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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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veggies are carbs, but you have to look at how much carbs they have. even a sweet pepper doesn't have that much... a whole pepper has 7g. (check the handy dandy usda nutrient database!)
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ARCHIVED Face Moisturizer
tarnalberry replied to fanny's topic in Gluten-Free Foods, Products, Shopping & Medications
aloe is good. just plain ol' aloe vera. (as pure as you can get.) 'available at the drugstore' *really* varies by drugstore - state/chain/city. (I'm a fan of alba organics, but they're stuff isn't in most drugstores, and if I had to use something every day, it'd be aloe over almost anything with chemicals. maybe vit E.) -
non-stick pans just aren't worth it. can't cook with them on very high heat (they'll release toxic fumes), can't clean them with anything abrasive in the event something does stick, can't get a good deglazed sauce... the list goes on and on. they're good for pancakes and eggs. other than that, I used hard anodized aluminum. stainless steel is another...
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ARCHIVED Lactose In Some Of My Meds & Gfdf Diet
tarnalberry replied to terps19's topic in Gluten-Free Foods, Products, Shopping & Medications
I was gluten-free for a year after recommendations from other people, a trial diet, and blood tests, still experiencing some sympjtoms (but a bit different from gluten - more constipation, slightly different stomach symptoms that would fall in the 'celiac symptom' list, but not symptoms that *I* got from gluten), and did an elmination diet to find out that... -
ARCHIVED Two More Questions
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
to answer the second question: depends entirely on your doctor. really. some doctors know about it, some don't. I brought it up to my doctor (with relatively weak evidence - weaker than yours), but she respected me and my observations about myself and my analytic abilty, so was willing to run the tests without being obviously skeptical. some have had... -
ARCHIVED Lactose In Some Of My Meds & Gfdf Diet
tarnalberry replied to terps19's topic in Gluten-Free Foods, Products, Shopping & Medications
it's a personal call. I'm Gluten-free Casein-free as well, but do not avoid the casein in pharmaceuticals that I *have* to take. pharmaceutical grade lactose is much purer than food grade lactose, and is *very* unlikely to have the dairy protein in it. additionally, casein does not cause intestinal damage (it has been medically reported to do so - it is... -
ARCHIVED To Work Or Not To Work
tarnalberry replied to dionnek's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
While I don't think the diet is that hard to adapt to if you simply stick with whole, naturally gluten-free foods (produce, meat, beans/gluten-free grains), I realize that approach doesn't work for everyone, and if you think it's the right choice for you, then maybe you should take some time off. You may find you don't need as much time as you think, to... -
ARCHIVED Do You Med Id Your Child?
tarnalberry replied to skipper30's topic in Parents, Friends and Loved Ones of Celiacs
Yes, they are two different reactions - one mediated by the IgG/IgA pathway, one by the IgE pathway. -
ARCHIVED Tinkyada Pasta
tarnalberry replied to skipper30's topic in Parents, Friends and Loved Ones of Celiacs
no kids, but I like tinkyada, and my husband's family likes it (and they're italian!). (I make my own sauces, but am CF so wouldn't make alfredo anyway...) -
ARCHIVED Cleaning A Toaster
tarnalberry replied to natalunia's topic in Gluten-Free Foods, Products, Shopping & Medications
not really. perhaps if you took it apart piece by piece (like an electrician would), but you probably would want to be an electrician in order to put it back together. btw, the toaster bags can be reused a number of times. -
ARCHIVED Im Going Crazzzzy!
tarnalberry replied to DragonQueen's topic in Introduce Yourself / Share Stuff
no, you shouldn't eat gluten again. but consider redefining 'normal' food. I serve my food to my friends when I invite them over all the time (I'm an adult, so I'm doing the cooking), and I'm Gluten-free Casein-free. Everyone loves my food, never complains about missing a thing, and asks for the recipes. Stir-fries, soups, stews, mexican food, chinese... -
The fact that you've been eating so healthy is probably what has kept you from being any more unhealthy. Your genes and some environmental trigger (from birth, to a virus, to a surgery, to stress) has given you celiac disease... and yeah, it sucks. It'll be a little easier for you to transition to a gluten-free diet because you don't rely on prepackaged...
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ARCHIVED Celebrities With Celiac?
tarnalberry replied to lauderdalehawk44's topic in Publications & Publicity
Some of us have other methods - not your methods - of spreading the word about celiac disease. One approach alone won't do it. Some of us have other causes that we choose to fight for that are just as worthy. This isn't the only one. Some of us have other volunteer activities that we choose to spend our time on instead. They are valid as well. ... -
ARCHIVED Could This Be Celiac?
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you experiment with the diet first, you will not be able to get reliable diagnostic tests from the doctor, because all available tests look for your bodies reaction to ingestion of the substance, and since the reaction occurs in the intestines, you have to wait for enough damage to occur to the intestines that the antibodies generated by the reaction can... -
ARCHIVED Are My Children At Risk
tarnalberry replied to taz sharratt's topic in Coping with Celiac Disease
lactose intolerance is genetic, but many, many, many people have it, and increasingly so as they get older. it just means that you don't produce the enzyme to break down milk sugar, and does NOT mean that you have to avoid dairy. if it's not severe, you can eat low-lactose dairy items (like hard cheeses and yogurt) or take lactase (the enzyme that breaks... -
There is more than one way to do an elimination diet - removing items one at a time and seeing if you improve is on option that would not be adding a food to your diet that you are allergic too. I still don't entirely understand your doctor's concern over the anaphylactic allergy. Partially (in that you can become allergic to something you were not previously...
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ARCHIVED Do You Med Id Your Child?
tarnalberry replied to skipper30's topic in Parents, Friends and Loved Ones of Celiacs
we've discussed it a number of times on the forum, and the general consensus is that in the case of a life-threatening emergency, only IV meds are being given, and those are gluten-free. a person isn't going to be fed real food or drugs until they are conscious, and you'd be there sooner than that anyway. celiac isn't immediately life-threatening, so... -
hmm... in something like that, I would probably go with it. my reasoning is that the 'natural flavors' is quite likely to be lime and lemon extracts, and any gluten they might be concerned about would be in distilled alcohol which would not only be distilled (and hence gluten-free) but likely from corn (because it's cheaper). (this is why knowing a little...
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gah! that sucks! hope you feel better soon!
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Welcome! Feel free to ask lots of questions, and you'll find lots of useful information buried in our myriad posts. Make sure that you've elminated all sources of gluten, including the tricky to find ones (like soy sauce, modified food starch, and so on), all sources of cross contamination (like shared collandars, cutting boards, and toasters), and...
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ARCHIVED Some General Advice Having Started Diet
tarnalberry replied to Simon's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
healing times vary greatly. I was feeling a fair amount better within a few weeks, myself, but there's nothing for it but to see how quickly (or slowly) you feel better, unfortunately. -
what comes to mind off of that is that you either had a blood sugar crash (all you had were carbs and it doesn't sound like much of even that) or were dehydrated (as you didn't talk about drinking much water or anything). are you eating enough? are you over exercising? have you had your vitamin/mineral levels checked? what blood testing have...
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I agree with elye - you're eating atkins, not hypo... need a bit more balance, but you're getting there, and I'll count it as progress. :-) hope you keep feeling better. :-)
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ARCHIVED Zithromax Oral Suspension?
tarnalberry replied to mrsnj91's topic in Gluten-Free Foods, Products, Shopping & Medications
and I have seen numerous statements, from pfizer, stating that the Z-pack IS gluten free (for celiacs). don't forget that antibiotics, on their own, can cause serious D.