LauraTX

Many hotels will bring a microwave and/or fridge to your room, as well, on request if it isn't already there.  That is, of course, if you feel comfortable using their microwave with your sensitivity.  (They should bring it sparkling clean).  If you bring along a medium sized microwaveable covered dish that will fit in their compact microwaves, you can most definitely find something at a local grocery store and whip it up.  Beans and rice comes to mind.... something I make myself when I feel lazy.  You can google and get microwave versions of a lot of dishes.  Also, depending on the space you can bring along a rice cooker, crock pot, or even get yourself a single electric burner and you can use your own pot/skillet on it.  Probably disallowed by the hotel, but no one has to know, hehe.

On our last vacation we flew, and each day for breakfast I had microwave gluten-free oatmeal and fruit, for lunch I did gopicnics and annies mac n cheese cups that you microwave.  Made popcorn... all were compact things I could shove in my suitcase.  Also, if you want something the whole family can have, find some good corn tortillas and make sandwich wraps/rollups with them that are easy to eat in the car for a lunch on the go.  But the good thing about going by car is you can take more stuff with you  

I recently researched a lot of blenders for a purchase and it seems usually you get what you pay for.  I have seen some mid line Ninja food prep blender/processor systems in the $150-$200 range, and I would think a blender would work better for what you are wanting to use it for.  But a blender that can also double as a food processor would probably have the oomph to blend light things for long periods.  

Cristiana- Use your mouse to click outside of the box that the quoted text is in, and then start typing.  You also do not have to quote someone each time you reply, you can just hit the "reply" button, people can read the post before you no problem.

Doya-  Do remember that not everything is due to Celiac or Gluten.  Have you seen a doctor about your abdominal discomfort and itching?  Especially with the nausea, it sounds like it could be the gallbladder, but without seeing a doctor and getting some imaging done, you cannot rule out a separate issue from your gluten issues. 

If you were already eating gluten-free before your biopsy, you could have had a false negative.  But you can be diagnosed with your level of inflammation and positive bloodwork,  so if you would like to share what your bloodwork said, we can get a more complete picture and see about helping you a little more.

gluten-free Philly Has come out with their comprehensive post on all the Ballparks!    

Open Original Shared Link

Adrenalin, your post is a little hard to understand.  Am I correct that you are saying you have CFS-Chronic Fatigue Syndrome also known in the UK as M.E, and that your tests for celiac disease were negative but you still feel better on a gluten-free diet?  If you are eating dominos gluten-free pizza and drinking lager, you are definitely consuming gluten.  

As far as the wheat/barley/gluten levels in a beer, because this is a Celiac forum, the only information we are able to provide you with is whether something is gluten-free or not.  Generally, Barley is one of the primary ingredients in traditional beer.  If you are sensitive to wheat or gluten, you may want to try drinking gluten-free beers.

I hope I was able to help with your question, if you post a reply or any more posts, give them a second look over for readability so we can help you more.

Petco now has gluten-free beer at each and every beer concession stand

 

What's new at your ballpark?

Yes!  We can get our gluten-free dogs drunk too!!!!

I know this is obviously auto-correct, but I am cracking up!

Edit:  Apparently the San Diego Padres actually play at petco park.  Woof Woof!   LOL

There really isn't anything to blame, Celiac just happens.  Sometimes it can be triggered by illness and life events, but as you are right, it is something other than her "paleo diet".  You can solidly blame her genetics, I guess.  The fact that it happened and she was having symptoms around the same time as her paleo dieting really only says that she was not properly following the paleo diet because it should be naturally gluten free.  However on her behalf, that diet doesn't take into account cross contamination of allergens and a lot of people aren't 100% strict on grain free when it comes to little stuff.  And of course, many people cheat on diets when they are voluntary and not medically necessary.

