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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Help! Soy?!
tarnalberry replied to chestnut's topic in Gluten-Free Foods, Products, Shopping & Medications
That's the thing - you see so many answers because there isn't just one answer. Some celiacs find that they have problems with soy, some don't. You have to figure out your answer yourself, because there's no way we can tell you. (I have seen the claim that the soy protein shows a similar sequence to the portion of wheat that bothers us, but I haven't seen... -
ARCHIVED Safe Lunch Meat?
tarnalberry replied to prana's topic in Gluten-Free Foods, Products, Shopping & Medications
Diestel and Applegate farms have prepacked deli meats that are safe. -
ARCHIVED Harry And David
tarnalberry replied to hez's topic in Gluten-Free Foods, Products, Shopping & Medications
I think those were banana muffins. If you navigate back to the recipes page off of my website from the pumpkin butter link, they might be there, I'm not sure, but there are a bunch of other recipes. I prefer pumpkin butter with quick breads - the hearty ones, but surprisingly enough, it's good on rice cakes too. And pancakes. I haven't tried it on other... -
ARCHIVED My Husband Doesn't "get It" How Do I Help Him Understand?
tarnalberry replied to chrissy's topic in Parents, Friends and Loved Ones of Celiacs
show him the research studies, the peer reviewed journal articles that demonstrate what happens in untreated celiacs. (you can find these on pubmed.com) or have him read the NIH consensus on celiac disease from their conference last year. (you can find it by googling for "NIH consensus on celiac disease") or take him to the doctor with you and have the... -
ARCHIVED How Do You 'quote' Only Part Of A Post
tarnalberry replied to nikki-uk's topic in Board/Forum Technical Help
Yep, in the entry field where you're typing your reply, and where the quote is (you'll see it surrounded by markers that tell you it's a quote, enclosed in brackets), just go in and delete the text you want to remove from the quote. -
ARCHIVED Do You Find You Miss Food You Barely Even Ate?
tarnalberry replied to jkmunchkin's topic in Coping with Celiac Disease
You can make spring rolls out of rice paper, if you want to give it a try. Raw ones out of rice paper can be tasty as well, but you can also bake or fry them. I've found rice paper at asian markets, though do check the ingredients as there's a version that has wheat flour. -
ARCHIVED Harry And David
tarnalberry replied to hez's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't tested to see how long until it gets moldy :-) but I'm sure it'll stay good at least a week. I don't use much in the way of sugar, though, and that may affect how long it stays good. As for "a while"... depends on how thin the pumpkin you start with is, and depends on how thick you want it. I usually cook it down until it's hard to keep it... -
That's a good point - it depends on your company. I work in a huge company where they have to have the resources to deal with these sorts of things for employees and in an area of it where the managers are well trained to understand that they're butt's on the line if they ignore their employees' issues. But, of course, the issues have to be approached with...
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ARCHIVED Difficulty In Coping Need Help
tarnalberry replied to sillyyak's topic in Coping with Celiac Disease
You've come to a good place for support. There are people in any of a number of stages of going gluten-free - from still being diagnosed, to having been on the diet for decades. And my condolensces on the health troubles in your family. I hope they are both getting along ok. First and foremost, celiac disease is absolutely not a death sentence. Not... -
ARCHIVED Backyard Burgers Fries Not gluten-free
tarnalberry replied to VydorScope's topic in Gluten-Free Restaurants
I didn't mean to imply the texture would be bad or have a problem without it, just that it gives it a different texture, that some people might want to highlight. I'm with you... why add it? (But I'm not a huge fan of fries, so I haven't the culinary expertise to weigh the various methods. Well, except oven baked sweet potato fries. Yum!) -
ARCHIVED Seeking Diagnosis Advice
tarnalberry replied to MarshaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I definitely agree with that. But I think it's the most important question to answer: "Do I have to follow a gluten free diet or not?" I think that question is even more important than "Do I have celiac disease?", because the latter is a subset of the former. I realize that some people find that they do need the additional specifics however. I hope the... -
Food poisoning symptoms can come on a bit faster, and fruit can be a definite carrier of that stuff. (It's happened at a number of buffets.) But contamination's always possible.
