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deb-rn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by deb-rn

  1. deb-rn
    After almost 4 yrs gluten-free, I still have severe abdominal bloating, pain all over and spots of increased inflammation periodically. We are soy free, dairy free and gluten free in our house. Husband's lifelong IBS got dramatically better when he went gluten-free with me and then dairy, chocolate, coffee and soy free eventually. I have Sjogren's disease...
  2. deb-rn
    I love to bake as well. My recipes are as good or better than the non-gluten ones, so no one ever complains about eating MY food. Flour in the air will continue to fall on the counter, food sitting out, etc for some time. I wouldn't have it in my house.... period! The more you heal, the more sensitive you become to that "little bit of gluten". I found...
  3. deb-rn
    It was never tempting for me. It bothered the people sitting near me while I ate my own food more than it did me! Get a gluten-free candy bar from the vending machine... that takes the edge off! Debbie
  4. deb-rn
    I don't envy you eating gluten AT ALL! I didn't do the biopsy as I didn't want to go through the pain. I'm due for my 10yr colonoscopy next year and thought about it... but I don't have a Dr. that would be able to diagnose anything else anyway, so I'm not going to eat gluten. I have played around with my diet a bit and know there is more than just a gluten...
  5. deb-rn
    Here is my absolute favorite! Carol Fenster's Sorghum Flour Blend 1 1/2c. sorghum flour 1 1/2c. potato starch 1c. tapioca flour/starch This bakes up beautifully! I have used it 1:1 in old recipes with the standard addition of Xanthan gum too. Debbie
  6. deb-rn
    Some of the symptoms mentioned are also related to Sjogren's Disease. It often goes hand in hand with Gluten Sensitivity. I was diagnosed with it some years ago, but realized I'd had it in college. I guess it's common to have more than one autoimmune disease. My Sjogren's gives me many weird symptoms! The mouth sores, inflammation of gums, phantom pains...
  7. deb-rn
    There are also conditions that happen after having your gall bladder out some years later. I've seen it in many patients over the years. Ask your Dr. about Cholestyramine. I've seen it help many people. Debbie
  8. deb-rn
    When you are drinking, is it beer? It's got gluten in it, unless specially made and labelled as gluten-free. Some people react to the gluten/wheat in alcohol too. I take my own food when going to other people's houses. ALWAYS! If I go visit the grandchildren for a few days, I cook and take all necessary ingredients. When eating out, I don't just pick...
  9. deb-rn
    The Pillsbury Funfetti type gluten-free cake mix is excellent! No one notices it isn't regular when I put my special buttercreme frosting on it. Making them into cupcakes would make them more portable. Are you serving a whole meal, or just cocktail type foods? There is something called Cowboy Caviar that is really good with beans, corn, onion, and a vinegar...
  10. deb-rn
    I bake almost everything myself as well. I've gone through a lot of not-so-good recipes too. Trial and error is what it takes. There is almost nothing I can't make as good as before going gluten-free now. I make my own "mixes" for many things like biscuits, all purpose flour, cookies, muffins... Each takes a little different mixture of flours. My bread...
  11. deb-rn
    If you read up on Sjogren's... it's far more than dry mouth and eyes! I have regular bouts of pleuracy, muscle aches, neuropathies in various places, abnormal fingernails, pain in joints that travels around, inflammation of gums, throat and hard palate, peeling skin, dry lips, thinning hair, plantar fasciitis, bad breath... the list goes on and on! I had...
  12. deb-rn
    I was diagnosed w/ Sjogren's before I found out I was Gluten Sensitive. I was advised by my Eye Dr. to take 5,000 mg of Fish Oil daily... it helps with a lot of things! I did the Restasis for a few years... gave up on it. I no longer really saw benefit. Some days I feel like I'm looking through vaseline... I'm missing the liquid part of the tears and...
  13. deb-rn
    I don't have a definitive diagnosis as my initial blood test was negative... but after doing elimination over 2 yrs ago, I'm not going to purposely poison myself to prove anything to anybody! I couldn't force myself to eat enough gluten for long enough to prove the point! Your body told you how to start... so keep up with it. You may find more sensitivities...
  14. deb-rn
    My initial blood test was negative, but I felt better off gluten, so I diagnosed myself and got on with life. I didn't need any more convincing after I started to heal. When you are sick of being sick... it's time to take charge! I'll never go back to eating gluten. It's a way of life that's easy to get used to and better for my health in the long run...
  15. deb-rn

