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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Vaccines?
tarnalberry replied to odcdinah's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is still a good reason for vaccinations. I'm not saying that we need all the vaccinations we have. I'm not saying that the schedule doctors use is a good one. I'm not saying that there aren't side effects. (And most vaccines do not now contain thimersol, and many never did. Open Original Shared Link) I'm CERTAINLY NOT saying to go in blindly following... -
ARCHIVED Lactose In Some Of My Meds & Gfdf Diet
tarnalberry replied to terps19's topic in Gluten-Free Foods, Products, Shopping & Medications
That's not true. Dairy-free may still contain sodium caseinate, for instance, which is a casein derivative. I don't have the casein-derivative list, but if you google for it, you'll get a number of sights for milk allergies that will give you a list of the ingredients you need to avoid for a casein allergy. -
ARCHIVED Child Going Casein Free
tarnalberry replied to mart's topic in Parents, Friends and Loved Ones of Celiacs
Wild Oats has all of the nut milks listed, but they come in aesceptic boxes, and are not in the dairy case. They're in their own separate section. -
ARCHIVED How Do I Plan A Gluten Free Wedding?
tarnalberry replied to Shira's topic in Gluten-Free Restaurants
If you really want to do a gluten-free reception, I'd suggest findind either an upscale place that will cook fresh, naturally gluten-free stuff, or thinking about the gluten-free options at Buca Di Beppo. (We had our reception there, before going gluten-free. You might actually be able to serve a mixed reception there - everything gluten-free except the... -
have you broken out your spreadsheet to analyze on a per meal - not just per day - basis? that's what you're aiming for these days. the 'per sitting' distribution of macronutrients. (now, if only the nutrient database would export easily to a tab-delimited file!)
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I swear, the Nutrient Database and Excel (or your open source spreadsheet of choice ) are your friends. Keep a running total of what goes into your mouth (get a food scale if you need to), and see what levels of carbs you need to keep YOUR body happy. It's SO different person to person. Think of it like any other science experiement, unfortunately, the...
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Welcome to the board!
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ARCHIVED Spaghetti Squash Anyone?
tarnalberry replied to Cheri A's topic in Gluten-Free Recipes & Cooking Tips
Covered. Can't really steam uncovered. -
ARCHIVED "im Wheat Free... But Wheat Doesnt Bother Me"
tarnalberry replied to VydorScope's topic in Coping with Celiac Disease
that is a bit wacky. I wonder if it's like me and corn. I can deal alright with corn - but I generally avoid it in quantity. (ooo... I did eat corn chips last night. they were gluten-free, but I shouldn't eat corn chips. I made my husband move them to his 'gluten-infested' shelf. ) or maybe she's just being silly? I dunno. I'd be really curious... -
ARCHIVED It's So Hard Sitting In A Restaurant Not Being Able To Eat
tarnalberry replied to Green12's topic in Coping with Celiac Disease
they might not consider it a bother. a friend of mine, who's vegetarian, told me once that she always hated noting that she was vegetarian going over to friend's houses for dinner, being a bother with different food. but I would feel bad if someone came over and there wasn't food for them - it's not a bother at all for me to respect someone else's diet... -
ARCHIVED Old 1800 Early 1900 Newpaper Articles About Celiac
tarnalberry replied to ms-sillyak-screwed's topic in Publications & Publicity
My stomach reacts differently to underripe verus overripe bananas. Overripe bananas have too much simple sugar in them for me. -
ARCHIVED Testing And Diet Questions
tarnalberry replied to AndreaB's topic in Parents, Friends and Loved Ones of Celiacs
No, having the genes for celiac disease does not mean that you have celiac disease. The condition requires the genes (not all of which have been identified) AND requires that the genes be 'activated', which does not happen to everyone. A positive gene test only tells you that you can develop the condition (approximately 30% of the population has the most... -
ARCHIVED It's So Hard Sitting In A Restaurant Not Being Able To Eat
tarnalberry replied to Green12's topic in Coping with Celiac Disease
Actually, Italy is one of the best places to go travelling with celiac disease. There are oodles of authentic Italian recipes that they can make that are normally gluten-free. Perhaps they can make polenta for you instead. Or a traditional fish stew. Or at the least, a traditional vegetable antipasta (no pasta in antipasta's... ;-) just an appetizer)... -
ARCHIVED Child Going Casein Free
tarnalberry replied to mart's topic in Parents, Friends and Loved Ones of Celiacs
Chocolates Terra Nostra (available at Whole Foods and Wild Oats, if not other places) makes a rice-milk based Gluten-free Casein-free 'milk chocolate', as does Trader Joes. Dark chocolate is almost always casein free, and comes in varying 'strengths' for those who don't like the really bitter 92%, 84%, 72% or even 65% stuff. You can use cocoa powder with... -
ARCHIVED Spaghetti Squash Anyone?