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ARCHIVED Wheat, Its Not For Dinner.
tarnalberry replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good news! You can have cake at a wedding one day. You just have to get a gluten free cake. A number of people on here have done that for their wedding. There's still plenty of stuff you can cook without gluten. Even a lot of baked goods can be made gluten free by using the right combination of gluten free flours. Check out the recipes section... -
ARCHIVED Backyard Burgers Fries Not gluten-free
tarnalberry replied to VydorScope's topic in Gluten-Free Restaurants
Texture in the final product, particularly with something that's fried, even potatoes. -
ARCHIVED How Do You Handle People Who Refuse To Recognize This Celiac Stuff?
tarnalberry replied to frustratedneicey's topic in Coping with Celiac Disease
Well, some people laugh off things they find uncomfortable. But, I would encourage you to sit down with your mom - nowhere near dinnertime - and talk to her about how her reaction to you makes you feel. Not about whether or not she can remember, not about whether or not she believes you, not about whether or not she cares - just about how her demeanor... -
Congrats!
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I would encourage you to talk to your boss about the hostile workplace the other employees are making. Not about the food - she acknowledged that she left you out, and sometimes, that's all you can get - but about the employees rude behavior. Regardless of what they are belittling you about, it's harassment, and if you've got any sort of code of conduct...
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ARCHIVED Seeking Diagnosis Advice
tarnalberry replied to MarshaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My point is that it's more than this. The genes tested for are not the only genes that cause celiac disease. There are others that aren't known (and this is known because celiac has been diagnosed in those without either gene). It's sort of like asking someone, who's half a dozen jelly beans in their hands, "do you have a red jelly bean or a green jelly... -
ARCHIVED Peanut Butter Without Any Peanuts/nuts!
tarnalberry replied to RiceGuy's topic in Gluten-Free Foods, Products, Shopping & Medications
yep, as well as almond butter and macadamia nut butter. I think I've seen hazlenut butter too (not nutella), but I don't remember where. unfortunately, nut allergic folks would want to avoid those, while they might be able to have the seed butter. (at least, that's my understanding.) -
ARCHIVED Top 5 Naturally Gluten Free Foods
tarnalberry replied to JessicaB's topic in Coping with Celiac Disease
Rice Crispies, the real stuff, is NOT gluten free. It has barley malt. -
ARCHIVED Seeking Diagnosis Advice
tarnalberry replied to MarshaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Keep in mind that genetic testing also is not fool-proof. Not all of the genes involved in celiac, or gluten intolerance as a separate entity, have been discovered, so you can't actually rule it out if you come back negative on the genetic tests. (The chance is very low - only 2% of people with biopsy determined celiac disease don't carry one of the two... -
ARCHIVED Seeking Diagnosis Advice
tarnalberry replied to MarshaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Being gluten free, or nearly gluten free, may give you false negatives on the blood test or biopsy. The medical profession sees the blood tests as the first step - a screening, with diagnosis confirmed with a positive biopsy. Like ANY medical test, these are not 100% reliable for finding any and all cases of celiac disease, but it's a pretty decent first... -
ARCHIVED Any Scuba Divers On This Forum?
tarnalberry replied to codetalker's topic in Sports and Fitness
My apologies on misleading you on the SNUBA. My research into it is five years old, and left me with a different impression. :-) When my husband and I went to Hawaii for our honeymoon, we purchased at home and brought with us our own snorkels, masks, fins, and wetsuits. (Yes, wetsuits. Yes, Hawaii. Yes, I'm glad we had them. :-P) It meant an extra... -
ARCHIVED Harry And David
tarnalberry replied to hez's topic in Gluten-Free Foods, Products, Shopping & Medications
while I don't know about that brand (though the ginger should be fine - ginger itself is gluten-free), you can make your own pumpkin butter by simmering (and frequently stirring) canned pumpkin puree with a bit of cinnamon and allspice, and brown sugar if you want it. takes a little while and you have to go low heat, but it's better than storebought. -
ARCHIVED Peanut Butter Without Any Peanuts/nuts!
tarnalberry replied to RiceGuy's topic in Gluten-Free Foods, Products, Shopping & Medications
depending on your location, and if you can handle seeds, you may be able to find sunflower butter. also a good pb sub.