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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    I always find the list of chemicals used in cigarettes that are known toxins to be ... amusing in that really depressing way. I don't smoke, and try to have patience for those who do, but since it's a trigger for my asthma, I don't have a lot of patience for it. I _know_ it's addictive, but ... still no patience. (What can I say, I like to breath! And...
  2. tarnalberry
    The thing is... peanuts are legumes - not really nuts. Almonds are really nuts. They aren't a part of the same family, so there're shouldn't be a cross reactivity. (Though, if I were allergic to peanuts, I'd be careful about soy; if I were allergic to almonds, I'd be careful about all the rest of the tree nuts.) And you don't have a problem when eating...
  3. tarnalberry
    Take a look at the research articles on here and on pubmed - many of them have implicated sufficient levels of magnesium (often low in even healthy american diets) as being _more_ important than calcium levels for celiacs.
  4. tarnalberry
    The tea bag and glue issue appears to be an urban legend. I haven't had a single tea company say that they use any variety of glue or wheat in sealing their bags (the ones that look "glued" don't use "glue" actually). That's not to say no one should call on these things, but I've done a lot of calling, and none of the tea companies I've called (Republic...
  5. tarnalberry
    Congrats on three years!
  6. tarnalberry
    I've got to agree with that sentiment. Sometimes it is easier to avoid eating than get contaminated when you can't be certain about what you're having. But figureing out where it crosses the line from being "safe" to being "obsessive" is a tough one when it's something that can make you so ill! (Just sympathizing here.)
  7. tarnalberry
    That's very nice of you to care about what she eats. Unfortunately, she has to make the committment to her health for herself, or she won't necessarily stick with it. Of course, making it easier on her by doing what footwork you're willing to do may help her feel more comfortable with it. I far prefer cooking at home - it's cheapier, tastier, exactly...
  8. tarnalberry
    With those results, I'd think that I'd need to be careful to focus too much on celiac, but would probably try the diet and see how it went. This is not "doctor approved advice" and some people would disagree with it, but I'm stubborn that way. :-) The tests DO give false negatives (though not at an unusable rate), and if your doc isn't going to suggest...
  9. tarnalberry
    captain, what if (in the case of someone with diahhreah as a symptom) you use the reply "let's just say that YOU wouldn't want to have to clean up the bathroom afterwards if I got contaminated in your house." (followed up with a "knowing grin"...)
  10. tarnalberry
    One reason why doctors don't want to rely on a result from a diet is because it's completely subjective - not only can you lie about the results, but psychosomatic effects can play a role more easily than they can with laboratory tests. I'm NOT arguing that this is a GOOD reason, just noting that it is one. ;-)
  11. tarnalberry
    there currently is no US standard, and part of the food labeling law is to require a definition (standard) for the term "gluten-free" for use on labeling by, I believe, 2006.
  12. tarnalberry
    Welcome. I'm sorry you have to be here, but glad that you've found a possible answer to helping her get better! She should not go off gluten until you decide all testing is done, but you may want to talk with a well-educated ped. GI about whether or not a child so young will likely show damage on a biopsy even if she is celiac. The milk issue could be...
  13. tarnalberry

    ARCHIVED Traveling

    tarnalberry replied to u396's topic in Gluten-Free Restaurants

    I'm sure others will chime in, but wanted to note that you can bring food with you (what I do on long car trips and business travel). I'll pack things like dried fruits and nuts, rice cakes, fruit, raw veggies, and the like. (I'd pack cheese in a little lunch cooler, but I'm dairy-intolerant as well, so I can't do that any more.)
  14. tarnalberry
    Congrats! That's great progress, and a big "thank you" to him for at least paying attention to it for you!
  15. tarnalberry
    I have to echo the "you can't depend on lists, you really need to read the labels and call on any questionable ingredients" sentiment. The reason many of those lists aren't 100% accurate is three fold: the time committment in keeping them updated, the potential for frequent changes in product formulation, and the variations by country. (For instance, that...
  16. tarnalberry
    You mention he used to have a lot of wheat bran and the like... Ener-G makes a rice bran (that works well in combination with hot cerals - I mix it 1:1 with quinoa flakes) that's a good source of fiber and fat.
  17. tarnalberry
    absolutely - google will bring up the most frequented sites as a response, but that doesn't mean they cover the gamut. there are plenty of tamari's made with wheat - you've got to investigate them unless they list their ingredients.
  18. tarnalberry
    The only thing I can suggest is trying to write down ALL the foods you can think of (apples, bananas, millet, corn, avocados, coconut, chicken, fish... walk through the grocery store with a notebook if it helps) that don't violate the intolerances, and try them on him - and again after a few months if he balks the first time. (BTW, I'm curious about your...
  19. tarnalberry
    The doctor is SERVING you - he is a provider of a service. By all means, call him back, and get the full panel! Some studies have recently shown that, in labs (particularly ones that aren't as good at reading the tests) the tTg test is not nearly as accurate as it was thought to be from clinical trials. (Also, I presume you're still eating enough gluten...
  20. tarnalberry
    Recent studies have shown that commerical oats are contaminated. Most of the recent studies that show that some celiacs can have oats (that I've seen) have used lab grown/harvested/processed oats to avoid the contamination issues. I wouldn't risk it.
  21. tarnalberry
    The only trouble with relying on genetic testing is that it won't tell you if she has it - only if she might develop it. A lot of people carry the gene without developing celiac. The fact that she had a high IgA (and I'm presuming it was anti-gliandin IgA, but correct me if I'm wrong) means that her body is reacting to wheat - her immune system is trying...
  22. tarnalberry
    Look at the protein content of the dairy foods - the higher the protein content, the more casein in it. (Since casein is the main protein in dairy.) I'm Gluten-free Casein-free and seem to pretty much not tolerate much casein at all.
  23. tarnalberry
    Richard has a very good, important, point! I had forgotten her age when responding - but the reduction in symptoms during adolescence is not uncommon, and needs to be considered as well.
  24. tarnalberry
    Nope, not yet. I responded in the thread about the enzymes, but it's a subsegment of the gluten molecule that bothers us, and breaking that down is tricky. They're working on it, but like other protein allergies, no, there isn't something to render it harmless yet.
  25. tarnalberry
    Since a lactose intolerance comes from not being able to break down the lactose molecule, it's easy to think of gluten intolerance as not being able to break down the gluten molecule, but that's just not the case. There is a subsegment of the amino acid sequence found in the main wheat, rye, and barley proteins that matches a receptor on a celiac's immune...
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