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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Ladies Only....feminine Problems?
tarnalberry replied to mandigirl1's topic in Dermatitis Herpetiformis
Definitely do consider vulvodynia (but don't use an antifungal cream full time if you've got vulvodynia! that can just make you feel worse), and look into getting referrals. You may need to travel to get the appropriate care (not enough doctors know how to dx or rx these problems), but don't stick with a doctor who can't help you. -
ARCHIVED Yeast Infections And Gluten Intolerence
tarnalberry replied to danikali's topic in Related Issues & Disorders
There are a couple of very specific antifungals that they pretty much never use for vaginal yeast infections, because doctors assume it's always candida albicans (which is only true about 75% of the time, or so). The eczema isn't necessarily a bad answer, and it can occur just in that one area, but there are other vulvar problems that cause the itching... -
ARCHIVED Ladies Only....feminine Problems?
tarnalberry replied to mandigirl1's topic in Dermatitis Herpetiformis
I picked up The V Book at my local bookstore, but if you don't find it there (and don't want to ask them to order it), you can get it from Amazon. It's not a terribly difficult book to find, and the library probably has a copy as well. -
Recovery time varies a lot from person to person. No one can tell you how long it will take *you* to feel better. It could be weeks or months. As for ingredients, if you are not *certain* that it is gluten free, don't eat it. If you see "natural flavors" (and it's not like "natural raspberry flavors"), then you should call the company. When in doubt...
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ARCHIVED Yeast Infections And Gluten Intolerence
tarnalberry replied to danikali's topic in Related Issues & Disorders
Do get it cultured. Not only are there things that really do seem like yeast that aren't (or rather, there may be yeast, but it's not the primary problem) (I've dealt with this before, I know what you mean about the smell and whatnot), but if it's one of the more difficult to treat strains, you absolutely have to find out which one it is. (I have... -
ARCHIVED Yeast Infections And Gluten Intolerence
tarnalberry replied to danikali's topic in Related Issues & Disorders
Have you had the yeast cultured? There are a few strains that are resistant to most of the common antifungals, and require alternative treatment. Also, have you tried gentian violet? (Old, well respected remedy that went out of favor with the development of oral/topical antifungals - particularly since it can stain anything it touches quite purple.) ... -
ARCHIVED Reaction To Novacaine
tarnalberry replied to mandigirl1's topic in Gluten-Free Foods, Products, Shopping & Medications
It's highly unlikely it's related to celiac disease. Some people do not tolerate novacaine well, and react to it. It may well have been the adrenaline as well. You may want to be careful with novicaine in the future, however, and consider asking the dentist about alternatives. -
ARCHIVED What's Forbidden In Chicken Broth?
tarnalberry replied to terriH's topic in Gluten-Free Foods, Products, Shopping & Medications
Additionally, sometimes broth is "thickened" with modified food starch (I've seen this once), or - as in the case with Trader Joe's brand chicken broth, barley malt. (It's clearly labeled.) For ingredients that are questionable (like MFS that isn't specified what source it comes from, or HVP, you have to call the company to find out. (The exception being... -
ARCHIVED Ladies Only....feminine Problems?
tarnalberry replied to mandigirl1's topic in Dermatitis Herpetiformis
While I don't know that DH can occur on the type of skin that's found in the vulvar/vaginal area, there are a number of things that can cause that feeling. Besides a sub-clinical yeast infection, other types of infection, and irritation from soaps/detergents/products/fabrics, there can be issues with eczema, vulvodynia, and other complications. I would... -
ARCHIVED Celiac Panel Results
tarnalberry replied to lovetoeat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Total IgA is a measure of the total IgA antibodies in your blood stream. It helps determine if you're IgA deficient. Here's an analogy to explain why it's important: Someone asks you if you want a drink, you say yes, they say how much of the glass you want filled. Well... if you don't know how big the glass is, you don't know what to tell them. If... -
ARCHIVED Oats, Are They Ok To Eat?
tarnalberry replied to nobeer4me's topic in Gluten-Free Foods, Products, Shopping & Medications
I find, in substitute for oats, I need to mix a number of hot cereals together. I prefer to mix millet grits (Bob's, on their gluten-free line), with Cream of Rice, flax meal, and quinoa flakes, sometimes adding cream of buckwheat (also Bob's gluten-free line), made with vanilla almond milk, a bit of agave, and cinnamon. Adding chopped apples while cooking... -
ARCHIVED About To Have A Panic Attack
tarnalberry replied to terriH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can get mixes for a dough recipe, or you can combine flours yourself to make one. It can be tricky and take some practice, but what in life doesn't. :-) For the chinese recipes, you can find gluten-free sauces, but you have to look around. San-J makes a wheat free tamari that's gluten-free, and tasty. (La Choy soy sauce is gluten-free, but it's... -
ARCHIVED Does Iga Test For Anything Else?
