it along, but my SI joint pain improved a lot after a few months gluten free. I'd had it for about 20 years, and the intensity varied but at times it was excruciating. Six cortisone shots, physical therapy, and the support belt all failed to help at all. The physical therapist actually sent me away after a few weeks because...
  15. greenbeanie
    I called, and they do indeed use wheat buns, and have wheat pasta, as well as gluten-free versions. The woman I spoke with said that all the bakery items they make there are gluten-free, but there are wheat products in the kitchen and served to customers. I suggested that this makes it misleading to advertise as having a dedicated gluten-free kitchen, since...
  16. greenbeanie
    Has anyone tried Soul Dog recently? Their older reviews are excellent, but it sounds like the business was sold a while ago (in 2013?) and I've read mixed things since then. Their online menu says they have a dedicated gluten-free kitchen, but they also have both regular and gluten-free mac & cheese on the menu, it sounds like gluten-free hot dog buns...
  17. greenbeanie
    Are you allergic to sulfites? I see from your singature that you're allergic to sulfa drugs, and though sulfites aren't quite the same, some people have trouble with both. I know that dried coconut and many coconut flours are sulfited, and my understanding is that sulfites don't have to be listed in the ingredients list if they're part of how an individual...
  18. greenbeanie
    Did your diet change at all in the six months prior to the first test? I've never had EMA tested, but I had tTG-IgA drawn twice, about a month apart. For about 15 years prior, I'd been eating gluten light. I didn't really know anything about celiac at the time, I just knew I felt sick when I ate bread and pasta, so I avoided it. Then I was completely wheat...
  19. greenbeanie
    I timed mine so that it was a time of year when I could work from home for a few weeks. I realize that not everyone has that option, but I don't know how I ever would have gotten through it otherwise. I basically got up early and didn't eat anything until after I'd worked (with a somewhat-clear head) for four or five hours. Then I ate something with gluten...
  20. greenbeanie
    I was just about to say some of the same things when I saw StephanieL's post: hummus and veggies, ricecakes or corncakes with sunbutter, applesauce, yogurt (if dairy is ok), salad with chicken, fried rice with tamari and veggies, "ants on a log" with sunbutter or cream cheese, soup in a thermos, steamed broccoli with parmesan to dip it in. My daughter was...
  21. greenbeanie
    Do you and your nephew also eat the same meal and get sick, or is it just your daughter? If it's just your daughter, is there anything else she does there that could expose her to gluten, like feed a dog treats that have gluten in them, try on Grandma's make-up, or anything like that? Cc from the food seems much more likely, but if you can't find the culprit...
  22. greenbeanie
    Newman's Own Balsamic Vinaigrette comes in individual packets. It's listed as gluten free and milk free on their allergen chart. Sugar is on the ingredients list (5th ingredient), so I'm not sure if it's considered "low sugar" or not, but it doesn't taste sweet. I've never seen the individual packets in stores, but you can buy them online. Open Original...
  23. greenbeanie
    Wow, that's a big mass you had! Interesting about lymph masses in general - that makes sense. I've been strictly gluten free for over a year, so I wouldn't expect to have active inflammation from gluten anymore, but my endoscopy last year did find inflammation in my esophagus and stomach (plus a hiatal hernia). My tongue also stayed swollen for months after...
  24. greenbeanie
    Does anyone know what it means have a biopsy of the terminal ileum (done during a colonoscopy) show a "lymphoid aggregate"? It says there's no evidence of an inflammatory bowel disease, and that this is benign and not cancerous. So I'm assuming the lymphoid aggregate is nothing too significant, but I'm curious about what it means. Could gluten cause it? ...
  25. greenbeanie
    For pre-bought bars, I second (or third?) the Enjoy Life ones. If sulfites bother you, these seem much better than most other fruit/nut/breakfast bars in that regard. They are tiny, though - perfect for kids, but it would take two to satisfy an adult.
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