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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Level Of Replacement
tarnalberry replied to IronedOut's topic in Coping with Celiac Disease
I'll have Open Original Shared Link occasionally, but I've gotten tired of them, and don't like the low amount of protein they tend to have. I do enjoy Open Original Shared Link, and they have more protein than the Larabars. I also like the Open Original Shared Link, though those are also just fruit and nuts. I've also recently found Open Original... -
ARCHIVED What Brand Of Taco Seasoning Is gluten-free?
tarnalberry replied to kathy1's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm a fan of Spice Hunter's Fajita Seasoning for things like that. -
ARCHIVED Gluten Reaction And Constipation
tarnalberry replied to jojoe72's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
While it's not so much the typical reaction these days, when I had been eating gluten continuously (before going gluten-free), I didn't get D, I got C. -
ARCHIVED Gluten Guard Software
tarnalberry replied to celiacbaby's topic in Parents, Friends and Loved Ones of Celiacs
I also found that I didn't really need anything like that. The important ingredients to steer clear of are a fairly short list, and, like Merika, I also eat a pretty unprocessed, "whole foods" diet, so it's not been much of a concern. I do keep the Silly Yaks restaurant guide on my computer, but that's about it. Do what works for you! -
ARCHIVED Member Poll - Who Abstains From Other Foods Besides Gluten?
tarnalberry replied to Jeepster's topic in Coping with Celiac Disease
So far, what I've done, after being CF for a year and a half, is to try water buffalo yogurt (as someone here recommended), and waited four days to see if I had any reaction. Then I tried goat's milk yogurt, and waited four days to see if I had any reaction. Then I tried cow's milk yogurt, and waited to see if I had any reaction. I may have had a bit of... -
ARCHIVED Dairy Free And Gluten Free?
tarnalberry replied to DragonQueen's topic in Gluten-Free Foods, Products, Shopping & Medications
As with anything, read the label. Most mayonaisses are gluten and dairy free, but I've seen one or two with dairy. There's no way you can generalize to an entire type of food that can be produced with a variety of ingredients. -
ARCHIVED What's Your Favorite Cereal?
tarnalberry replied to WGibs's topic in Gluten-Free Foods, Products, Shopping & Medications
Perky's Nutty Rice. As a bonus, it's good for making muffins too! :-) -
ARCHIVED Diagnostic Parameters?
tarnalberry replied to tuckersmommas's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You need to find out the standard ranges from the lab who did your blood work. Different labs have somewhat different methodology, and hence have different reference ranges. -
ARCHIVED Go To Asian Market
tarnalberry replied to mytummyhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
rice noodles - the thread style. good for so many things, including the fastest soup-for-dinner you've ever made from 'scratch'. (Broth, bag of small, frozen, cooked shrimp, rice noodles.) rice-paper, for making spring rolls. (you'll probably find it next to the rice noodles.) and peruse the sauces. the labeling may identify when ones are gluten... -
ARCHIVED Level Of Replacement
tarnalberry replied to IronedOut's topic in Coping with Celiac Disease
Replaced versus given up? Bread, I've mostly given up on. The sort of bread I want (homemade crunchy french bread, or fresh chewy foccacia) is the sort of thing that needs the chemical properties of gluten to make, and I'm not sufficiently happy with the alternatives. They aren't *bad* necessarily, just not what I'm looking for, so no need to bother... -
ARCHIVED Knee Pains
tarnalberry replied to danikali's topic in Gluten-Free Foods, Products, Shopping & Medications
What I primarily take is a trip to my ortho's office, followed by a trip to the physical therapist. :-P If they're still hurting, I'd urge you to have them evaluated carefully, *including* by a physical therapist. (A PT was the one who caught my *slight* pronation, which the ortho didn't expect to aggrivate my knee problems, but he was willing to try orthotics... -
ARCHIVED Ibuprofen Vs. Acetaminophen
tarnalberry replied to carriecraig's topic in Gluten-Free Foods, Products, Shopping & Medications
I take whichever one is appropriate for the situation. Ibuprofen and naproxyn sodium are good anti-inflammatories and have cox-2 effects, so I use them for inflammatory pain (tendonitis, my knees, etc.) and for cramps (the uterine pain receptors are cox-2). Tylenol wouldn't do much for these pains. For very high fever, I generally use acetominophen, though... -
ARCHIVED Getting Started
tarnalberry replied to TinaB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac can cause a lot of secondary symptoms, and until you've got the diet firmly established, it's hard to say what is and what isn't being caused by it. At least you now know for sure you need to be completely gluten-free. I would encourage you to stick to unprocessed, naturally gluten-free, whole foods (fresh fruits/veggies/meats/eggs/beans/gluten-free... -
ARCHIVED Can Biopsy Be Wrong?