Also, if she ate very differently before doing the paleo diet, drastically changing your eating habits can cause GI upset when you first do it anyways.  It was possibly the irritating push she needed to go get diagnosed.  Many people don't realize they have Celiac symptoms until they go away.  And some people have very few symptoms.  I never had celiac GI symptoms, and actually got diagnosed in the first stages of Celiac disease by accident when they were looking into my gallbladder problems.  I don't get immediate GI symptoms now when I do accidentally eat gluten.  But there is still internal damage happening.  After being gluten-free for a while after diagnosis my unexplained peripheral neuropathy and slight anemia went away.  Never equated those to possible celiac until everything came together afterwards.  People like me are sometimes referred to as "Silent Celiacs".

Also, I think it is great that as a premed student you are looking into this, even if it is out of curiosity.  We need more properly informed doctors out there.  There is a lot of info on this forum and the moderators do a good job of trying to keep only verifiable information floating around.  I am sure you are already doing this, but especially in the first months of your friend adjusting to a new way of eating, be super supportive and encouraging, and have her back when she hits hard times and challenges.

Welcome, Cathy!    You know, you seem to have a wonderful head on those shoulders, you are way ahead of where most people start.  You seem to be a very wise person.  I like hearing your wording on what to say when you can't eat people's food.  I wish you the best of luck in Atlanta!  

Ah yes, Addy, Coban is what I was thinking of.  Didn't know the name.     Smart lady!

Time to change doctors.  Also, if your insurance does not require formal referrals to specialists, you can make an appointment yourself with a pedi GI and allergist.  If your insurance requires referrals you can still do this, but they will not pay for those visits.  However, probably the best route is to change her primary care doctor ASAP, because if a doctor won't listen to you on this, what else will they ignore?  Not worth messing with them for another 12+ years.   

I think you are correct about getting her tested.  Any kid who still has GI issues after following the primary care doctors recommendations should certainly see a specialist.

Ah yes good point by Addy... deli meats and ham do freeze really well.  I freeze everything since cooking for two without waste can be a challenge.

Adhesive sensitivity is definitely a real problem and not umcommon.  There are a few things you can do.  If you find out a kind of tape/bandaid that doesn't bother you, buy a ton of it and bring it to appointments and have that noted on your chart.  Also, when you get things like blood draws and they use a bandaid or make one from tape/cotton, have them wrap the tape around your arm with the sticky side out, then another layer over that so its like a little band.  For things like IV's they can use long cotton gauze, wrap it around, and then tape the gauze to itself so it is not stuck to you.  Can also use ace bandages on top of gauze- that is something you can bring yourself to a blood draw to make it easy.  There are also the kinds of bandages they use when you give blood, that are stretchy and only adhere to themselves... lots of alternatives.  But always tell every health professional about your sensitivity.  You may want to see an allergist about it, as well.

I totally understand how you feel here.  I am normally a very giving person and don't like attention to be on me.  So when people do special things for me, it sometimes makes me feel guilty and uncomfortable.  Just remember they are being genuinely nice and helpful to you, and try to teach yourself to relax and let it happen.

It may be helpful to talk with the kitchen staff, like GFinDC said.  If they put out gluten-free food next to gluten food on the hot line, they maybe could get you some from the back, or you can call in your order ahead of time and have them get it from the main container before they put it out on the line.  You can also ask them to change their policy to where gluten-free foods are together on the line away from gluten foods.  I would think your chances of success would be better there than some other places.  Also, form a friendly talking relationship with one of the head staff, and go talk to them periodically to make sure nothing has changed.

Hormel Cure 81 is really good, I think that is their premium line.  Hormel products seem to be labeled gluten-free on the label when they are, I want to say all their hams are but of course, double check.  Jones dairy farm hams are all certified gluten-free and really good, but Im not sure if they have big spiral sliced ones.  Like Addy said, it is more common to find gluten in the glaze.  

Very Interesting, Thank you for posting.

I was thinking of picking some up now that I have my gallbladder out... for when I reintroduce some foods that I couldn't eat before, especially fatty foods.  I need to look into it as well!

Woe to anyone who trusts a non-expert store clerk with health advice.

That sounds good, may need to try johnny carinos!  I think I had read they had a gluten-free menu but never heard any opinions on it.

