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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Ursa Major
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Hi Griffeth, and welcome to this board! Yes, you definitely have celiac disease and NEED to be gluten-free. Unfortunately, it will likely take a while before your DH will be gone, it could be up to two years. But it is the only 'treatment' that is effective, and once the deposits under your skin will be completely gone, you shouldn't have any outbreaks any...
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ARCHIVED Social Behavior -add, Aspergers Etc.
Ursa Major replied to gfp's topic in Coping with Celiac Disease
Wow, that's just like I learn languages! My application of grammar in German, and I believe in English as well, is excellent, maybe even quite perfect. In grade school in Germany I would usually be the only one in my class (all the way through school) who got 100% on every German test, and for every essay I ever wrote. And yet, when my teacher asked me to... -
ARCHIVED Social Behavior -add, Aspergers Etc.
Ursa Major replied to gfp's topic in Coping with Celiac Disease
You know, NTs are lacking some abilities Aspies have, too. And sometimes when we join a different culture, we seem to fit in after all. Because not all cultures value chitchat and parties and being touchy feely all the time. The problem is, that the societal rules in our culture are so ill defined, and you're supposed to 'intuitively know' what is right,... -
ARCHIVED Celiac/exzema - Any Connection?
Ursa Major replied to Debbie65's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just remembered that my son-in-law, who is almost 30 years old, had terrible eczema for most of his life. All over his scalp, once I remember him having it all over his face and arms as well. He was tested for intolerances and found out to be intolerant to sugar a few years ago. When he stopped using sugar (my daughter uses honey in her baking now), his... -
ARCHIVED Social Behavior -add, Aspergers Etc.
Ursa Major replied to gfp's topic in Coping with Celiac Disease
I have trouble with processing incoming information. It is worse with some people than others. I find that especially with my one daughter, who talks fast and in a high voice, she will often say something, and I register that she is saying something, but I can't make out what she is saying. Often she'll have to repeat it several times before I understand... -
ARCHIVED Celiac/exzema - Any Connection?
Ursa Major replied to Debbie65's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Debbie, all his symptoms could be caused by celiac disease. And eczema is, in my opinion and from what I have seen, ALWAYS food related. -
Lucy, licorice tea it not made out of licorice, and therefore doesn't contain gluten. When I first started out on the gluten-free diet I was unable to tolerate ANYTHING raw, including fruit. Eating raw fruit and veggies would give me terribly painful stomach cramps and diarrhea within minutes. I had to cook my vegetables and fruits until completely soft...
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ARCHIVED Social Behavior -add, Aspergers Etc.
Ursa Major replied to gfp's topic in Coping with Celiac Disease
Nancy and Ian, you are probably just 'inwards', which is a perfectly 'normal' way of being. My son is definitely an inward, and he needs quiet time to function. He absolutely doesn't have Asperger syndrome, he really enjoys being around people, but not all the time. He recharges by being alone and having peace and quiet. In fact, he is our youth pastor for... -
ARCHIVED How Do I Remove A Posted Topic?
Ursa Major replied to Esther Sparhawk's topic in Board/Forum Technical Help
You can delete your own post only if you've had no answers. After that, if you want it removed, you'd have to ask Scott (admin). But why would you want to? As Chelsea said, it will help others with the same sort of question. I imagine that Scott might eventually archive very old posts, that haven't had any responses in a long time. But they will still be... -
ARCHIVED Social Behavior -add, Aspergers Etc.
Ursa Major replied to gfp's topic in Coping with Celiac Disease
Yes, as with all 'syndromes' there are degrees to it. And not all the 'symptoms' have to fit, either. With me, probably 97% of the possible AS symptoms fit. You may have less, I don't know. But you sound a lot more than just borderline Aspergers. You sound pretty typical, in fact! I agree with the lying. I've never been able to do it, I am not capable... -
ARCHIVED Confused
Ursa Major replied to jennyj's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is definitely not a coincidence. The same would happen to me. I started to have a miraculous turnaround by the next day after eliminating gluten. And that small amount (just a few crumbs, really) would have made me just as ill. Next time after making something yummy like that, you will need to separate it into two dishes, one for you and one for the... -
ARCHIVED My Psychologist Is Interested In Celiac Connection
Ursa Major replied to Nantzie's topic in Coping with Celiac Disease
I have Asperger Syndrome and Tourette Syndrome. Being gluten-free hasn't changed that. But what has changed is, that I don't get rage attacks any more! My husband still drives me up the wall with his need to wanting to control my every move. But I don't totally lose it any more to the point of hurting myself in my utter frustration. Also, for the most part... -
ARCHIVED Social Behavior -add, Aspergers Etc.