tarnalberry replied to Wendyp's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You're chance of it being a false positive are incredibly low. They look for blunted villi, and though there are papers published that show a handful of cases (in the world) where dairy has caused villi blunting with a similar pattern, it's is virtually ALWAYS cased by gluten. The fact that your immunochemistry ALSO shows that your body is reacting to gluten... -
ARCHIVED Member Poll - Who Abstains From Other Foods Besides Gluten?
tarnalberry replied to Jeepster's topic in Coping with Celiac Disease
Dairy. My current testing (dietary testing) is making me thing: 1) it's primarily cow's milk that's a problem, 2) it's not as much of a problem as it used to be, and 3) this dietary testing stuff ain't so easy! ;-) -
ARCHIVED Gene Test Negative
tarnalberry replied to lonewolf's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Don't forget that these are only two of the many genes that are implicated in celiac disease. These are only the two that are known about. 1-2% of biopsy proven celiacs have neither gene, and then there's the whole spectrum of "gluten intolerance" that doesn't show up positively (easily) on biopsies. -
ARCHIVED Other Possibilities Other Than Celiac Disease.
tarnalberry replied to ggroth9's topic in Related Issues & Disorders
Blood tests and biopsies are highly likely to give false negatives if you haven't been eating significant quantities of gluten every day for three months. So you'd have to go back on that for testing. Some doctors will only give a formal diagnosis with biopsy results, and then you depend upon the samples being taken in the right place and the person reading... -
ARCHIVED Is Gluten Intolerance Forever?
tarnalberry replied to danikali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hahaha! No, I switched from bio to physics, so no bio research for me. I just think it'd be cool if "they" did that kind of research. Perhaps in a decade or so, when more gene therapy research has been done. It just seems to me a better way to go than pills that interact with the gluten. -
ARCHIVED Good Stuff
tarnalberry replied to katerinvon's topic in Parents, Friends and Loved Ones of Celiacs
That is absolutely fabulous! I'll bet no one felt deprived either! -
ARCHIVED Is Gluten Intolerance Forever?
tarnalberry replied to danikali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think that enough research has been done to give you a conclusive, scientific, evidence based answer on that. So, really, the answer is "no one knows for sure". But chances are, if it operates in a similar fashion to celiac disease, then yes. Once that gene's "turned on" and starts being expressed, it doesn't get turned off. That'd be great (and... -
ARCHIVED Bambam's Diet
tarnalberry replied to BamBam's topic in Parents, Friends and Loved Ones of Celiacs
I could most certainly be wrong, but I thought there was one variety of Ragu that had gluten? Same thing with tomatoes (like the Contadina paste with Italian spices). And you might want to stop going to that restaurant for a month to see if it makes any difference. And I also second the idea of trying to remove any foods you don't make yourself. I know... -
ARCHIVED Going On A Cruise In 2 Days
tarnalberry replied to jnifred's topic in Traveling with Celiac Disease
I know it can be tough. I'll be heading to Vail for skiing next week, and sharing a condo with a bunch of former coworkers, and will also find the food thing tricky. What I've done was pack a bag full of food (much like for backpacking, so it's small - I hope to avoid checking luggage). It's mostly stuff you've mentioned - bars, pretzles, nuts - but I... -
ARCHIVED What Should I Make
tarnalberry replied to Becky6's topic in Gluten-Free Recipes & Cooking Tips
I have to have something to fill up my time while my husband plays computer games?? :-P -
ARCHIVED Barley Grass And Wheat Grass
tarnalberry replied to lonewolf's topic in Gluten-Free Foods, Products, Shopping & Medications
you can't *know* for sure, because of the process. as the grain sprouts, it uses up the energy stores that it's been holding - that includes the protein. it appears that what it gets metabolized into (the final, fully mature blade) does not contain the same proteins. but, when dealing with things made from wheat grass, you have to ask: is the blade fully... -
ARCHIVED What Should I Make
tarnalberry replied to Becky6's topic in Gluten-Free Recipes & Cooking Tips
Tonight, I'm baking cubed turkey breast with carrots, cauliflower, potatoes, bell pepper, and onion, tossed in olive oil and seasoned with minced garlic, italian spices, and salt. Day before yesterday was chicken soup (chicken thighs, onion, carrots, brown rice, broth). The day before that was a stir-fry with shrimp, bean sprouts, sugar snap peas, chili...