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RMJ

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Everything posted by RMJ

  1. RMJ
    Comparing results with different units can be very difficult, or impossible. What are the normal ranges for each result?
  2. RMJ
    Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not.
  3. RMJ
    Could you wear a mask at work to reduce your inhalation of flour?
  4. RMJ
    It took me 5 years to get one of my celiac antibodies down into the normal range. A few years later it went up to a low positive. I had started baking with a certain gluten free flour. When I switched to a certified gluten free flour the antibody level went back down to normal. Has anything changed in your diet, supplements, kitchen, etc. that might...
  5. RMJ
    I’ve had both but without salt. The Tierra Farm had a little more flavor, although the almonds were a bit smaller and maybe a tiny bit tougher.
  6. RMJ
    The way these tests are developed is they take a bunch of blood samples from people with active celiac disease, and a bunch of samples from people without celiac disease, and run them. Then they decide where to put the cutoff line for positive such that most samples are on the correct side of the line. So could it really be a low positive? Yes, although...
  7. RMJ
    Is there a minimum time since diagnosis of refractory celiac disease? I really hope I’m not eligible for your study, but looking for it is one reason my gastroenterologist suggested an endoscopy. I’m having it later this month, due to still having GI symptoms on a strict gluten free diet.
  8. RMJ
    I noticed that too! I emailed them to ask if this had always been the case and the labeling changed, or if the manufacturing had changed. Their answer unfortunately didn’t answer my question. The organization (GFFP) they use to certify only requires ONE test per product! Product must test less than 5ppm gluten, so that is good. I can’t tell from the...
  9. RMJ
    Maybe your followup is for the elevated total IgA, and not for celiac. It is strange not to have a numerical result for the tissue transglutaminase. I hope you get answers in the followup with your GP.
  10. RMJ
    Based on the units (g/L) and the normal range having both upper and lower limits, I would think this result is total IgA, not the celiac-specific tissue transglutaminase IgA. Is there another result for that?
  11. RMJ
    Were the two tests done by the same lab? Do the tests have the same normal ranges? Each test manufacturer uses their own system of units when reporting results. Have your results gone down at all since diagnosis? Are you sure you’re gluten free? Do you eat at restaurants? I would recommend that you take a really good look at your gluten free d...
  12. RMJ
    If there were stains or particles on a drink can in an area that would either contact the drink or my lips, I would wash that can whether or not I had celiac disease.
  13. RMJ
    If your celiac antibody tests are still positive that may explain the ongoing symptoms. You might examine your diet and try to get those tests in the normal range before doing something like an MRI or CT scan. It took me almost six years to get all of my antibody tests in the normal range. At first I thought I was eating gluten free by avoiding wheat...
  14. RMJ
    I’d say celiac is likely. Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen. Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer.
  15. RMJ
    How frustrating! The Endomysium antibody result is usually given as a titer, 1:5, or 1:10, or 1:20. This indicates how far the serum can be diluted and still give a positive result. It could be going down but the way they show the results you can’t tell. If you click on the “view trends” button on an electronic version of the results does it show any a...
  16. RMJ
    Wow. Thanks for following up on this. Paperwork and one test? I used to think that gluten free certification meant something.
  17. RMJ
    That is strange. Other pages talk about testing. The one thing I like about GFCO is that the handbook for their certification process is available on their website. I may not agree with the whole process, especially the reduced testing, but at least I can see what the process is. I wish the other certifying organizations would publish their processes...
  18. RMJ
    GFCO does not require testing of each lot, so the “periodic laboratory analyses” fits their requirements. They say testing is done by certified bodies. I’m not sure what that means for an Italian company. The GFCO requirement is less than 10 ppm. Other gluten-free certifying companies may use other limits.
  19. RMJ
    From their email: “rely on analyses that confirm gluten is not detected” This means that they do testing.
  20. RMJ
    The GFCO handbook for the certification process requires testing, at least at first. After a certain number of gluten free batches they can reduce testing. So something doesn’t make sense here. Maybe oil is difficult to test and they made an exception? If so, they should be clear about that. Could it be that they test it at some other stage, rather t...
  21. RMJ
    Did you have any celiac antibody blood tests? Or just the gastroscopy/biopsy?
  22. RMJ
    Good idea! We don’t have a range hood/exhaust fan so I didn’t think of that.
  23. RMJ
    Scientist here: Actual steam shouldn’t contain gluten - the gluten molecule is too large and heavy. In distillation the larger/heavier molecules stay with the liquid. However a quick google search shows plenty of people who say they react when pasta is cooked. Vigorously boiling pasta water could also create droplets that are larger than steam droplets t...
  24. RMJ
    Soap, water and scrubbing won’t “kill” gluten, but it will physically remove it if done well if you also add a thorough rinse step.
  25. RMJ
    I’ve been to restaurants for lunch with people from work and not eaten anything. One time I just had a bowl of white rice. The restaurant didn’t care and nobody made any nasty comments. It took some bravery on my part to do that but it turned out fine. I just tell people I’m there for their company, which is more important to me than the food.
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