tarnalberry replied to terriH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Bah!! "Mild". Might as well have the obstetrician tell someone she's "mildly pregnant". If you've got a positive, you do have to go completely 100% gluten-free, permanently. You may find that you've got less damage (less leakiness for the antibodies to get into your bloodstream) and will heal faster, but it might also not work that way for you either... -
ARCHIVED About To Have A Panic Attack
tarnalberry replied to terriH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Most recipes can be made gluten-free, and either taste the same, or nearly the same. Many, many recipes are already naturally gluten-free, including plenty of Italian ones. I believe there is a version of Swanson's broth that is *not* ok, and I don't know about Collage Inn (you may have to call the company on that one). Many bouillons are gluten-free... -
ARCHIVED Burrito Quest, Black Beans
tarnalberry replied to grantschoep's topic in Gluten-Free Foods, Products, Shopping & Medications
huh... can you post the brands of beans? I haven't come across any that have gluten in them yet. anyway, I know that Trader Joe's plain black beans are gluten-free. by the label, S&W's look gluten-free as well. -
ARCHIVED About To Have A Panic Attack
tarnalberry replied to terriH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It doesn't have to be that hard, but it depends on how you cook, how much you're willing to cook from scratch, and how much you're willing to adjust what other people are eating. Eating gluten-free is actually fairly easy if you cook from scratch and are willing to venture out into different types of food - if you rely heavily on bread/pasta/wheat. Satiety... -
ARCHIVED Is There A Safe Rice Cerial Like Rice Krispies?
tarnalberry replied to nobeer4me's topic in Gluten-Free Foods, Products, Shopping & Medications
Erewon makes Crispy Rice that is a good substitute. Can be hard to find, but it's just as tasty. -
ARCHIVED Strategies After Getting Glutened
tarnalberry replied to Heather22's topic in Coping with Celiac Disease
It's being worked on, by a number of people, in a number of places. It's HARD. First, the disease is not *that* well understood - there are a number of theories, but there isn't a "this is the key, and it's proven" bit to attack. Many approaches are being looked at, and some have not paned out. Second, lactose intolerance is a different ball game... -
ARCHIVED Finally Glutened, Lol! And In My Own Home!
tarnalberry replied to Merika's topic in Coping with Celiac Disease
Yeah, if there's food out, and there's wheat stuff out, I assume there's contamination. Sucks, and means I've got to load up my plate before anyone else, but ah well... I try to make sure people *don't* bring anything over if it's at my place, and if they did, I'd probably put it in the living room (or away from the other room) for people to help themselves... -
ARCHIVED Update: Saying Bye-bye To The Bakery...
tarnalberry replied to princessfuzzball's topic in Coping with Celiac Disease
Congrats on being able to get out of there! I hope they do follow up appropriately on the issue. -
ARCHIVED Pumpkin Pie Spice
tarnalberry replied to Jonesy's topic in Gluten-Free Foods, Products, Shopping & Medications
There is no broad answer that covers all companies. If it's a mix, or a powdered spice, you probably ought to call the company and ask. I've not heard of a company that's said they use wheat to prevent clumping in their *plain* spices and spice mixes (this is different from seasoning mixes, like "taco seasoning", in a packet, however), but "rumor has it... -
ARCHIVED Now What Do I Do?
tarnalberry replied to dawinka's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please find out what tests he ran and what the actual results were. He may be hesitant to dx you with "something so difficult to deal with" (<-- please note the sarcasm!) and be glossing over an inconclusive or "borderline positive" result. -
The studies are broad averages. They don't say that nursing will prevent anyone from getting celiac disease, they say that a handful fewer people will get celiac disease. According to the media articles I've read, it means that, rather than 100 babies who could get celiac developing it, only 50 or so (plus or minus the error of the study, which may be large...
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ARCHIVED Celiac Panel Results
tarnalberry replied to lovetoeat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm suspicious that both the IgA's game back low. He should have taken a total IgA to tell if those two tests were useful or not. Good luck with the biopsy! (Though you'll have to keep eating gluten for it. :-( ) -
ARCHIVED How Do Igg And Iga Antibodies Work?
tarnalberry replied to Jeepster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A couple articles that suggest the mechanism of damage in celiac: Open Original Shared Link (slides 60-80ish or so) Open Original Shared Link (scroll down a bit to the section on the pathogensis of celiac disease) Open Original Shared Link Open Original Shared Link All of these are pretty dense in their chemistry, however, so they are not a...