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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Crest Toothpastes
tarnalberry replied to Lister's topic in Gluten-Free Foods, Products, Shopping & Medications
all crest products are gluten free, according to the manufacturer. in theory deoderant shouldn't matter, but most of us like to be 'complete'. I know dove is gluten-free, do not know for sure about the others, but believe they are. (I think unilever says they'd label wheat in plain english.) some pots and pans can be cleaned. any non-stick cookware... -
ARCHIVED Newly Tested - Advice?
tarnalberry replied to marcia24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since you are scheduled for a biopsy, do NOT go gluten free until after your biopsy. You have celiac disease (since your blood test is positive) but some doctors want the biopsy since celiac is technically defined by damage to the intestines, and you 'have to see it to believe it'. Once you have th biopsy, however, you can go gluten-free immediately. ... -
I did a "forward" elimination diet. You can think of two flavors of elimination diets: 1) take one thing out of your diet for two weeks, then add it back in and see how you're feeling. 2) take almost everything out of your diet for two weeks, then add one thing back in and see how you're feeling. The first doesn't make for a very controlled test, as...
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ARCHIVED We Can Have Buttered Toast!
tarnalberry replied to penguin's topic in Gluten-Free Foods, Products, Shopping & Medications
ewwww.... nastiest flavor ever! :-P good to hear though. now I won't ever avoid them thinking "but I can't remember what flavor *wasn't* gluten free". -
ARCHIVED House Tv Show Will Feature Celiac Disease
tarnalberry replied to irish's topic in Publications & Publicity
Just to clarify (lots of people seem confused on this one), the baby died from having potassium levels that were too high. The drugs were supposed to bring them down, but they didn't because they weren't absorbed due to the previously existing (and apparently extensive) damage. One would presume, then that the drug had been administered rectally. Interestingly... -
I don't know if you can get Paxil compounded, but if weaning off slowly is needed, you might see if you can get it compounded into a liquid so that it's easier to cut the dosage slowly, but accurately. It may be more expensive, but it also sounds like getting off it successfully is important to you. :-) Good luck! :-)
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ARCHIVED Milk Substatuts
tarnalberry replied to Lister's topic in Gluten-Free Foods, Products, Shopping & Medications
you could get lactose free milk, or take lactaid (the lactase enzyme that will digest the milk sugar that your body can't digest on its own). or you could try rice milk, almost milk, or a nut milk. vance's dari-free is an option as well, based on potatoes, but you would have to mail order it. -
That's definitely an option, and if I've had problems with blood sugar, I'll do that, or I'll wake up feeling crappy. (Mind, 'load up' might only be having an egg, but I'm a 5'2", 118lb woman ;-).) Once you find a good place of stabilization in the consistency of your diet, you may (no guarantee, of course) find that you can go longer without any adverse...
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ARCHIVED Bruising? Vitamin K?
tarnalberry replied to elfkin's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Before putting her on anything, get a blood panel for the common causes of easy bruising/bleeding from her doctor. You don't want to give her extra things she doesn't need, and you want to find out what she does need. There are a number of conditions (not vitamin related) that can cause the problem as well - ranging from fairly benign to serious. Have... -
ARCHIVED Sick When Eating Anything...!
tarnalberry replied to Elizabeth-Elindel's topic in Coping with Celiac Disease
While I am not one to say "soy is bad", soy is *definitely* contraindicated with thyroid problems, particularly in quantity. You may want to either have your own, separate source of milk, or use almond or rice milk, or do without. You may also, as others on the board and myself have discovered, what to look into whether you are having reactive hypoglycemia... -
ARCHIVED Help---bulimia
tarnalberry replied to chrissy's topic in Parents, Friends and Loved Ones of Celiacs
chrissy, if you're here in seattle over the weekend, and are available and want a short break, there's a celiac walk in seattle on the morning of the 20th. I'll be there, as will others from the board. I have no experience with bulimia, but we're all here to support each other! -
ARCHIVED Color Changing Lips
tarnalberry replied to Lister's topic in Gluten-Free Foods, Products, Shopping & Medications
your lips, as they get "pre-chapped" (my name ;-) ) change colour a bit here and there - they're not the exact same color every hour of every day. as long as they're not looking blue or purple, it's unlikely to be a big problem. keep an eye on them from time to time over the next three weeks and see how they change. -
ARCHIVED Is There Are Any Any Bath Soaks For The Raging Itch?