tarnalberry replied to Cheri A's topic in Gluten-Free Recipes & Cooking Tips
Well, don't submerge it, just put enough water in the pot to steam it. It takes about 15-25 minutes, and you'll want to check once or twice to make sure there's enough water (about an inch) so it doesn't go dry at the bottom. And it won't get soggy, but it's nice to let it drain in a collander. (I generally use a sauteuse pan for this, which is about ... -
ARCHIVED Dried Fruit
tarnalberry replied to marcia24's topic in Gluten-Free Foods, Products, Shopping & Medications
As said, ALWAYS read labels. Most dried fruit is gluten free, but you'll want to check for "Manufactured in a facility that processes..." warning, and the ingredient list. Rolled dates almost always have oat flour (and, hence, are out), but most other things are usually fine. But always check. -
First, yes, the entire medical community does accept that celiac disease is definitely a real condition. There is absolutely no question that it is a real condition. The condition was identified decades ago. The genes have been isolated for the majority of cases. And the basic etilogy is known. The prevalence, presentation, and good diagnostic testing...
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ARCHIVED Lactose In Some Of My Meds & Gfdf Diet
tarnalberry replied to terps19's topic in Gluten-Free Foods, Products, Shopping & Medications
yep - lactose is milk sugar, casein is a milk protein. lactose intolerance is when you don't have an enzyme to split up the complex sugar so a bacteria in your intestines does it instead, producing gas as a by product. ('harmless', just very annoying.) casein intolerance is an IgG mediate immune response. the FDA label definition was written years ago... -
unless you're the type who isn't food of starchy vegetables and eats gobs of the other kind. (but I do mean GOBS.) I was going to ask, Vincent... what'd you have for dinner the night before? (was it enough?) and is an orange enough carbs for breakfast? that's only, 15g? 20g? something small, as I recall...
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Doctor's know that celiac disease is real. It's certainly not an issue like was the case with fibromylagia five years ago, or even now. Certainly not an issue like systemic candida. The problem is that most doctor's don't know how common it is (incidence in the general population is 1 in 133) or that it presents in such varying ways. None of that...
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ARCHIVED Not Sure If It's Coeliac Or Not...
tarnalberry replied to tiggy:)'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
From inconclusive tests, the next step is to try the gluten-free diet, strictly, for two months, and see if you notice any improvement in your symptoms. It must be followed very strictly, or it will be as though you are not trying the diet at all. But the dietary challenge is a valid diagnostic test itself. Doctor's are often reluctant to use it because... -
ARCHIVED Reliability Of Test Results?
tarnalberry replied to Tony'sMom's topic in Parents, Friends and Loved Ones of Celiacs
Try her on the gluten-free diet and see how it goes. While testing is unreliable in those under 2, testing still gets some false negatives in older children and adults. The ultimate test is how she responds to the diet. The other question, of course, is WHAT tests did they run and what were the results (numerically)? -
ARCHIVED Peduatrician Just Called...
tarnalberry replied to celiacmommy's topic in Parents, Friends and Loved Ones of Celiacs
I don't have a kid, so keep in mind that my advice may be somewhat biased, but here are my thoughts. Yes, testing is rough on a kid. But that doesn't mean that we should skip unnecessary medical procedures. It just means we have to figure out if the biopsy is necessary. You said one blood test came back positive. You don't say which one - you need... -
ARCHIVED Lactose In Some Of My Meds & Gfdf Diet
tarnalberry replied to terps19's topic in Gluten-Free Foods, Products, Shopping & Medications
"dairy free" and "milk free" does NOT mean casein free, it only means that it has less than 0.5% lactose. it tells you nothing about casein, and such foods usually DO have casein in them. (soy cheese and 'non-dairy creamer' usually say 'dairy free' but have casein or casein derivatives added to them.) ALWAYS read the ingredient list. -
ARCHIVED Spaghetti Squash Anyone?
tarnalberry replied to Cheri A's topic in Gluten-Free Recipes & Cooking Tips
You can cut it in half or quarters with a cleaver first, and then it will fit into a much shorter pan.