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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Diagnostic Parameters?
tarnalberry replied to tuckersmommas's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
did they do a total IgA? the tests that are low are IgA ones, and a fair (though not large) number of celiacs are IgA deficient, so you can't really tell anything about the IgA tests without knowing if you produce a normal amount of IgA otherwise. -
ARCHIVED Migraines And Worse Symptoms After gluten-free?
tarnalberry replied to Merika's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I hope he's feeling better soon! -
ARCHIVED Positive Blood Test.....
tarnalberry replied to wolfie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
the "clinical" gold standard is a biopsy. though, just two weeks of gluten won't be enough for reliable results. but you ask "do I need it?". the answer is up to you. is what you know enough to convince yourself that you should stay gluten free for life? you are the only one who has to make this decision, and if you already have doctors who support you... -
ARCHIVED Symptoms Of Malabsorbtion
tarnalberry replied to Jenn2005's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
vitamin deficiencies, osteoporosis, anemia, fatigue, weight loss - they are all signs of malabsorption. his doctor can do a test for this. -
I would encourage you to have a doctor look at it to check. The cells of the tongue can slough off, leaving it whiter (like a coating) on some days. It almost fools me that I've got thrush again. (I'm on inhaled steroids...) The white patches on the sides of the mouth and other places inside the mouth would help confirm that diagnosis. Do you brush your...
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ARCHIVED What Could This Be?
tarnalberry replied to danikali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That could still absolutely be an asthma attack. You don't have to be completely unable to breath for it not to be asthma. Classic signs of asthma attacks are *shortness of breath* not inability to breath. If you have asthma, there's a good chance that's what it was - but talk to your doctor of course. The characteristics of your asthma can change over... -
All evidence suggests that the vast majority of people - who stay completely gluten free - do eventually completely heal. That is *not* all of them. The chemical reaction that is celiac disease (reacting to the gluten and destroying the intestines) can run for a week or two itself. Then there's time needed for repair of the damage caused during that reaction...
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ARCHIVED Dry Mustard
tarnalberry replied to IronedOut's topic in Gluten-Free Foods, Products, Shopping & Medications
I have never read or heard anything that suggests dry mustard is not safe. It is merely ground mustard seeds. When in doubt, call the company. -
ARCHIVED Daughter With Depression
tarnalberry replied to Maureen's topic in Parents, Friends and Loved Ones of Celiacs
Assuming that you've checked the vitamins for hidden glutens, I would expect they'd want to regularly do tests to see if her vitamin levels are climbing like they should be. That's really the only way to know when to decrease the supplementation. -
ARCHIVED Daughter With Depression
tarnalberry replied to Maureen's topic in Parents, Friends and Loved Ones of Celiacs
One thing that pops up - you said that you're vegan. Has she been tested for vitamin deficiencies? No, I'm not saying she has to stop being vegan, I know that it is possible to get sufficient protein and nutrients in a vegan diet. But I also know that it's difficult to do so, and if she's having problems absorbing the nutrients (which the damage from celiac... -
ARCHIVED Bad Experience W/ Doctor= Please Give Me Some Guidance If You Can!
tarnalberry replied to jessika393's topic in Doctors
I don't know what that doc was doing, other than trying to take a lot of money for an expensive skin test and assuming you didn't know what you were talking about... The skin test looks for rapid onset, IgE mediated allergies. Histamine related allergies. (Histamine is what causes the swelling and redness in the area of something you're allergic to.... -
While I can see you may need to work with chefs for a while longer, you do not need to be a chef (or work with flour) to learn how to run a restaurant and develop a business plan. Much of the work beyond that will come from your own talents. So, if this is something you want to do, learn the two things you don't have to learn from a chef, while learning...
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I don't, myself. When I do get the hiccups, as it's a spasming of the diaphragm, I find that concentrating on my breathing appropriately (stretching out the breaths - something I've learned in yoga) gets rid of them quickly and reliably. Not sure that helps much with a kid, where I'd probably go with some other method of changing breathing patterns. If...