Ursa Major replied to gfp's topic in Coping with Celiac Disease
Well, I have Asperger Syndrome. And even on the gluten-free diet (and cutting out everything else I am intolerant to) I am not much different. I am getting more autistic as I am getting older, gluten-free diet or not. I can't even stand having my family around at times. I need a lot of alone times, or I get very depressed and stop functioning. My preferred... -
ARCHIVED Concerned About Low Weight And Getting Pregnancy
Ursa Major replied to GIJane's topic in Related Issues & Disorders
My oldest daughter (who is 26) was always on the petite side. She is 5'6" and NEVER weighs more than 115 to 120 pounds. It is hard for her to eat enough to get to 120 lbs even. Her waist size was never bigger than 24 inches (unless she is pregnant ). Right now she is pregnant with her fifth child. Her kids were big (Emily was 9 pounds, Meghan and Ethan... -
Well, I found out that I am intolerant to ALL grains and starches. Therefore I had to cut out the whole group. The same goes for dairy, eggs, legumes, all herbs and spices and nightshades and pretty much all fruit. If I eat even pears or Golden Delicious apples (the only fruits I can still tolerate) more than once every few days, I get an allergic reaction...
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ARCHIVED Turning Vanilla Cake Into Chocolate
Ursa Major replied to floridanative's topic in Gluten-Free Recipes & Cooking Tips
If you add a lot of cocoa, you can add another egg and more water and oil, to make it more liquid again. But if you do all that, why not make it from scratch to begin with? I find that making cake from scratch is almost as easy as using a mix, and you actually know exactly what's in it. -
ARCHIVED Confused
Ursa Major replied to jennyj's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Jenny, it is frustrating when you see people like that who seem to be doing fine when cheating. It makes you think you can do the same thing. But as others mentioned, it's a terrible idea, and your friend may have to face the consequences of his cheating some day. Don't risk it. And gfp, I disagree with you. So, sometimes a crumb will cause immediate symptoms... -
Melanie, I apologize, I truly misunderstood you. Your nutritionist is obviously an exception, she sounds excellent. And when I was talking about the three food types, I didn't qualify that those are just broad catecories to get a guideline of where you stand. You then have to find out exactly what works for everybody within those categories. I happen to be...
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Taz, I understand how you feel, I get days like that. In fact, right now I've got to where I have only eaten once a day these past days, because I just can't get myself to cook, I get to feel so frustrated. It sure can be hard when everyone around you is eating all the stuff you want! It's in the fridge, in the cupboard, left out on the table and it's...
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ARCHIVED Is This Enough Evidence?
Ursa Major replied to frenchiemama's topic in Related Issues & Disorders
Well, apparently nothing happened YET. Or nothing obvious, anyway. Since you have been dairy free for a while, you may well get a delayed reaction now. I wouldn't be so quick to claim that nothing happened. Your rash (or other symptoms) could take up to two weeks to appear! Plus, one small hunk of cheese and three spoonfuls of ice cream isn't very much. If... -
Melanie, your approach is one of those 'one diet fits all' approaches I was talking about. While it works for SOME people, it won't work for all. Certain people need more protein, while others need more carbs, while others need more fat. Everybody is different, and that is why it's so very important to find out what makes you feel good and satisfied, and...
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ARCHIVED Testing Daughter For Celiac
Ursa Major replied to Nantzie's topic in Parents, Friends and Loved Ones of Celiacs
Well, Enterolab can't diagnose you with celiac disease, but with gluten intolerance. Since the treatment is the same (and if you're gluten intolerant you'll likely develop active celiac disease sooner or later) it doesn't really matter. There are some experts who would like the distinction in diagnosis abolished altogether. And once you're diagnosed by... -
Carla, when I get glutened I get all kinds of rashes, and that one sounds familiar. I doubt that there is a need to see a dermatologist. It might help to use an eczema cream from the health food store. I use one called 'Execalm', and it really helps when I get those outbreaks. It helps with the itching and burning, and makes it heal faster.
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ARCHIVED This Is Probably A Dumb Question But...............
Ursa Major replied to Debbie65's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is NOT a dumb question! I am intolerant to the nightshade family, and potatoes cause bloating, gas and diarrhea with me. It is a completely different issue from gluten intolerance, and potatoes and potato starch do not contain gluten. Still, many people who are gluten intolerant also seem to be intolerant to nightshades. Maybe you are, too? -
ARCHIVED Holidays Are Tough - Feeling Sorry For Myself
Ursa Major replied to a topic in Coping with Celiac Disease
Cassidy, I understand why you would be upset. I think it is VERY insensitive for them not to have made sure you had some gluten-free pizza while they had theirs (of course, you could have made sure you had some, too). But it must have been extremely upsetting for you when on your OWN birthday they gave you a regular birthday cake and ate it in front of you...