Some doctor somewhere told me... "There is a reason it is called 'practicing medicine'- it is not an exact science."  Just think of what house does in every episode!  I bet a lot of us (myself especially included) are those weird mystery patients with all our many conditions... LOL

If you feel, in good faith, that this doctor is dangerous and should not be practicing medicine or needs remediation, you can report them to your state medical board, and they will investigate and determine if something should be corrected.  I don't think that is the case here.  Either way, given the prevalence of uninformed medical professionals about celiac disease and NCGI, you should always give someone a chance to correct themselves before doing anything else.  I think it would be a good idea to contact them, or if they are not responsive to your requests to talk to someone at the office, send a letter with information from the University of Chicago Celiac center or one of the other prominent Celiac organizations.  Outline what mistake the doctor made and give them the information they need to not do that again in the future.  

That looks like a spammer got ahold of that account to me.  Their "good" tactic on message boards is to throw a bunch of random S--- copied and pasted from random sources together to make it look like something and include links and hope people will click it.

Edit: either that or many errors made with copy/paste or drunk posting... lol

A little less often now.  I think its been  months, my doctor is going to test them when I go in may.  When you are in a flareup they will test regularly, but when not in flareup, they will test every so often.  My doctor seems to go more by how you are feeling as an indicator of control.  I suppose that is what matters the most!

I eat popcorn all the time.  I have a cheap air popper and I can make however much I want and control what goes in.  I eat a lot of bananas, lately I have been making fruit smoothies as a late night snack for the husband and I.  I am also a fan of the Snyders gluten-free pretzels.  They are one of the few direct replacement products I buy.  I buy the Van's oat bars for when I am out of the house and caught hungry.

Were you diagnosed with lupus first or celiac? Do you feel the gluten-free diet has helped your lupus? What is common variable immunodeficiency?

In 2012 I was having GI problems related to my gallbladder and GERD, and on Dec 31 I had an upper endoscopy at which they discovered an abnormal biopsy by accident.  That led to them doing bloodwork and in Jan they diagnosed celiac.  Also in Jan I was having a lot of joint problems and my doctor found a positive ANA and CRP in blood tests, sent me to a rheumatologist.  In March I was diagnosed with lupus and when they did the initial huge workup of bloodwork, they discovered I had low IgG and IgA, and sent me to an immunologist.  He diagnosed me with CVID (common variable immunodeficiency) in July.

So, 2013 sucked.  It was like bam bam bam.... lol.

Common Variable Immunodeficiency is usually something you are born with and generally found in young adulthood- usually only the very severe immunodeficiencies are found in childhood.  The IgG and IgA are types of generalized antibodies that form the basic part of your immune system.  These generally defend you before your body can make specific antibodies.  Before I got treatment, I was sick all the time and I caught everything and anything that came around.  Had recurrent sinus and respiratory infections.  Believe it or not, I had developed a severe germaphobia because my perception was that I was catching everything, and all of the sudden got this validation that I was not crazy!  I also have a reduced response to vaccines, about 60% so their solution to that is to give them over and over again.  The treatment for CVID is a medicine called IVIG (Intravaneous Immunoglobulins) which is an IV infusion I get every 4 weeks that contains mostly IgG.  It costs $15,000 per treatment. 

Thank god for health insurance. The way I budget for health care is I prepare to pay my plans out of pocket annual cap in January.  So when people complain about their $25 copay to see the doctor, it annoys me.  I also get P.O.'d when something comes to me owing zero and the worker goes "Oh you are so lucky!!!"  and then I tell them why it is zero, lol.

My celiac, lupus, and CVID are a trio of things I need to take care of together.  Autoimmune diseases are prevalent in people with CVID because the immume system basically doesn't know what to do and just goes haywire.  A lot of the lupus treatments can weaken the immune system so they have to be careful about how they treat me.  Taking care of everything together is the key to my health, if one thing is not attended to it is a recipe for failure.  The only lucky thing I have going is I am a "silent celiac" and I dont get glutening symptoms, just underlying damage and deficiencies/neuropathy.  Probably because it was caught by accident early into disease progression.  The down side to that is I don't know if I am inadvertently glutening myself so it makes me extra anal retentive, haha.

Imagine me trying to explain all that to a new doctor.  I have a printout I take with me.  LOL.