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ARCHIVED Anti-depressants?
tarnalberry replied to StrongerToday's topic in Coping with Celiac Disease
I agree - it depends on the person and why you're not doing well. Depression itself can be caused by a lot of things, and hence there are a number of different treatments. The gluten free diet may not be helping you at this point (with respect to depression - I'm not suggesting you go off it!), but you note that it was in November this happened, so I wonder... -
ARCHIVED Roasted Nuts
tarnalberry replied to danikali's topic in Gluten-Free Foods, Products, Shopping & Medications
I saw that post, but my experience does not bear it out. Yes, I have seen that the airplane nuts I've been given on southwest (both their own brand and planter's) have had wheat, but I've also seen a number I have purchased in the store not have wheat. the only ingredients in the dry roasted nuts I usually get are nuts/salt/oil. (these have been nuts from... -
ARCHIVED Roasted Nuts
tarnalberry replied to danikali's topic in Gluten-Free Foods, Products, Shopping & Medications
interesting... all the dry roasted nuts I have had have been gluten-free. have you checked with the company on the issue? -
ARCHIVED Refractory Sprue
tarnalberry replied to sillyyak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
or a separate infection - viral or bacterial. has the flu been going around your area? -
My only point, which wasn't really backing up celiacchap, was merely pointing out what could be a not uncommon misunderstanding amongst some religious people about the nature of not being religious. This coworker isn't the only one who's expressed the idea that religion is what gives us morals - and many of those people have pretty loud public voices. What...
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ARCHIVED Pregnant And Craving Cereal- Help
tarnalberry replied to michaunj's topic in Related Issues & Disorders
The cold cereals I usually have are Erewon's Crispy Rice, Perky's Nutty Rice, Health Vally Corn or Rice Crunch 'Ems, Nature's Path Mesa Sunrise or Corn Flakes. For hot cereal, it's some combination of Cream of Rice, cream of buckwheat, millet grits, quinoa flakes, or brown rice flakes, usually with either cinnamon and honey, or fruit jam mixed in. -
There are a number of things I have issue with the Catholic Church for, and don't often defend them, but you're showing the all-too-common lack of logic that is confusing correlation with causality. There are a number of reasons why the Catholic priesthood would not be a fair population distribution for statistical comparisons, but none of them are evidence...
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Interesting addendum to this one: I happen to be atheist. (Weak atheist, meaning that I don't say "I belive there is no g/God" but I do say "I don't think there is g/God; I could be wrong, but I don't think so." More of the "don't have enough evidence to say otherwise" camp if you were comparing it to research science.) My coworkers at the least know...
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ARCHIVED Gluten Free And Dairy Free
tarnalberry replied to BamBam's topic in Parents, Friends and Loved Ones of Celiacs
Condiments wise, you'll obviously want to check ingredients, but ketchup, mustard, pickles, bbq saunce, etc. are usually safe from casein (so go with the gluten-free ones you already know). Mayo (a good one) should be eggs and oil, so check the labels. Dairy is harder to give up that gluten, in my opinion, but it's still down to the basics - eat whole... -
"getting glutened" means that your immune system is again seeing gluten in your intestines, and goes through the same chemical reaction pathway that it used to when you were previously consuming gluten - and that includes generating the molecules that destroy the villi. Since you're not continueing to eat gluten, the reaction is somewhat contained, but it...
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ARCHIVED Anyone Experienced "withdrawal" Symptoms When Going Gluten Free....?
tarnalberry replied to cami's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
the use of the word addictive comes from research that suggests that, when crossing the blood-brain barrier, gluten that has entered the blood stream (or gluten antibodies, I do not remember which) and then the brain can act in a similar fashion to opiates - one quality of which is addiction. -
I've been pretty lucky with doctors and haven't had any that were *bad*. (Well, I had two, for one visit each, for an orthopaedic consult on my knee. I didn't like their approach (not western/alternative, but "bedside manner" and so on), so I found a different doctor.) My last GP was *fabulous*, and took the dietary results as an answer on celiac (and...