    ARCHIVED Vommitting

    deb-rn replied to jeslk's topic in Coping with Celiac Disease

    It seems once you heal, even a little, you react more violently after glutening. I am very careful and rarely eat out. Still, I have unexplained abdominal pain periodically. Sugar is another culprit as it feeds so many organisms. A temporary yeast overgrowth can make you feel miserable too. I've noted a correlation in my chronic pain levels when consuming...
  16. deb-rn
    My husband went gluten free with me. I would say we CAN eat 90% of what we used to eat, but then we have a garden and rarely went out to eat anyway. Looking at the Paleo posts helped me too. I have recipies that are as good or better than before! Almost anything can be duplicated. Google is your friend! We just take our own salads when going to someone...
  17. deb-rn
    We don't eat soy because of the way it is raised with ridiculous amounts of Rouond-up and it's virtually ALL GMO! Soy messes with your hormones. For men it can cause the breasts to enlarge.... for women, it can interfere with the natural hormones regulatory functions. It has been altered so much, that it is no longer fit for human consumption! Animals...
  18. deb-rn
    My husband and I are both Gluten Intolerant. I was the only 1 tested and it was negative. I declined further testing as I understand there are several tests and the best ones are sent away to a special lab... that wasn't going to happen! I didn't need further confirmation after going gluten-free for a few months. When we go to people's house to eat, I...
  19. deb-rn
    I sent you a private message. You can get through this with help... and the right recipes! Debbie
  20. deb-rn
    I wasn't positive in the initial test, didn't opt for further testing. I also have Sjogren's disease. It is VERY common to have both! THAT is where my years of mouth sores come from, I believe. I feel the same way about Fibromyalgia... to me it means you didn't care enough to dig to the bottom to find the root cause! I'm going to have a whole "syndrome...
  21. deb-rn
    I won't have further testing, no matter the results of my blood tests. I know how I felt when I went off gluten for a few days, and I won't go back... even if I have false negative tests. My Dr said there would be no reason for the biopsy if symptoms decreased with diet change! I don't need "convincing" or someone to take a biopsy every yr to see if I...
  22. deb-rn
    Hmmm I have terrible left wrist pain too... I was sent to a Rheumatologist years ago too... no RA. Amazing how this is all starting to come together! I'm expecting to feel better than I have in YEARS!! I've had back injections, knee and plantar injections! I've had restless leg syndrome... the list goes on. I used to tell people, "someday, they'll...
  23. deb-rn
    My results aren't back yet, but I KNOW what I have to do. I talked to my Dr about the upcoming results and asked if a biopsy was necessary, since my little trial really told me I don't tolerate gluten. He said that negative results are common, so if I felt better without gluten, then I didn't tolerate it! I am anxious to see what the results are, though...
  24. deb-rn
    OH my.... I feel so bad for you! Looks like you've gotten some great advice! I have felt "not well" for many years... but couldn't put my finger on it until this summer when the symptoms suddenly escalated! I see my primary Dr today to see if he wants to test me. No matter what the test says... I did my own mini test last week and it's gluten sensitivity...
  25. deb-rn
    I see my Dr today. I felt so much better when I was off gluten. I know I have to keep eating it until I'm blood tested, at least! The thought of putting that in my mouth makes me not want to eat!! Which is saying a LOT for me! I don't care if I get a diagnosis or not, but IF he wants to test me, then I have to continue to eat it. Now I realize what...
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