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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED How Long Did It Take You To Stop Hating Celiac?
tarnalberry replied to a topic in Coping with Celiac Disease
I put "one week" but I also was never angry. I wasn't relieved either, though. I never had huge symptoms, was never horridly sick, or anything like that. I think I just felt like "ok, here's another piece of data to work with, and another adaptation." There's *always* something else to adapt to in life, and while this may be a larger one if we are very... -
ARCHIVED Puget Sound: Mora's Ice Cream
tarnalberry replied to tarnalberry's topic in Gluten-Free Restaurants
The link in the original post (underlined text generally indicates a hyperlink that will take you to another website) lists their locations. In Bellevue, they are in BellSquare. -
fabulous timing! we're heading to maui in november!
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ARCHIVED Allergic Reaction Question
tarnalberry replied to Yellow Rose's topic in Parents, Friends and Loved Ones of Celiacs
As Jenny said, anaphylactic allergic responses and the autoimmune celiac responses are two different chemical processes in the body. You can have a wheat allergy that can become anaphylactic, but a true gluten intolerance on its own is not the same process and cannot cause the same immediately life threating response. -
ARCHIVED Celiac-when Family Members Refuse To Get It
tarnalberry replied to angel42's topic in Coping with Celiac Disease
Tell her "no" and move on. You do *not* need to explain yourself, as you control what goes into your mouth. You don't need her approval or permission. -
Open Original Shared Link, if you're on the west coast. Or sorbet. Or make your own.
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ARCHIVED Who Gets Angry At People Who "can't Stick To Their Diets"
tarnalberry replied to a topic in Coping with Celiac Disease
I still see food as something more than just nutrition, despite having been gluten free for four years and dairy free for three. I do recognize that it is *intended* to be just nutrition, but *can* be more. Just like clothing is intended to be nothing more than warmth and protection, but can be a fashion statement and a reflection of our own personality... -
ARCHIVED Who Gets Angry At People Who "can't Stick To Their Diets"
tarnalberry replied to a topic in Coping with Celiac Disease
honestly, I think there are some people who do not have the willpower to do it. I also think willpower is a learned skill, so I believe these people can gain the skill, but have been unwilling to do it, but at this point, they don't. it is frustrating, but I look at is as something to pity more than get angry about. -
I have thought about that, but in a case like that, I'd probably call, and find out if there were any food intolerances, and then proceed. (Or send an email or phone call, or something like that.) But it's something to be aware of - and a good thing to check on.
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ARCHIVED Gfcfsf Ice Cream
tarnalberry posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I found Open Original Shared Link at Whole Foods the other day, and gave it a whirl. Made from coconut cream, this stuff is oooo so creamy, I hardly care that I can't have dairy based ice cream. I've had the pina colada, mint chocolate, and vanilla flavors. All tasty. All addictive. All... yum! It's also pricey and has limited availability, but $6 twice... -
Available in Bellevue and Bainbridge, Open Original Shared Link is an Argentinian ice cream place that a friend of mine introduced me to. They carry gluten free ice cream cones (tapioca and rice? I recall them being CF and SF) if you don't want your ice cream in a cup. They also have a number of very tasty sorbets that are entirely CF. It's not cheap...
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The zone specifically? No. The idea of something around 30/30/40? Yes. That's what I use, percentage wise, as a goal if I'm having a lot of trouble maintaining my blood sugar levels. I do better, maintenance wise, on 25/25/50, however. But, personally, I don't like following specific, pre-planned diets. It's too restrictive and annoying to me, and...
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ARCHIVED Husband Still Doubts Dx...getting So Tired Of It!
tarnalberry replied to Sweetfudge's topic in Coping with Celiac Disease
I think part of the problem is that he's not wrong. He's not right either. We - most celiacs I've met and most of us on this board - tend to assume that if we get sick with symptoms even somewhat similar to our gluten symptoms, we must have gotten gluten. Not only can we not prove that or ever be certain of that unless we specifically, intentionally... -
balance all your meals. don't have "a small meal" that's an apple and a banana and some crackers. make sure that *every single one* of those small meals is balanced for fat/protein/carbs. yes, it can be a pain until you're well versed in nutritional value of many foods, but it makes all the difference in the world as it moderates the speed with which sugar...
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once you learn what is gluten free in any supermarket, you'll find it much easier. there actually are a lot of things, but it won't be all that tasty if you can't do a bit of cooking. canned beans and vegetables and meats - if unseasoned and unembelished - are often gluten free. (always check the labels) and rice cakes and peanut butter make a filling...
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ARCHIVED Hospital Useless! Any Ideas?
tarnalberry replied to shan's topic in Parents, Friends and Loved Ones of Celiacs
have you tried working with an OT to see if it's oral motor issues? I don't have kids, but have heard from OT's that this can be a problem sometimes. -
when I was in college, and wanted to cook my own meal (before I was celiac) but wanted to use good cookware, I got a farberware electric skillet. I'd run a cord out to the dorm courtyard, and cook outside. worked great, and you can cook almost anything in that thing.
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it sounds like blood sugar issues. what you list is very high in carbs, particularly ones that convert to sugar quickly. you may find that balancing your meals - each and every one of them, including snacks - for fat, protein, fiber, and carbs will help reduce or eliminate your symptoms. I find that at least a 25% fat, 25% protein is necessary in most...
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ARCHIVED How Long Until You Noticed A Difference?
tarnalberry replied to moozicteacher's topic in Coping with Celiac Disease
It kinda depends on how attentive you are to your own body in general. Generally, I'd say that you'd notice *some* improvement within a few days. That might be only a small change in GI symptoms, and only noticeable if you're attentive, for some people. It's easy to overlook the changes, because they can be subtle and because we've often had symptoms for... -
ARCHIVED How Long Gluten Free Before...
tarnalberry replied to lisaemtp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd wait at least two months before doing a gluten challenge, and then eating plenty of gluten (no going light on this one) for a week. As for enterolab - they say that they can detect antibodies for up to a year of being on a gluten free diet, but I probably wouldn't wait that long. -
Ok, I'll be the dissenter and say that I think you are overreacting. Each of us having celiac disease shouldn't mean that our friends and family shouldn't have their favorites, even bringing them home, unless you have a *STRICT* "no gluten in the house at all" policy. of course, if it's only been a few weeks you've been on the diet, it would be considerate...
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ARCHIVED A Little Episode This Morning...
tarnalberry replied to goldyjlox's topic in Coping with Celiac Disease
diarrhea can happen without getting gluten. and if it was just significantly looser stool, there are many other things that can quite reasonably and normally cause it. it may not have been a glutening after all, and - as you mention - you may not be able to tell. -
ARCHIVED Bob's Red Mill Millet Grits
tarnalberry replied to Mancini's topic in Gluten-Free Foods, Products, Shopping & Medications
yes, and I like 'em. (I only get them once a year, since I can only find them at a store near my in-laws, though. ) -
hotel with a kitchen, and bring your own pan and utensils. that's what I did whenever I had business travel.
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ARCHIVED So Sick! Please Help!
tarnalberry replied to skinnyminny's topic in Related Issues & Disorders
I would suggest you see your doctor. Stomach viruses can take a while to get over, but they don't often cause such extreme symptoms for so long.