tarnalberry replied to a topic in Dermatitis Herpetiformis
That is not true. Even vodka distilled from wheat does not have gluten in it because the distillation process simply doesn't allow a molecule as large as gluten through. (Remember being a kid, and having those toys with the holes and the blocks with pegs that fit in them? There were big holes and little holes, and big blocks and little blocks? Distillation... -
ARCHIVED Sent A Letter To A Celiac Friend....
tarnalberry replied to aikiducky's topic in Coping with Celiac Disease
Actually, this is a celiac urban myth. No company in the US has been confirmed to have gluten in the envelop adhesive, and companies who produce the glue that have been called so far have all noted that they do NOT have gluten in their adhesive. -
She can make use of the Open Original Shared Link. (Scroll down to get to potassium, as select the "W".) Top of the list: orange juice, beet greens, spinach, tomato sauce, winter squash, papaya, lentils, beans (white, pinto, kidney, etc.), sweet potato, carrot juice, potatoes, buckwheat, bananas (all are 500mg or more per serving)
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ARCHIVED Air Fresheners
tarnalberry replied to Ronnie's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't use air fresheners or perfumes... (Well, I do have two lotions that have scent in them, I checked the ingredients, the scents coming from essential oils only.) I open the windows... That's about it. :-) Sorry, not much help on this one. -
ARCHIVED Breakfast, gluten-free, Low Carb, High Protein, Ideas Needed
tarnalberry replied to VydorScope's topic in Coping with Celiac Disease
yeah... it's frustrating dealing with all that modified food! well... if you head out to wild oats, grab some yogurt starter (you can even use the low fat stuff for that), and make your own with whole milk! don't forget to grab some nuts from the regular stores too. btw, eggs taste great w/ rice cakes :-) -
That is a very common symptom of lactose intolerance.
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ARCHIVED Smart Balnce Butter - Not Df, But Cf? Huh?
tarnalberry replied to VydorScope's topic in Gluten-Free Foods, Products, Shopping & Medications
I find that, once you get used to the taste, for veggies and most other things, using canola or olive oil works fine. Canola for 'bread' baking or high heat cooking (like hot stir-fries), and olive oil other baking (vegetables/meats) and sautees. Olive oil is really surprisingly versatile if you make use of aromatics properly when using it. -
ARCHIVED Newly Diagnosed
tarnalberry replied to dionnek's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I lost the link to the study that discussed the 'pharmokinetics' of gluten in celiacs, unfortunately. But it wasn't 'it takes 10-14 days to heal. It was "the chemical reaction that damages you takes 10-14 days to run it's course", THEN you can start to heal. Basically, you're hand is over the candleflame for that long, then the candle goes out, and the... -
ARCHIVED Celiac Going Dormant
tarnalberry replied to JodiC's topic in Parents, Friends and Loved Ones of Celiacs
Yes, for many people, symptoms subside, or change dramatically (so they no longer think it's celiac) during their teens and twenties. That doesn't mean damage isn't being done, or that it isn't celiac, of course. Retesting them periodically (every few years) while they have symptoms, if they have the genes, is probably a good idea. If they don't have th... -
ARCHIVED Breakfast, gluten-free, Low Carb, High Protein, Ideas Needed
tarnalberry replied to VydorScope's topic in Coping with Celiac Disease
I keep raw almonds in my desk. They keep for quite a while, and have a good fat/protein ratio. :-) Crunchy too! -
ARCHIVED Just Ate Something With Gluten In It
tarnalberry replied to carriecraig's topic in Coping with Celiac Disease
*hugs* It will pass. It may suck at some point in the next few days, but it will pass. -
ARCHIVED New Job!
tarnalberry replied to Mahee34's topic in Gluten-Free Foods, Products, Shopping & Medications
congrats on the new job! (I'm not help on the food front. :-( )